posted
Hi! I am new to this board and am looking for llmd in or near Colorado Springs, Colorado. I have a great specialist in Denver but would like to find someone local, if possible.
My specialist in Denver is just that, a specialist (a very good specialist). I'd like to find a llmd locally that can see me for other things, too. I'm probably asking too much, there!
I was diagnosed with Lyme by a positive blood test through Quest laboratories followed by IGeneX Western Blot, Palo Alto, California in August 2007.
IGG
41 ++
58 +
IGM
39 IND
41 IND
58 +
83-93 +
I am also positive for Mycoplasma Pnuemoiae, Epstein-Barr Virus, and yeast. I am due to start lyme treatment after the EBV treatment (mentioned below) is completed.
My story of illness began in 1991 when I was deployed to Desert Storm. It wasn't even a week after deploying that I began to feel poorly.
I had many small issues that I didn't put together and would complain to the doctor about those issues but thought nothing more abou them.
I began having debilitating problems with my muscles in my back and neck in 1994, with migraines in 1998 and after my first pregnancy in 2001 I was miserable.
I thought my feeling tired and generally awful was from recovering from pregnancy and having a little one. 20 months later our second child came and I was worse. I couldn't work anymore; how I made it through those days I will never know! I had always kept myself in good shape, my prepregnancy weight (5'4") was 130.
After pregnancy was 165. I began to lose it without trying and dropped down to 115 in 3 months! For about a year after I couldn't keep from losing weight then things shifted and I began gaining.
A year later I was up 20 pounds. I'm now 150 and gaining. I've tried all sorts of dieting, moderation, etc... nothing works, I can only gain.
I began to research my symptoms and found that my doctors (military) knew nothing of how to treat me. I asked for a referral to a specialist in Denver and lucked out!
This MD has run tests, done intensive interviews with me and my family, and offered real treatment. I am now able to function through the day, do some light activity or housework, and take care of our kids .
I've been treated with antibiotics:
Diflucan and Nystatin for yeast
Zithromax for Mycoplasma
Valtrex for EBV.
Zithromax side effects caused a temporary hearing loss so I had to stop that early and 3x daily Valtrex caused the runs .
Was able to cut back to 2x a day but suboptimal treatment allowed the EBV to remain present and repopulate shortly after stopping Valtrex.
I am currently being treated with Kutapressin for EBV instead. Kutapressin is an old medication, although considered experimental, and available through compounding pharmacies It has has had huge success at riding the body of EBV.
It is given through injection into the thigh once daily for 30 days and then 1x every other day for 60 days. I just started that yesterday. I'm also receiving immunoglobulin injections every 2 weeks to help my body fight off all this junk!
In addition to the above, I've been diagnosed with:
thyroid dysfunction
adrenal insufficiency
pituatary dysfunction
Coagulation Defect
Chronic Fatigue
Fibromyalgia
Migraines
sleep problems
IBD
PMS
acne
hair loss
ADD.
I've been treated with antidepressants (none worked)
compounded Liothyronine followed by compounded T3/T4 combination
compounded Cortisol for adrenals (made things worse) coupled with DHEA, Pregnenolone, high dose bio-id Progesterone
and testerone (which made me angry),
Heparin once for 3 months and once for 1 month for the coagulation defect and fibrin the above viruses hide in
iron
shots into my trigger points followed with massage, and physical therapy for my locked up neck and back
Ambien for sleep
tetracycline for acne
and Nioxin for hair loss.
My symptoms have been:
extreme fatigue
lethargic
cold all the time
drastic weight loss followed by drastic weight
gain (no control of either)
flu like symptoms after any kind of exersion
sporatic cycles, cramps, grumpy, bloated, etc...
iron deficiency
general muscle aches and pain
joint pain without swelling and inflammation
hard knots in my back
frozen joints in my neck and back
sore throat
daily, painful, swollen lymph nodes
headaches/migraines
sleep problems
hair loss
muscle weakness
high cholesterol that didn't respond to the positive until I began thyroid therapy
anxiety
depression
brain fog
difficulty with word finding
difficulty concentrating
benign breast lump
bone loss in my jaw (waiting on results of bone density scan)
I'm sure I'm forgetting some!
As far as the lyme treatment, can you refer me to a post or describe for me what you have been treated with that worked?
I've read about Rocephin but don't know what that is.
Does anyone else have a coagulation disorder or problem and how was it addressed?
Are there any Gulf War vets here and if so, are you experiencing the same things?
Thanks for listening and I appreciate your thoughts! Lisa
[ 10. January 2008, 02:27 PM: Message edited by: GWVet ]
Posts: 19 | From Colorado Springs, CO | Registered: Jan 2008
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There are many members from Colorado...lots went to Dr. M (and H) in the Co. Spring. I did too, but unfortunately, the practice closed in July. Hopefully, those patients will see your post and let you know if they've found a good replacement LLMD nearby!
Another suggestion--copy your post and introduce yourself over in the medical forum. It is more active over there and you may find some fellow veterans and a lot of good advice!
Welcome!! Posts: 136 | From North Carolina | Registered: Apr 2007
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
Hi Lisa!
I just sent you an Private Message.
Healing smiles....lightfoot
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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I have heard from a couple of local people but sadly, not much here in the Springs. I might need to consider looking a gift horse in the face and being happy with what I have!!!
Thanks, Lisa
Posts: 19 | From Colorado Springs, CO | Registered: Jan 2008
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As far as the lyme treatment, can you refer me to a post or describe for me what you have been treated with that worked? 
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