LymeNet Flash: LLMD in Colorado

This is topic LLMD in Colorado in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/5779

Posted by GWVet (Member # 14286) on :

Hi! I am new to this board and am looking for llmd in or near Colorado Springs, Colorado. I have a great specialist in Denver but would like to find someone local, if possible.

My specialist in Denver is just that, a specialist (a very good specialist). I'd like to find a llmd locally that can see me for other things, too. I'm probably asking too much, there!

I was diagnosed with Lyme by a positive blood test through Quest laboratories followed by IGeneX Western Blot, Palo Alto, California in August 2007.

IGG

41 ++

58 +

IGM

39 IND

41 IND

58 +

83-93 +

I am also positive for Mycoplasma Pnuemoiae, Epstein-Barr Virus, and yeast. I am due to start lyme treatment after the EBV treatment (mentioned below) is completed.

My story of illness began in 1991 when I was deployed to Desert Storm. It wasn't even a week after deploying that I began to feel poorly.

I had many small issues that I didn't put together and would complain to the doctor about those issues but thought nothing more abou them.

I began having debilitating problems with my muscles in my back and neck in 1994, with migraines in 1998 and after my first pregnancy in 2001 I was miserable.

I thought my feeling tired and generally awful was from recovering from pregnancy and having a little one. 20 months later our second child came and I was worse.
I couldn't work anymore; how I made it through those days I will never know! I had always kept myself in good shape, my prepregnancy weight (5'4") was 130.

After pregnancy was 165. I began to lose it without trying and dropped down to 115 in 3 months! For about a year after I couldn't keep from losing weight then things shifted and I began gaining.

A year later I was up 20 pounds. I'm now 150 and gaining. I've tried all sorts of dieting, moderation, etc... nothing works, I can only gain.

I began to research my symptoms and found that my doctors (military) knew nothing of how to treat me. I asked for a referral to a specialist in Denver and lucked out!

This MD has run tests, done intensive interviews with me and my family, and offered real treatment. I am now able to function through the day, do some light activity or housework, and take care of our kids [woohoo]

.

I've been treated with antibiotics:

Diflucan and Nystatin for yeast

Zithromax for Mycoplasma

Valtrex for EBV.

Zithromax side effects caused a temporary hearing loss so I had to stop that early and 3x daily Valtrex caused the runs [toilet]

.

Was able to cut back to 2x a day but suboptimal treatment allowed the EBV to remain present and repopulate shortly after stopping Valtrex.

I am currently being treated with Kutapressin for EBV instead. Kutapressin is an old medication, although considered experimental, and available through compounding pharmacies It has has had huge success at riding the body of EBV.

It is given through injection into the thigh once daily for 30 days and then 1x every other day for 60 days. I just started that yesterday. I'm also receiving immunoglobulin injections every 2 weeks to help my body fight off all this junk!

In addition to the above, I've been diagnosed with:

thyroid dysfunction

adrenal insufficiency

pituatary dysfunction

Coagulation Defect

Chronic Fatigue

Fibromyalgia

Migraines

sleep problems

IBD

PMS

acne

hair loss

ADD.

I've been treated with antidepressants (none worked)

compounded Liothyronine followed by compounded T3/T4 combination

compounded Cortisol for adrenals (made things worse) coupled with DHEA, Pregnenolone, high dose bio-id Progesterone

and testerone (which made me angry),

Heparin once for 3 months and once for 1 month for the coagulation defect and fibrin the above viruses hide in

iron

shots into my trigger points followed with massage, and physical therapy for my locked up neck and back

Ambien for sleep

tetracycline for acne

and Nioxin for hair loss.

My symptoms have been:

extreme fatigue

lethargic

cold all the time

drastic weight loss followed by drastic weight

gain (no control of either)

flu like symptoms after any kind of exersion

sporatic cycles, cramps, grumpy, bloated, etc...

iron deficiency

general muscle aches and pain

joint pain without swelling and inflammation

hard knots in my back

frozen joints in my neck and back

sore throat

daily, painful, swollen lymph nodes

headaches/migraines

sleep problems

hair loss

muscle weakness

high cholesterol that didn't respond to the
positive until I began thyroid therapy

anxiety

depression

brain fog

difficulty with word finding

difficulty concentrating

benign breast lump

bone loss in my jaw (waiting on results of bone density scan)

I'm sure I'm forgetting some!

[confused]

As far as the lyme treatment, can you refer me to a post or describe for me what you have been treated with that worked?

I've read about Rocephin but don't know what that is.

Does anyone else have a coagulation disorder or problem and how was it addressed?

Are there any Gulf War vets here and if so, are you experiencing the same things?

Thanks for listening and I appreciate your thoughts!
Lisa

[ 10. January 2008, 02:27 PM: Message edited by: GWVet ]

Posted by hanginginthere (Member # 11685) on :

Welcome, Lisa!

There are many members from Colorado...lots went to Dr. M (and H) in the Co. Spring. I did too, but unfortunately, the practice closed in July. Hopefully, those patients will see your post and let you know if they've found a good replacement LLMD nearby!

Another suggestion--copy your post and introduce yourself over in the medical forum. It is more active over there and you may find some fellow veterans and a lot of good advice!

Welcome!! [Razz]

Posted by lightfoot (Member # 2536) on :

Hi Lisa!

I just sent you an Private Message.

Healing smiles....lightfoot [Smile]

Posted by GWVet (Member # 14286) on :

Hanginginthere,

Thanks, I posted in the medical section as well!

I have heard from a couple of local people but sadly, not much here in the Springs. I might need to consider looking a gift horse in the face and being happy with what I have!!!

Thanks,
Lisa

Posted by GWVet (Member # 14286) on :

lightfoot,

I received your pm; have replied!

Thanks,
Lisa

Posted by bettyg (Member # 6147) on :

lisa, welcome to the board; so glad you found us!

here's dr. c's western blot explanation of the numbers you posted! please look up your numbers and compare with them. [Smile]

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

wow, 2 little ones also. many onthe board are LOSING WEIGHT and can not gain at all too! you could do a search for that if interested,,

search is found at top under new post

type in losing weight
medical
subject line
any date
membership no., leave blank; hit send

read all posts/replies; alot of knowledge gained from these earlier posts!

if nothing found, use BACK button and show BODY TEXT vs. subject line; hit send, and hopefully posts will pop up then.

thanks for the very detailed, wonderfully spaced history on yourself.

MANY have coagnulation problems inclding me. frankly with ALL my other problems, i don't think i'm on anything for that.

believe it was given a supplement earlier for that; but given 22 supplements which made me much worse; so off them.

sleep problems; have you ever been tested for SLEEP APNEA; stopping breathing and gasping for air? many of us have that too.

irritable bowels .. have you had any food allergy testings done for GLUTEN...wheat, rye, oats, and barley and

CASEIN...dairy products

i have both, and many other lymies have these too.

GULF WAR VETS, you might have to start a NEW post for that since we can NOT read all posts here since this is a very active board.

i believe 3 vets i know on the board are:
****************************************

aligondo bruce

tony z

daise

i see our colorado member sent you llmd names! good; you are in good hands with her! later [group hug]