posted
A family member of mine recently was diagnosed with lymes disease and I want to make sure she is getting the best care possible. I have heard horror stories about cases that don't get the follow through they need. I'm also concerned about some of the side effects of the drugs and need help weighing the benefits of treating the disease with different techniques. Thanks!
Posts: 1 | From Rochester MN | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome. I hope you get some specific names for a LYME specialist there (while some may say "lyme's" because that's what they've heard - usually not an expert who has studied it. That's one red flag, any doctor who says "lyme's" is likely no expert and that can be a good help as we sort out who is expert - there is no "s" in the word).
Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses
Laboratory Tests and Diagnosis for Lyme Disease and Co-infections - June 2013
- by Armin Schwarzbach, M.D., Ph.D. - Five Pages
ANY positive bands on either the IgG or the IgM Western Blot can indicate CURRENT, active or persistent borellia infection, especially with classic symptoms, and history that may be of note.
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. - How just doxycycline (or other antibiotics, alone) can cause chronic lyme:
Topic: replication within cystic forms of lyme -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Your concern about Rx side effects is well understood. Certainly any Rx can have side effects and that lyme rarely travels alone and a full combination protocol is required to cover various infections,
most LLMDs (lyme literate MD) want their patients on liver support to help protect the liver but also help the treatment be better tolerated.
Remember that while some Rx can have harsh effects, lyme is one of the most neurotoxic infections there is and it can be devastating in so many ways, even fatal. So it has to be assertively addressed, along with other infections that go along with it.
However, liver support can make a world of difference in many ways.
posted
PM sent for WI.
Posts: 8984 | From Illinois | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just one word about Mayo Clinic (which is in the city you cite). No. Just "NO" regarding trying to seek any wisdom about lyme from Mayo. It's not to be found there, sadly. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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