LymeNet Flash: Seeking Lyme Literate doc or alternative provider in MD

This is topic Seeking Lyme Literate doc or alternative provider in MD in forum Seeking a Doctor at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13723

Posted by liv (Member # 26755) on :

Hi. I was dx'ed with both Lyme's Disease and Epstein-Barr virus concurrently last June ('09).

It hit me hard on a Monday evening with fever and body aches like I'd never experienced; I began vomiting Friday and couldn't stop. The ER doc hooked me up to a morphine drip and gave me a script for 10 days of doxycyline 'just in case'. My GP gave me a 14-day round again in August when a Western Blot result came back positive (after 2 negs).

I've tested negative for rheumotoid arthritis and Lupus, yet still have all the lovely features of this disease which I see you all are also well-acquainted with.

During a 12-minute (and very expensive) consultation, an infectious disease 'specialist' told me he was sure I was over the Lyme's and any symptoms I 'might be' experiencing were most likely due to the Epstein-Barr - referring to blood test results that were 4 and 2 months old. He assured me I would be fine as long as I rested when I could. <bleh> That was last November.

A few months ago a rheumotologist concluded I have fibromyalgia, but I do not embrace that dx.

I've been managing symptoms via less conventional, more traditional options, like: nutritional changes, including cutting out MSG; yoga; and Teasel Root - along with OTC pain medications and Valerian tea for better sleeping.

I would love to talk with a medical professional, preferably in Maryland, who believes in the medical mystery we call Lymes Disease. Until then, I'm glad to have found this place - thank you!

~ liv

Posted by Lymetoo (Member # 743) on :

It's not a mystery... except to stupid Infectious Disease Drs!!!

I'll PM you with some names.

Lyme can be treated... you just need the right doctor.

Posted by Siciliano (Member # 15920) on :

Hi, Liv and Welcome! [hi]

We are happy to have you. I sent you a private message (pm), click on the flashing envelope. [Smile]

Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!

We also have the General Support forum that you should check out too! [Big Grin]

Posted by Keebler (Member # 12673) on :

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In addition to links sent by Sicilano to help you find a LLMD, you may find some links to help your search:
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http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13717

Topic: LL ND

(Includes how to find a LL ND and also articles and books on complementary / integrative methods)
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Posted by liv (Member # 26755) on :

thank you all. <muaah!>

Posted by TF (Member # 14183) on :

Sent you some names and some info.