LymeNet Flash: Seeking LLMD in Massachusetts

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in Massachusetts

UBBFriend: Email this page to someone!

Author

Topic: Seeking LLMD in Massachusetts

kikidee
Junior Member
Member # 49090

posted

Hello and thank you in advance for your help.
I am searching on behalf of my husband. We are getting nowhere with our PCP and need to take the next step.

My husband is 56. We live in the Boston area.

Thank you again!!

Posts: 2 | From Boston, MA | Registered: Oct 2016 | IP: Logged |

Nancy2
Frequent Contributor (1K+ posts)
Member # 95

posted

PM Sent!

Posts: 1487 | From New England | Registered: Oct 2000 | IP: Logged |

kikidee
Junior Member
Member # 49090

posted

Hi nancy and thank you for your response.
We will check it out!

Posts: 2 | From Boston, MA | Registered: Oct 2016 | IP: Logged |

Driven350
Junior Member
Member # 49117

posted

I am also looking in Boston Area for husband....and info you have about good choice please share

Posts: 9 | From Massachusetts | Registered: Nov 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Driven350 - Welcome to Lymenet!

I was going to recommend you write a new post instead of adding on to an existing one because most people don't re-read old posts, but I see you have written one.

PM sent for MA & NH.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for MA & NH.

Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Read the book written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/