LymeNet Flash: LLMD in Buffalo, Western NY

This is topic LLMD in Buffalo, Western NY - Support Groups In WNY in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/16395

Posted by McStorch (Member # 20987) on :

Hi! I am really new to this. Diagnosed and treated (not very well) in July 2009 and I am very sure, based on western blot and symptoms that it is back. MD says not enough criteria met to warrant treatment. Nice.

I have an appointment with Dr. P who is on the LLMD list for NY. In Buffalo, NY. Wondering if anyone has any experience with this DR. Charges $280 for initial consult and will not accept insurance. Is this the norm?

Also, does anyone know of a support group in WNY? I am trying to sponge up as much info on LD as I can before I start this journey.

Thanks All!!

Posted by Lymetoo (Member # 743) on :

Very much the norm... back in a minute...

Read this:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13239

scroll all the way down to info on insurance

Posted by TS96 (Member # 14048) on :

There are support groups, one in the Syracuse area and one in Farmington, NY, near Rochester.
PM me for more info on the Rochester one if you need it.

Anyone, please chime in if you know of one in the Buffalo area.