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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking Lyme Literate doc or alternative provider in MD

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Author Topic: Seeking Lyme Literate doc or alternative provider in MD
liv
Member
Member # 26755

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Hi. I was dx'ed with both Lyme's Disease and Epstein-Barr virus concurrently last June ('09).

It hit me hard on a Monday evening with fever and body aches like I'd never experienced; I began vomiting Friday and couldn't stop. The ER doc hooked me up to a morphine drip and gave me a script for 10 days of doxycyline 'just in case'. My GP gave me a 14-day round again in August when a Western Blot result came back positive (after 2 negs).

I've tested negative for rheumotoid arthritis and Lupus, yet still have all the lovely features of this disease which I see you all are also well-acquainted with.

During a 12-minute (and very expensive) consultation, an infectious disease 'specialist' told me he was sure I was over the Lyme's and any symptoms I 'might be' experiencing were most likely due to the Epstein-Barr - referring to blood test results that were 4 and 2 months old. He assured me I would be fine as long as I rested when I could. <bleh> That was last November.

A few months ago a rheumotologist concluded I have fibromyalgia, but I do not embrace that dx.

I've been managing symptoms via less conventional, more traditional options, like: nutritional changes, including cutting out MSG; yoga; and Teasel Root - along with OTC pain medications and Valerian tea for better sleeping.

I would love to talk with a medical professional, preferably in Maryland, who believes in the medical mystery we call Lymes Disease. Until then, I'm glad to have found this place - thank you!

~ liv

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"Yes, I'll have a Cosmopolitan... but please, hold the Lyme."

Posts: 17 | From Maryland | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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It's not a mystery... except to stupid Infectious Disease Drs!!!

I'll PM you with some names.

Lyme can be treated... you just need the right doctor.
 -

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Siciliano
Frequent Contributor (1K+ posts)
Member # 15920

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Hi, Liv and Welcome! [hi] We are happy to have you. I sent you a private message (pm), click on the flashing envelope. [Smile]

Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!

We also have the General Support forum that you should check out too! [Big Grin]

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I'm sorry but I am no longer accepting any private messages due to my own battle with lyme.

Posts: 3897 | From New Hampshire | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
In addition to links sent by Sicilano to help you find a LLMD, you may find some links to help your search:
------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13717

Topic: LL ND

(Includes how to find a LL ND and also articles and books on complementary / integrative methods)
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
liv
Member
Member # 26755

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thank you all. <muaah!>

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"Yes, I'll have a Cosmopolitan... but please, hold the Lyme."

Posts: 17 | From Maryland | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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Sent you some names and some info.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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