This is topic Seeking LLMD in Massachusetts in forum Seeking a Doctor at LymeNet Flash.


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Posted by kikidee (Member # 49090) on :
 
Hello and thank you in advance for your help.
I am searching on behalf of my husband. We are getting nowhere with our PCP and need to take the next step.

My husband is 56. We live in the Boston area.

Thank you again!!
 
Posted by Nancy2 (Member # 95) on :
 
PM Sent!
 
Posted by kikidee (Member # 49090) on :
 
Hi nancy and thank you for your response.
We will check it out!
 
Posted by Driven350 (Member # 49117) on :
 
I am also looking in Boston Area for husband....and info you have about good choice please share
 
Posted by hopingandpraying (Member # 9256) on :
 
Driven350 - Welcome to Lymenet!

I was going to recommend you write a new post instead of adding on to an existing one because most people don't re-read old posts, but I see you have written one.

PM sent for MA & NH.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MA & NH.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Read the book written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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