posted
Hi! I am really new to this. Diagnosed and treated (not very well) in July 2009 and I am very sure, based on western blot and symptoms that it is back. MD says not enough criteria met to warrant treatment. Nice.
I have an appointment with Dr. P who is on the LLMD list for NY. In Buffalo, NY. Wondering if anyone has any experience with this DR. Charges $280 for initial consult and will not accept insurance. Is this the norm?
Also, does anyone know of a support group in WNY? I am trying to sponge up as much info on LD as I can before I start this journey.
Thanks All!!
Posts: 6 | From PA | Registered: Jun 2009
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posted
There are support groups, one in the Syracuse area and one in Farmington, NY, near Rochester. PM me for more info on the Rochester one if you need it.
Anyone, please chime in if you know of one in the Buffalo area.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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