I need an LLMD within driving distance of Atlanta.
Can you tell me about your personal experiences with any of them (good, bad, or hopefully great!)
Answers to Betty's 4 questions:
1. I need an LLMD for myself.
2. Symptoms
- Almost constant sinus-type headache, especially in my cheeks and eye sockets
- Crushing fatigue, which when it hits, is usually coupled with a weird taste/feeling in my mouth (almost metallic, but not quite)
- Can't stand up for very long, e.g., sometimes have to sit down halfway through a shower
- Difficulty thinking and articulating when tired (problem-solving especially frustrating)
- Weight on my chest, like I can't get a full "lungfull" of air, which causes me to inhale deeply and sigh a lot
- Joint pain, especially hips and knees, but also ankles, feet, toes, wrists, elbows and fingers (no swelling)
- Muscle pain/bone pain, and aching, as with the flu
- Stiff neck & shoulder
- Low back pain
- Abdominal pain
- Occasional night sweats (limited to neck and shoulder area, oddly enough) and chills
- Sensitivity to sounds -- putting silverware away is the worst!
- Vision disturbances: blurriness that comes and goes, sensitivity to glare, BUT I find I need significantly more indoor lighting to see well (I've always had better than 20/20 vision; never wore glasses)
- Tingling/crawling sensations that go in waves across my body, very similar to when you get goosebumps, but it happens when I'm not cold
- Occasional sharp stabbing pains
3. I never had a bulls-eye rash of any kind, just EXTREME itching (and from a *tiny* deer tick nymph).
The bite site became a slightly raised, reddish, somewhat flat circle about the size of a dime or nickel (also gave off heat). The bite site itched like crazy for almost 6 weeks, when I finally started on some antibiotics.
4. Blood tests were by LabCorp
Sep 2007: Bitten by deer tick nymph
Dec 2007: Lyme IgG/IgM Ab Negative
Jan 2008: Lyme Ab IgG by WB negative (P41 Ab present) Lyme Ab IgM by WB positive (P39 Ab and P23 Ab present)
7 months of doxycycline (400mg/day) helped a lot, but did not cure me. Then I was told my doctor would no longer be seeing lyme patients.
Thanks for names, but especially for your experiences -- while my first LLMD seemed familiar with treating lyme, he also expressed some cynicism toward lyme patients.
[ 15. December 2008, 05:45 PM: Message edited by: desertcanyon ]
Posted by Lymetoo (Member # 743) on :
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