LymeNet Flash: neurological lyme ? MRI shows white matter damage

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Posted by LisaK (Member # 41384) on :

I changed this post since my MRI results came in ---

I had severe neuro lyme after second bit in 2011 or so and almost died, losing at least 50 IQ points and the ability to do almost anything , along with lyme alzheimers...

So now I have regained a lot of that back (thank you God!) but now slowly my left side is acting up and not doing what my brain tells it to do. like my left toes werent bending when I told them to with my brain, and my left hand gives me trouble on piano .

I used to be almost 100% ambidextrous.
My neurologist wants me to have an MRI but I am skeptical anything will show up there. I have had many MRIs in the past that show almost nothing. but that was prior to this left sided stuff.

If it's lyme related would it show up in an MRI?

[ 04-24-2022, 10:18 PM: Message edited by: LisaK ]

Posted by Lymetoo (Member # 743) on :

Usually does NOT show up on an MRI .. white lesions may show up, which is then often misdiagnosed as MS.

You may want to do it to rule out other potential problems.

Moving to Medical Questions

Posted by LisaK (Member # 41384) on :

i had/have white lesions from past MRIs.

ok, well I guess I will see what shows up after I get it done tomorrow!

Posted by Lymetoo (Member # 743) on :

Best of luck!

Posted by LisaK (Member # 41384) on :

I got my results today.

"chronic microvascular ischemia"

well shoot.

My neurologist didn't call me yet since it is the weekend, but I read a bit about this online and it sounds like a sad thing to have.

Can lyme cause this????

is it from inflammation from the diseases???

But I just haven't felt righ t since that drug reaction I had - Rubinol.

Anyone know anything about this??

Posted by hiker53 (Member # 6046) on :

Sorry to hear this, LisaK.

Sounds like the older one gets the greater the chances of getting this. Most people don't have symptoms.

But I think they are treatments and it can even be reversed.

That being said, I hope your MD can provide you with answers.

Posted by LisaK (Member # 41384) on :

thanks Hiker,

I looked at last MRI from 2018 and it shows the start of this but no dr. ever mentioned! ugh

Posted by Lymetoo (Member # 743) on :

Hang in there, Lisa!!

Ask the Dr if mold can also cause this?

Posted by LisaK (Member # 41384) on :

so my new neurologist said "everyone gets these white dots and they mean nothing".

[bonk]

Posted by lymewreck36 (Member # 4395) on :

Best of luck Lisa. Been losing memory over the past two years. I’m 58. Lyme and friends for 2 decades.