This is topic Looking for LLMD near Quakertown, PA or surrounding areas in forum Seeking a Doctor at LymeNet Flash.


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Posted by Rfernan (Member # 48166) on :
 
Hi everyone,

For over a year now, I have been experiencing strange symptoms. Ive seen many different doctors, but none of them have been able to diagnose my problems. Recently, I started having issues with my right knee. It swelled up so much that I couldnt walk or even bend it. I didnt do anything specific to it, but I thought it was due to some recent workouts that I have been doing. I ended up going to the Sports Medicine doctor. I had an XRay and MRI. They couldnt find anything obvious. I had the knee drained twice. On the second time, the doctor decided to run some tests on the liquid that was drained. Needless to say, it came up positive for Lyme Disease.

He recommended that I take doxycycline once a day for 21 days. But I would like to discuss my options with a doctor who specializes in Lyme Disease. This is why I am looking for a LLMD in Quakertown, PA, or the surrounding areas in PA or NJ.

I really appreciate your help!! Thanks in advance.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for PA & MD.

One dose of Doxy is nowhere nearly enough to treat Lyme Disease. You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lymepa.org

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

[ 07-25-2016, 05:42 PM: Message edited by: hopingandpraying ]
 
Posted by desertwind (Member # 25256) on :
 
I grew up in Quakertown and now live in NJ. Over the past 12 years I have seen just about every LLMD in NJ. I will pm you with names and experiences. DW
 


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