Bartonella is all I've been diagnosed with so far but I don't yet have a doctor.
My Bart is pretty bad: 4+ on a 0-5 scale (fry labs) so I really want to find someone who knows what they are doing when it comes to Bart.
Can someone PM me with the name and possibly contact number if you know a specialist like this? Or maybe if you just know a very good LLMD in New England area. Thanks!
[ 27. May 2008, 03:12 PM: Message edited by: Sing02 ]
Posted by bettyg (Member # 6147) on :
sing,
i have no one on my list w/bart specialty so try this ok!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. Posted by Sing02 (Member # 15465) on :
The contact group person in MA recommended me to see dr. H in NY as a specialist who pays a lot of attention to coinfections.
After googling his name I was pretty impressed by the fact that he had more than 7000 chronic lyme patients alone.
But can someone give me their personal opinion of him? PM me if you are not sure who I am talking about.
Posted by bettyg (Member # 6147) on :
i have NO PERSONAL EXPERIENCE, but sent you a pm w/info...fyi.
Posted by Sing02 (Member # 15465) on :
Thank you all for feedback. I got an appointment with one of his assistant nurse-practitioners...
Wondering if it's still worth the money... Could someone who was his patient please let me know if they are as knowledgeable as Dr. H himself?
This is a lot of money for me and the "well is running a little dry" already...
Posted by mbroderick (Member # 5220) on :
Try calling Support Groups in that area. They get lots of doctor feedback from members. There's a link on the upper left side of this page. Call, don't email them.
Posted by keltyl (Member # 14050) on :
Sent you a pm.
Posted by Lymetoo (Member # 743) on :
Lots of people here see him. Contact "sixgoofykids" here.
Posted by sixgoofykids (Member # 11141) on :
He's great and his PA's are very-well trained by him. He'll be able to help you ... no doubt in my mind.
When you see a PA, you still get to see him at your first visit. You will also periodically have appts. with him.
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