LymeNet Flash: Finding a Lyme Literate doctor who knows Co-infections

This is topic Finding a Lyme Literate doctor who knows Co-infections in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/5795

Posted by babesiamom (Member # 14182) on :

I saw so many people looking for a LLMD that felt perhaps the following might be of use, as it is not a easy task AND there are few LLMD's who are truly literate in co-infections, which MUST be treated (Babesia, Bartonella and Ehrlichiosis) either along with or even BEFORE you begin to treat lyme.

I offer these suggestions to save some of you time, heartache and money. AS someone who tried every modality there is and is now "free and clear" of all co-infections and long-term lyme disease and who almost lost her children, I know how hard and expensive this disease can be.

You can call IGeneX to find at least a doctor in your area who uses them for testing (that will tell you they have some knowledge of lyme at the very least, because any NON lyme literate doctor is NOT using IGeneX) Their number is 800 832 3200 - it is a backward way of finding someone, but it works

you can also go to ILADS website and search there

You can search for a doctor by also checking the internet on google for co-infection literate doctors on Babesia and Bartonella (of which there are very few)

amazon.com has most of the books published by lyme literate doctors

medscape and pubmed.com will have ANY doctor who has written an article on lyme, babesia, and Bartonella - cat scratch fever - the most common co-infection (considered by the TOP lyme doctors as being the most under-diagnosed vector in the US).

Please do not assume there will be a doctor in your state, or even within driving distance who is truly lyme literate. Many patients fly to get to the "best" doctors.

If anyone has questions, please feel free to email me privately. I am a survivor and have been cured of bartonella and babesia and long-term lyme (20 years undiagnosed).

There is HOPE out there!
BabesiaMom

Posted by bettyg (Member # 6147) on :

hi; i found your post confusing.

may i suggest you edit your subject title and add SUGGESTIONS at the beginning; then it makes sense to all who will read it.

to edit, click PAPER/PENCIL ICON to right of your name, it opens both subject line and body text. add suggestion,

make sure you marked lower left hand corner for all replies, and then click edit send! done [Wink]

THANKS for taking the time to address your 1st hand experiences for all! [group hug]

Posted by Avis (Member # 17964) on :

Dear BabesiaMom and BettyG,

This is my first time on this site. My 19 year old son, who's been sick for 7 years, has Bartonella (and maybe more).

I would like to PM you, BabesiaMom, but I don't know how, since you mentioned that you were recovered and those interested could e-mail you. BettyG--can you help this newbie figure out how to do this?

We've been searching for years and finally believe we know what's been so wrong. I want to treat him correctly. Thank you very much.

Avis

[email protected]

Posted by bettyg (Member # 6147) on :

sent avis a note to start her own post here so it's NOT overlooked...

calif. folks know better which llmds treat the co-infections; i don't! [Wink]

Posted by Nicoles Mom (Member # 14408) on :

I would liketo PM you but there is no PM icon on your posts.

How do I PM yo? Or could you PM me please?

Posted by jmom (Member # 17944) on :

Looks like another mom is writing. How can I send you a PM? Thanks ,J