I've been having all the Lyme symptoms since January. Back in October i had what appeared to be a bug bite that started out small and turned into a rash on my belt line. I had awful headaches, chills and and incredibly stiff neck. I went to the ER and the doctor diagnosed me with cellulitis? He gave me some antibiotics and i started to feel a little better. January came around and i started feeling awful. Numb, tingling extremeties, bad headaches, extremely heavy head, pains in oints..basically..my nervous system felt completely out of wack. I've been in and out of the doctors for the last 2 months. Finally on friday i asked him to test for Lyme disease. It came back positive yesterday but he said he wants to send it back for another test and told me to call him friday if i havent heard from him. Does it normally take this long? I just want to start treatment I feel awful.
Can anyone PM me LLMD's around the boston area? someone told me TUFTS has one of the best Lyme Disease treatment centers.
thank you
Posts: 34 | From Boston, MA | Registered: Mar 2009
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bettyg
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welcome kevin; check your profile above for mass. llmds
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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Tufts lyme disease CLINIC falls within the Center for Arthritis and Rheumatic Diseases.
So: I'm a bit leery of that.
Has anyone else heard of the doctor there? Curious to know....
Tufts RA Center's speciality is RA, not lyme. Personally, I would approach with caution.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. 
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