Hi, unfortunately I was just diagnosed with returning Lyme!!!!!!!! My blood work came back positive for several band. Started meds two weeks ago, horrible Herxing I was originally suffered for 3 years & 17 doctors. So this is going on for over 25 years!!!! Have any of my Lyme Family gone through this As always, thank for listening Mary c
Posted by Robin123 (Member # 9197) on :
Yes, unfortunately people do get relapses. You just gotta go with the flow re treatment and getting your symptoms down again.
See if you can find ways to reduce the herxing, including having that discussion with people here who have some helpful suggestions.
You mentioned occipital nerves. I have no idea if this would help you: I drink mangosteen juice to stop all Lyme eye symptoms, which were floaters, sensitivity to light, eye muscle pain and growing blurriness. I drink around an ounce a day.
Posted by maryc (Member # 4904) on :
Robin 123 thank you so much! This is as we all know a horrible beast to tame! I was drinking a mango drink for thyroid and will start again. We keep on fighting!
Posted by Robin123 (Member # 9197) on :
Hi - easy to confuse - mango and mangosteen! Mangosteen is a tropical fruit with all those antioxidants. I drink the MangoXan version - there are lots out there.
Re thyroid - have you had a full thyroid bloodtest panel done? I tested hypothyroid and am doing much better on Armour thyroid - it cleared up my brainfog!
Posted by maryc (Member # 4904) on :
Robin123. Thank you so much. Seeing my LLMD ON Wednesday.
Posted by Bartenderbonnie (Member # 49177) on :
Lots of published researched on occipital manifestations in Lyme disease.
I have had a few relapses. Sometimes though not a relapse but an undiagnosised co-infection seeking dominance.
Heartbreaking to be sure. Feel so sorry for you. But you know what has to be done, no if's, and's or but's. Time to lock and load and fight. You got well before and you will get well again. Keep us posted on your progress. Wish you well.