I am looking for a doctor in Maryland who is familiar with Lyme. I like my doctor but would like another opinion. I am not sure if I should go to a specialist or another general physician. Any help would be great.
About me. I was diagnosed with Lyme in Aug. I had migraines, fatigue, numbness in left hand, numbness in tongue, loss of words, vision blurriness and blackouts, confusion, joint pain and a bunch more. I just wasn't normal.
I'm actually not too familiar with what type of Lyme I have. I'm pretty confused when I read other peoples posts and when they get technical. I just feel ignorant on the whole subject.
My doctor has never gone over with me exactly what Lyme I have, just that I have had it a while.
I have spots in my brain and I am suppose to get another MRI in a month or so to make sure new spots are not forming.
I started treatment with 4 weeks of doxycycline. Then 8 weeks of Rocephin. Then 4 weeks of Claforin. Now I'm on Minocycline. He wants me to take this for 4 months. If the Minocycline doesn't work he wants me to go back to Claforin.
I developed gall stones from Rocephin and had gall bladder removed last month.
I have always been healthy and this hit me pretty hard and really fast.
I thought my fatigue and tiredness was from having 2 kids and full time job. Then the other stuff started.
When my symtoms would get better and be almost gone, BC/BS would say that I'm cured and don't need more medicine. I also believed I was cured.
After a few days without medicine my symtoms would come back and the joint pain would be really bad. This has happened 2 times.
I'm just really confused and want to make sure I'm headed in the right direction.
Posted by Lymeindunkirk (Member # 7118) on :
Sending you a PM.
Posted by TF (Member # 14183) on :
I sent you the name of a good Baltimore area lyme doc.
Posted by bettyg (Member # 6147) on :
check your profile for names!
great job of posting and breaking it up! xox
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
DebAZ's 12.08 comparison of 05 to 08 new guidelines:
Differences in newest Guidelines compared to 2005 Guidelines
Page 25 26 and 27 Added section "Sorting out the co infections"
Page 28 New info given to get supplements from additional places
In all areas of Supplements there has been various changes and additions to each description and i advice people to re read the full supplement section as well the following additions to the whole supplement section:
Basic Daily Regimin NT Factor Added
Alternative Treatments CITICHOLINE Added
Immune Support Transfor factor Added
For Fatigue Took out "For Fatiuge" section
Other Optional Vitamin D Added
Page 31 "Lyme Disease Rehabilitaion" is rewitten and added to
He mentions Flexcreme (Flex Cream) by Pharmanex as great for body pain
. suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
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please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
Betty's POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results!
Posted by slganm (Member # 18680) on :
Thank you guys for all of the information!
I have learned a lot reading from the online library.
![[Smile]](smile.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.