This is topic LLMD in IL in forum Seeking a Doctor at LymeNet Flash.


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Posted by Needing Hope (Member # 28067) on :
 
Like many, it has taken too many years to find out why I am so tired and my body has gone berserk. I am an adult who finally found a LLMD who said, "Yes, you have Lyme", however, I am not sure I am getting the best care.

I am extremely tired, can only work a few hours a week, let alone manage living. I have done about a month and a half of antibiotics, but had trouble, so the Dr. had me stop the meds completely. Not only that, but some things have come up with this Dr. that concern me.

I have been off antibiotics all together for over a month, and the brain fog is getting really bad. [loco] The other symptoms - feeling like I'm being attacked by mosquitoes, eyelid twitching, eye hurting, strange rashes, aches & pains, etc. are mild. My biggest trouble is the fatigue and fog.

So I am looking for a second opinion for treatment as well any advice how to survive this. I can't think. I keep forgetting to take my supplements, my house is disorganized b/c my brain is disorganized and I'm so darned tired. An hour or two of activity, and I'm wiped out. [confused]

Thanks for taking the time to read. Thanks also to those of you who created this forum. My marriage fell apart a couple of years ago, and the ministry that saved us had a forum that saved my life. You are appreciated!

[ 09-10-2010, 07:49 PM: Message edited by: Needing Hope ]
 
Posted by janet thomas (Member # 7122) on :
 
to find a local support group click on the link below then select a state

http://www.lymenet.org/SupportGroups/UnitedStates/
 
Posted by Lymetoo (Member # 743) on :
 
PM sent

Be sure to post in Medical Questions with your story.. you will receive help there.

I will send you some info on drs.

 -
 
Posted by pj1954 (Member # 11722) on :
 
pm sent
 
Posted by Needing Hope (Member # 28067) on :
 
Thank you. Heading over to Medical Questions now. [Smile]
 
Posted by Siciliano (Member # 15920) on :
 
Welcome to Lymenet! [hi] We are happy to have you. I sent you a private message (pm), click on the flashing envelope. [Smile]

Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!

We also have the General Support forum that you should check out too! [Big Grin]
 
Posted by Needing Hope (Member # 28067) on :
 
How do I go about getting feedback about a Dr.?
 
Posted by littlebit27 (Member # 24477) on :
 
Getting Feedback or giving feedback? Send me a PM and I'll try to help you.
 
Posted by Needing Hope (Member # 28067) on :
 
I'm trying to find out if anyone has had any experiences with the Dr. I've been seeing. I've been to three different Dr.s, all professing to by Lyme Literate, but I'm not sure who to trust. I have concerns and doubts, and don't know how to decide which way to go.

Thanks.
 
Posted by Lymetoo (Member # 743) on :
 
You can PM their names to me. There's only one in IL I would trust.
 


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