Bartonella is all I've been diagnosed with so far but I don't yet have a doctor.
My Bart is pretty bad: 4+ on a 0-5 scale (fry labs) so I really want to find someone who knows what they are doing when it comes to Bart.
Can someone PM me with the name and possibly contact number if you know a specialist like this? Or maybe if you just know a very good LLMD in New England area. Thanks!
[ 27. May 2008, 03:12 PM: Message edited by: Sing02 ]
Posts: 59 | From Boston | Registered: May 2008
| IP: Logged |
bettyg
Unregistered
posted
sing,
i have no one on my list w/bart specialty so try this ok!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
IP: Logged |
posted
The contact group person in MA recommended me to see dr. H in NY as a specialist who pays a lot of attention to coinfections.
After googling his name I was pretty impressed by the fact that he had more than 7000 chronic lyme patients alone.
But can someone give me their personal opinion of him? PM me if you are not sure who I am talking about.
Posts: 59 | From Boston | Registered: May 2008
| IP: Logged |
bettyg
Unregistered
posted
i have NO PERSONAL EXPERIENCE, but sent you a pm w/info...fyi.
IP: Logged |
posted
Thank you all for feedback. I got an appointment with one of his assistant nurse-practitioners...
Wondering if it's still worth the money... Could someone who was his patient please let me know if they are as knowledgeable as Dr. H himself?
This is a lot of money for me and the "well is running a little dry" already...
Posts: 59 | From Boston | Registered: May 2008
| IP: Logged |
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
Try calling Support Groups in that area. They get lots of doctor feedback from members. There's a link on the upper left side of this page. Call, don't email them.
Posts: 2097 | From PA | Registered: Jan 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Wink]](wink.gif)
Printer-friendly view of this topic