Hello everyone - I am seeking LLMD's & LLMD cardiologists in the NYC & nearby regions. My current LLMD is far away; Im hoping to see a Dr. closer to home if possible since I so often have to see many doctors due to my Lyme Disease. I have contacted the lyme disease association that is reccommended in these posts, but they only provide 3 trys in a month - and when I try to get more names of Drs a second and third time, they give you the same names so Im "out of turns" for the next month - I can't wait that long. I am lucky enough to be working, but all the appts are cutting into my work time; taking a day off each time I see a doc is starting to cause problems at work-so I'm hoping for a solution. Ive had chronic Lyme for many years, only to be told what we Lymies so often hear - nothing wrong w you, you're depressed, you have to live w it, etc. etc. etc.....we know the drill! My tests all came up positive recently so at least there is some proof for now that I can use as backup...it only took 3 years for my tests to come up positive-they've been negative all these years. I'm being treated currently on 90 days of Doxy and am half way through. Now have heart conditions due to the Lyme and need to see dr.'s more regularly and that hopefully might take my insurance. Any referrals you can provide would be greatly appreciated and thanks so much in advance for everyone's help! These boards are priceless!
Posted by bettyg (Member # 6147) on :
welcome vv
check your profile above for NYC llmds
please break up your entire post into MANY, SHORT paragraphs and double space betweeen each paragraph for severe neuro lyme folks like me/others so we can comprehend and read.
read your title only; and please use my guidelnies below; huge thanks hugs
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Posted by Abxnomore (Member # 18936) on :
![[Smile]](smile.gif)