Topic: Finding a Lyme Literate doctor who knows Co-infections
babesiamom
Unregistered
posted
I saw so many people looking for a LLMD that felt perhaps the following might be of use, as it is not a easy task AND there are few LLMD's who are truly literate in co-infections, which MUST be treated (Babesia, Bartonella and Ehrlichiosis) either along with or even BEFORE you begin to treat lyme.
I offer these suggestions to save some of you time, heartache and money. AS someone who tried every modality there is and is now "free and clear" of all co-infections and long-term lyme disease and who almost lost her children, I know how hard and expensive this disease can be.
You can call IGeneX to find at least a doctor in your area who uses them for testing (that will tell you they have some knowledge of lyme at the very least, because any NON lyme literate doctor is NOT using IGeneX) Their number is 800 832 3200 - it is a backward way of finding someone, but it works
you can also go to ILADS website and search there
You can search for a doctor by also checking the internet on google for co-infection literate doctors on Babesia and Bartonella (of which there are very few)
amazon.com has most of the books published by lyme literate doctors
medscape and pubmed.com will have ANY doctor who has written an article on lyme, babesia, and Bartonella - cat scratch fever - the most common co-infection (considered by the TOP lyme doctors as being the most under-diagnosed vector in the US).
Please do not assume there will be a doctor in your state, or even within driving distance who is truly lyme literate. Many patients fly to get to the "best" doctors.
If anyone has questions, please feel free to email me privately. I am a survivor and have been cured of bartonella and babesia and long-term lyme (20 years undiagnosed).
This is my first time on this site. My 19 year old son, who's been sick for 7 years, has Bartonella (and maybe more).
I would like to PM you, BabesiaMom, but I don't know how, since you mentioned that you were recovered and those interested could e-mail you. BettyG--can you help this newbie figure out how to do this?
We've been searching for years and finally believe we know what's been so wrong. I want to treat him correctly. Thank you very much.
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