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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Experiences with LLMDs in GA, AL, TN, NC, or SC?

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Author Topic: Experiences with LLMDs in GA, AL, TN, NC, or SC?
desertcanyon
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Member # 17998

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I need an LLMD within driving distance of Atlanta.

Can you tell me about your personal experiences with any of them (good, bad, or hopefully great!)


Answers to Betty's 4 questions:

1. I need an LLMD for myself.


2. Symptoms

- Almost constant sinus-type headache, especially in my cheeks and eye sockets

- Crushing fatigue, which when it hits, is usually coupled with a weird taste/feeling in my mouth (almost metallic, but not quite)

- Can't stand up for very long, e.g., sometimes have to sit down halfway through a shower

- Difficulty thinking and articulating when tired (problem-solving especially frustrating)

- Weight on my chest, like I can't get a full "lungfull" of air, which causes me to inhale deeply and sigh a lot

- Joint pain, especially hips and knees, but also ankles, feet, toes, wrists, elbows and fingers (no swelling)

- Muscle pain/bone pain, and aching, as with the flu

- Stiff neck & shoulder

- Low back pain

- Abdominal pain

- Occasional night sweats (limited to neck and shoulder area, oddly enough) and chills

- Sensitivity to sounds -- putting silverware away is the worst!

- Vision disturbances: blurriness that comes and goes, sensitivity to glare, BUT I find I need significantly more indoor lighting to see well (I've always had better than 20/20 vision; never wore glasses)

- Tingling/crawling sensations that go in waves across my body, very similar to when you get goosebumps, but it happens when I'm not cold

- Occasional sharp stabbing pains


3. I never had a bulls-eye rash of any kind, just EXTREME itching (and from a *tiny* deer tick nymph).

The bite site became a slightly raised, reddish, somewhat flat circle about the size of a dime or nickel (also gave off heat). The bite site itched like crazy for almost 6 weeks, when I finally started on some antibiotics.


4. Blood tests were by LabCorp

Sep 2007: Bitten by deer tick nymph

Dec 2007: Lyme IgG/IgM Ab Negative

Jan 2008:
Lyme Ab IgG by WB negative (P41 Ab present)
Lyme Ab IgM by WB positive (P39 Ab and P23 Ab present)

7 months of doxycycline (400mg/day) helped a lot, but did not cure me. Then I was told my doctor would no longer be seeing lyme patients.

Thanks for names, but especially for your experiences -- while my first LLMD seemed familiar with treating lyme, he also expressed some cynicism toward lyme patients.

[ 15. December 2008, 05:45 PM: Message edited by: desertcanyon ]

--------------------
Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love

Posts: 61 | From Atlanta, GA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Band 39 is LYME FOR SURE!!! I'll send you info.

Print this out and read several times!!

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

Info on the bands is there. Read what it says about band 39.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
desertcanyon
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Thank you, Lymetoo. [Razz]

--------------------
Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love

Posts: 61 | From Atlanta, GA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
bettyg
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check your profile for names! [Smile]
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desertcanyon
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Thank you, Betty! [Razz]

--------------------
Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love

Posts: 61 | From Atlanta, GA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
desertcanyon
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I'm still looking for feedback on LLMDs in the Southeast (from your personal experiences).

Anyone?

--------------------
Grant that I may not so much seek to be consoled as to console; to be understood, as to understand; to be loved, as to love

Posts: 61 | From Atlanta, GA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
   

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