This is topic In need of Texas LLMD!! in forum Seeking a Doctor at LymeNet Flash.


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Posted by DASmith (Member # 48695) on :
 
Hi im in early stage 2 of Lyme. Hasn't been 2 months yet but I can count the symptoms and know I'm in stage 2. Please help! I'll go anywhere in Texas! If I have to fly out of state I'll travel! Please help with one in Texas if possible if not then outside the state recommendations!
 
Posted by TF (Member # 14183) on :
 
Hi, and welcome to LymeNet.

Please read these old threads to find out about the lyme doctor situation in Texas:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/27087?#000001

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=027006;p=0#000002

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=132642;p=0#000018

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/26250?#000004

So, if you want the name of the doc near the D.C. area who is treating a number of lyme patients from Texas, let me know. He generally can give you an appointment within a few days.

You can do telephone appointments after that so that you only have to fly to D.C. once every 3 months.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for TX & MD.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Please read the following about LLMDs and Texas which was recently posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.

Because of the sorry state of affairs in Texas, many folks from Texas are coming to the East Coast for testing and treatment for Lyme disease and it's co-infections."

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Btw - I know you are new to Lyme, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

[ 09-13-2016, 01:17 PM: Message edited by: hopingandpraying ]
 
Posted by Lymetoo (Member # 743) on :
 
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