LymeNet Flash: Newbie looking for LLMD in Boston

This is topic Newbie looking for LLMD in Boston in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/8653

Posted by Kevin V-910 (Member # 19624) on :

Hello,

I've been having all the Lyme symptoms since January. Back in October i had what appeared to be a bug bite that started out small and turned into a rash on my belt line. I had awful headaches, chills and and incredibly stiff neck. I went to the ER and the doctor diagnosed me with cellulitis? He gave me some antibiotics and i started to feel a little better. January came around and i started feeling awful. Numb, tingling extremeties, bad headaches, extremely heavy head, pains in oints..basically..my nervous system felt completely out of wack. I've been in and out of the doctors for the last 2 months. Finally on friday i asked him to test for Lyme disease. It came back positive yesterday but he said he wants to send it back for another test and told me to call him friday if i havent heard from him. Does it normally take this long? I just want to start treatment I feel awful.

Can anyone PM me LLMD's around the boston area? someone told me TUFTS has one of the best Lyme Disease treatment centers.

thank you

Posted by bettyg (Member # 6147) on :

welcome kevin; check your profile above for mass. llmds [Smile]

Welcome; i'm so glad you found us!! You've come to the right place for education and support!

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/lyme_disease/treatment_guidelines.html

Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf

this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77378

please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!

http://tinyurl.com/Bettyg-NEWBIE-PACKAGE

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please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber
print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.

Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink]

otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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Posted by 22dreams (Member # 17846) on :

Kevin,

Tufts lyme disease CLINIC falls within the Center for Arthritis and Rheumatic Diseases.

So: I'm a bit leery of that.

Has anyone else heard of the doctor there?
Curious to know....

Tufts RA Center's speciality is RA, not lyme. Personally, I would approach with caution.