LymeNet Flash: Need help locating LLMD in Massachusetts Boston area

This is topic Need help locating LLMD in Massachusetts Boston area in forum Seeking a Doctor at LymeNet Flash.

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Posted by Driven350 (Member # 49117) on :

Some who specializes in Lyme with neuro symptoms also a Lyme Neurologist also would help

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for MA & NH; also CT (LL Neurologist) .

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

I don't know of any LL Neurologists in MA.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Read the book written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8

Posted by Driven350 (Member # 49117) on :

Thank you, do you if DR H in Mass is considered a LLMD?
Also any dr in southeastern MA/RI as we are south of Boston so NH don't work for us

[ 11-01-2016, 01:15 PM: Message edited by: faithful777 ]

Posted by hopingandpraying (Member # 9256) on :

Yes, that doctor is.

Don't know of any in areas you are asking about.

Posted by Lymetoo (Member # 743) on :

There is a nurse practitioner in RI, if I'm not mistaken. Hopefully, someone has the info.

Posted by Nancy2 (Member # 95) on :

PM Sent with Rhode Island info!

Posted by Driven350 (Member # 49117) on :

Thank you for the info! I just spoke to her office yesterday and was able to get an appt in March, but I am on the cancellation list. Thanks for all your help!

Posted by Nancy2 (Member # 95) on :

Glad to help!