LymeNet Flash: New Definition of Chronic Lyme/ PTLDS

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»	LymeNet Flash » Questions and Discussion » Medical Questions » New Definition of Chronic Lyme/ PTLDS

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Topic: New Definition of Chronic Lyme/ PTLDS

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

Dr H just released his research on the definition of chronic Lyme / Post Treatment Lyme Disease Syndrome.

He recommends it now be called Lyme / MSIDS.
( Mulitiple Systemic Infectious Disease Syndrome )

https://m.facebook.com/story.php?story_fbid=1965297150225740&id=558833517538784&_ft_=top_level_post_id.1965297150225740%3Acontent_owner_id_new.558833517538784%3Acall_to_action_type .LEARN_MORE%3Astory_location.4%3Astory_attachment_style.share&__tn__=%2C%3B

Posts: 3217 | From Florida | Registered: Nov 2016 | IP: Logged |

duncan
LymeNet Contributor
Member # 46242

posted

It's not a syndrome. It's a spirochetal disease that has frequent co-infections, none of which is a syndrome.

Posts: 228 | From Unitied States | Registered: Jul 2015 | IP: Logged |

Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

posted

https://en.m.wikipedia.org/wiki/Syndrome

Posts: 3217 | From Florida | Registered: Nov 2016 | IP: Logged |

duncan
LymeNet Contributor
Member # 46242

posted

Fine, but I would suggest syndrome is far too often assigned by the medical community as a default mechanism for clusters of symptoms whose cause is unknown.

So why invite a potential problem when we know the causative agents involved in TBD's?

Moreover, I would point out that this approach places us one step farther from clarity. I am reminded of the idea I disagree with of when testing CSF of Lyme patients, looking for the AI instead of ELISA or WB - see what I mean? One step removed from clarity.

I appreciate what he is attempting here. He is trying to capture the idea that this is a package deal. That is usually true these days, as in, what, 75% last time I checked?

The difficulty as I see it is that each disease or parasite or whatever is a discrete agent, and each discrete agent may demand its own peculiar therapy, ie, you won't throw a single therapy protocol at this so called syndrome.

Posts: 228 | From Unitied States | Registered: Jul 2015 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I don't like that name. People need to know it's LYME DISEASE from a tick .. not some 'SYNDROME.'

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by duncan:

Fine, but I would suggest syndrome is far too often assigned by the medical community as a default mechanism for clusters of symptoms whose cause is unknown.

So why invite a potential problem when we know the causative agents involved in TBD's?

-
Exactly

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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