I have been searching for answers. My 7 year old girl has been bitten by mosquitoes from a camping trip (6 days ago). The bites turned into large 2-3" bulls-eye marks. She has been diagnosed with Lymes disease(7/12/08), but they say it has to be from ticks. Now her other mosquito bites are becoming bulls-eye shaped. I am very concerned that it may be something even more serious. Do you know what we should do? We went with our church group to Diamond lake in Oregon. Millions of mosquitoes! All of the kids were covered with bites. Our children had over 30 a piece, and we covered them with deet. It didn't work. What about all the other kids? If it is caused by mosquitos, then we have approx. 50 more kids just in our group at risk. Do you know what we should do or anybody that could help?
Posted by adamm (Member # 11910) on :
Yep--I think something like 1% of mosquitos carry Lyme.
I actually just got re-exposed to it from one 2 weeks ago.
Anyway--it's CRUCIAL that you get her to a doctor who follows the treatment protocols of the International Lyme and Associated Disease Society immediately. They're pretty much the only ones aware of this fact, and, as the rash is diagnostic for Lyme, you NEED their help. Believe me, an 18 year-old losing his mind from this illness--there is nothing more serious than Lyme!
In the mean time--take some pictures of your bullseye and show them to a local doc.[/I] Tell this one it's from a tick![/I]
As for prevention--bug spray, and possibly stocking up on doxycycline somehow?
Posted by kelmo (Member # 8797) on :
We believe we were infected by mosquitoes and not ticks.
Posted by catskillmamala (Member # 12536) on :
Take pictures of her rash!!!!!
It may be the difference between insurance coverage for lyme treatment down the road.
Also, try to find a lyme literate md for her. Or have a "good" doctor consult with Dr. J in Ct.
Try to limit sugar--lyme bugs LOVE it and it makes symptoms and treatment worse.
Yes, mosquitos can carry lyme--or she did get a tick bite that you didn't see. The rashes can appear anywhere and aren't just at the site of the bite.
I know a little girl here bit by a tick a few weeks ago who presented with rashes head to toe, not at the bite site.
Posted by Meg (Member # 22) on :
Sending Referrals Dad
Posted by Lymetoo (Member # 743) on :
Did "DAD" see this??
Posted by Keebler (Member # 12673) on :
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OregonDad:
I have broken down your post so that more people can read it.
Many of us here have neurolyme and need text to be in small chunks with lots of white space. You will get more replies this way.
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original post, broken down:
I have been searching for answers. My 7 year old girl has been bitten by mosquitoes from a camping trip (6 days ago).
The bites turned into large 2-3" bulls-eye marks. She has been diagnosed with Lymes disease(7/12/08), but they say it has to be from ticks.
Now her other mosquito bites are becoming bulls-eye shaped.
I am very concerned that it may be something even more serious.
Do you know what we should do? We went with our church group to Diamond lake in Oregon. Millions of mosquitoes! All of the kids were covered with bites.
Our children had over 30 a piece, and we covered them with deet. It didn't work. What about all the other kids?
If it is caused by mosquitos, then we have approx. 50 more kids just in our group at risk. Do you know what we should do or anybody that could help?
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Posted by Keebler (Member # 12673) on :
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OregonDad,
I live in Portland.
I see Meg has contacted you. And I posted the links for support groups here at another thread you had. I can post those again, but I need to rest for a while.
YES, this can be lyme and, YES, time is of the essence.
Yes, ALL the children - anyone who got bitten should be contacted once you have some more details and someone they can see about this.
As someone else said: TAKE PHOTOS of the rash. Take many.
Take with a clean coin or ruler to indicate actual size. Take with a dated magazine or newspaper to prove date. And show face in photo to prove it is the person/patient's rash.
You will need these if the rash fades.
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tests may not show yet. AND co-infections are possible, too. however, if from mosquitoes, I am not sure if the range of coinfections is the same as with ticks.
there are medical articles showing mosquitoes to carry lyme
- We don't have any LLMDs here and lyme is a very controversial topic among doctors. I do have one name for you of a ND who has worked alongside some LLMDs in other states.
I will PM you my phone number and you can call me after 11:00 am. if you want that phone number.
You may have already been led to someone who can help you, but if not please do call and I'll do my best to connect you to help.
Best of luck.
For now: ANYONE HAVE MEDICAL ABSTRACTS REGARDING MOSQUITO TRANSMISSION OF Bb?
I know there are documented cases in Eastern Europe.
I have to rest for a while. I'll be back.
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Posted by Keebler (Member # 12673) on :
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This is not about mosquitoes, but about the treatment situation - background.
Co-infections (other tick-borne infections or TBD - tick-borne disease) are not discussed here do to space limits. Still, any LLMD you would see would know how to assess/treat if others are present.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . .Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam, so they are frequently referred to mental-health professionals for evaluation.
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
. . . Once disseminated throughout the body, B. burgdorferi secludes itself and becomes difficult to detect through laboratory testing--and by the host's immune system.
The bacterium may hide in its host's WBCs or cloak itself with host proteins.
. . . Furthermore, it tends to hide in areas not usually under immune surveillance, such as scar tissue, the central nervous system, the eyes, and deep in joints and other tissues.
- FULL ARTICLE AT LINK ABOVE.
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[ 16. July 2008, 03:47 PM: Message edited by: Keebler ]
Posted by Keebler (Member # 12673) on :
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
BTW: Avoid any creams or lotions that contain steroids, even in tiny amounts. We can back that up but that comes from ILADS experts.
------------------------------------------------
In hopes of finding a few perfect medical articles, I've posted a call for documents in the medical forum. I can more a little later, but I've not looked into this before and am really slow. I will try to find someone who has what you need.
Click onto this URL later to see what we are gathering for you:
Topic: MOSQUITO transmission of Bb - I need documents
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Posted by NJLyme82 (Member # 15683) on :
Is it possible that she may have been bitten by mosquitos AND a tick?
You're doctor should know that not everyone remembers a tick.
I never remembered a tick bite and I never had a rash and I had Lyme disease for sure many years ago and have complications today as a result if it.
Time is of the essence. Like everyone else said, get to an LLMD ASAP.
Posted by tailz (Member # 10014) on :
I had a bull's eye around a mosquito bite several years ago, and I KNOW it was a mosquito bite (and not a tick bite), because I killed the mosquito that bit me.
In fact, when I killed it, I think I pushed its mouth parts into my leg.
As a kid, my mom used to say I must be allergic to mosquito bites because I'd get bull's eyes every summer - at least one or two.
And if there was any doubt that mosquitos carried Lyme or any of these coinfections in the past, they do now, at least in PA, because every day during the summer I get at least 5 or more fresh ones.
Posted by Soleilpie (Member # 8481) on :
Since the doctor diagnosed your daughter with Lyme, did he prescribe any antibiotics for the Lyme?
It's possible that your daughter may have received a tick bite along with mosquito bites.
The ticks that carry Lyme can be very tiny...the size of the tip of a pencil.
Your daughter may not have notice it if it were on her. Many don't.
Posted by Keebler (Member # 12673) on :
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LLMD PEDIATRICIAN?
Can someone PM OregonDad the names of LLMD pediatricians, please? I know there are very few in the whole country.
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Posted by bettyg (Member # 6147) on :
keebler,
MEG DID after his initial post earlier today.
thx for helping him all you can and then more!! Posted by Meg (Member # 22) on :
I just wanted to ease everyone's concerns about Dad, he has been sent Pediatric LLMD info....
I'm also urging him to post on the board to receive more input from others here, and to contact a Dr A.S.A.P.
Thanks Betty Posted by Keebler (Member # 12673) on :
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Thanks for your note, Meg.
I was not sure if a Pediatric LLMD was on the list - even if out of state.
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Posted by bettyg (Member # 6147) on :
keebler,
you have a HEART FULL OF GOLD .... HEARTFELT CARING FOR OTHERS going thru this hell and especially CHILDREN getting help ASAP so they do NOT end up like us chronic lyme patients for DECADES!
when your parents created YOU, they broke the mold! heartfelt thanks for all you do DAILY here with info, medical links, etc!
you are another VIP on this board whose goal it is to educate and "steere" them away from infectious drs. to our good LLMDS!
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