I was diagnosed with Lyme in 1983--to my knowledge I was the first diagnosed case in VA. I was treated for a year and recovered "completely".
I have had many chronic immune diseases now the past 10 years and am looking at Lyme again. My gen. practitioners, allergists, ENT's, and thyroid dr.s don't know a thing about Lyme. Can someone point me to the BEST Dr. within a 2 hour's drive who can understand I may have been living with Lyme for 25 years and need proper testing and tx?
I live in harrisonburg, VA and could drive as far as N. VA, D.C. Charlottesville, and Baltimore. Thank you, Susan
[ 10-12-2009, 07:59 PM: Message edited by: sbeck ]
Posted by bettyg (Member # 6147) on :
welcome susan
check your profile for virginia llmds
please edit your post by clicking on pencil, 3rd box to right of your name and edit:
subject: VIRGINIA llmd needed
text, please break up the entire thing into SHORTER paragraphs and double space between each one. please use my guidelines below.
did you go to lower left hand corner and mark box to receive all replies? click edit send when done.
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Posted by Abxnomore (Member # 18936) on :
PM sent.
Posted by TF (Member # 14183) on :
I sent you some names and some info.
Posted by bettyg (Member # 6147) on :
susan,
please do NOT ask for anymore and post on OTHER PEOPLE'S posts; we have sent you what we have, and you are quadruplating our efforts.
we are volunteers ok; thanks Posted by sbeck (Member # 20451) on :
thank you all for sending me advice. what a wonderful group of people! Now I have to learn how to add a smiley face Posted by JoesMom (Member # 15699) on :
What about going to Fort Mill SC? Is that too far?
Posted by sbeck (Member # 20451) on :
SC is pretty far. My in-laws live in Raleigh, NC and that's a 5 hour drive from us. Why, is there a good dr. in Fort Mill?
Posted by lou4656 (Member # 10300) on :
sent a private message
Posted by JoesMom (Member # 15699) on :
Well, sbeck he is moving to DC now, so I here. Very unfortunate for the area. Sorry
Posted by five4me (Member # 22843) on :
If you are talking about Dr. J in SC, I just got a letter from his office saying he is moving the practice to DC. I, personally wouldn't recommend him, but it is a DC option now.
![[Smile]](smile.gif)