posted
Is this a symptom of Lyme? I am the clumsiest person I know. I seem to constantly hurt myself in someway; yesterday I literally "fell" out of bed when I got up, and banged myself up real bad. I can't seem to get through life for more than a day or two without some kind of injury!
Posts: 123 | From Pawleys Island SC | Registered: Mar 2013
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
no i think i am....
i got up from the sofa last night and tripped over my feet and almost fell headlong into the tv....
i trip, fall, bang myself up all the time.
i get down in the kitchen floor to get into cabinets and can't get up.
i've fallen so much i should wear a padded suit.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
YES! I would say so. I used to run into walls all the time! It's better now, but now I'm into dropping things. I'm really GOOD at it!!
Hope you're OK!
PS.. I can relate to falling out of bed when getting up. I've almost done that a few times. Scary stuff!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Crawgirl,
Do the door jams seem to move as you walk through a door way, with one shoulder being left behind with a painful thump that is the first thing to alert you that your body was not clearing it?
If so, that's pretty common for those with lyme who also have inner ear interference.
I've also fallen not just getting up out of bed but, actually, out of bed when I tried to turn over.
I've also seeming been "shot out like a cannon" at times or "shot off of a chair" - all from inner ear trying to "right" my body with how it thought I should be in space.
Actually, this can be rather common for those with lyme for a variety of reasons. Just one category that seems most likely: VESTIBULAR involvement (inner/middle ear/balance).
Proprioceptive "awareness" goes along with that. That's our ability to adequately judge our bodies relative to space.
When you find and see your LLMD, be sure to let them know of this. Ask if he or she thinks you might need some specific testing (probably not until you are well into treatment and symptoms can get sorted out) but, even if no balance testing,
ask if the LLMD knows of a VESTIBULAR THERAPIST - but ONLY - ONLY - if also lyme literate. You can learn SAFETY techniques.
Starting with: never start walking immediately after rising. Always give your feet a little time to get to know the floor and your brain a little time to get used to the "atmosphere" after a change in position.
In the meantime while you wait for a doctor:
GINGER CAPSULES may help with the inner ear. If the problem is related to circulation, ginger cvan also be of help.
MAGNESIUM, too.
LIVER SUPPORT is also key as, if the inner ear is kaput, that can be due to the toxin level in the body. Liver support must be employed to help decrease that.
The inner ear is the body's first early warning system regarding toxicity in the body. Lyme is very toxic. -
[ 03-31-2013, 06:37 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
well my ears ring all the time.
worse at night. drives me nuts. certain meds also cause it to increase dramatically.
the ear thing is the pits
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
Keebler: thanks for the help with the Stonebreaker (it worked like magic!) and magnesium (I feel better-at least did until I fell out of bed). After falling out of bed, I now feel like I've been hit by a bus; my knees are killing me, and I feel fluish. Could this fall have started a Lyme cascade of some kind? I hope to get to the LLMD in a few weeks; I'm a CPA, and have to survive tax season first. The LLMD suggested to me is an overnight trip, and I'll have to be free to travel.
Posts: 123 | From Pawleys Island SC | Registered: Mar 2013
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As for the fall - I would not call it a lyme cascade, exactly, but when all a body's systems & organs are affected, any such jolt can have a harsh after-effect.
A fall could trigger a cytokine storm, though (in someone with lyme). And a fever could come from that. STINGING NETTLE can help with that.
I don't fall so much anymore but it could take anywhere from 2 day to 2 weeks to recover from a "simple" fall. Longer when certain body parts are hit -- or if the "shock" was just too great, the adrenals actually seemed to go into shock, I thought.
If the inner ear is affected, it's likely going to be much harder to concentrate. If so, avoid fluorescent lights - and all of the new "energy-saving" bulbs in all lamps, etc.
Stick with just the regular kind of incandescent bulbs, though they can be hard to find in stores now.
Even in your kitchen or if you have job location. For your work space, get a regular table or desk lamp and turn out overhead lights if at all possible. If not, at least try to balance with a lamp at your desk.
MAGNESIUM very important (a good quality such as mag. glycinate or citrate). NATURAL CALM, by Peter Gilham is a good one.
The herb, STINGING NETTLE may be of help in many ways to help circulation and healing of any jolts.
For the internal shock, an adrenal formula with ASHWAGHANDA or CORDYCEPS should help.
GINGER CAPSULES for the inner ear.
Hope you feel better soon.
I'm not any kind of medical professional and this should not be considered medical advice, just things to explore, what has helped me through the years.
If you have a LL ND (naturopathic doctor) nearer to you, you might seek their advice while you wait to see your LLMD. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Topic: NATURAL SLEEP & ADRENAL SUPPORT -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you say the LLMD is too far to travel right now - but you do have a new appointment set later on. In the meantime, ?
When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If the cluminess ever comes on suddenly, if you have trouble moving any limb or any part of your face or neck seem frozen in space, trouble speaking . . . call 911.
As explained, the clumsiness you describe sounds like the kind I've experienced and the kind that goes often with lyme & co. And also the kind that comes with inner ear issues. Being "frozen in space" can also be due to the inner ear.
But, even in someone who deals with lyme, there can be other things, of course. In case of a stroke, there is a very sort window of time in which to get a very particular medicine.
We should all know the
SIGNS OF STROKE - Do Google for the authorized organizations' public awareness detail
(but I have to leave it at that now). -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
The first time I had facial paralysis, I was afraid I'd had a stroke. Scary stuff. I was doing math in my head and tongue twisters to test myself when I discovered that my face was frozen on the left side.
I'm kind of p o'd at the stupid doctor I went to then and later too, when the right side paralyzed. A bullseye rash the night before my first facial paralysis says Lyme all over it, doesn't it?
My knees have been killing me since I fell, and my elbows and hip took the fall. It's like all the muscles around the knees are throbbing and aching continually.
Last night I felt like my muscles in my arms and legs were crawling too, and had a hard time going to sleep. Is this a symptom of Lyme & Co? Will the Stinging Nettle help?
I'll call the LLMD and get an appointment right away, it'll involve a hotel for a night etc., but I can get there by mid-month I hope.
I really appreciate all your help and caring!
Posts: 123 | From Pawleys Island SC | Registered: Mar 2013
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Correct, your symptoms are classic for lyme. So sorry.
Stinging Nettle (which I suggested earlier) will help with symptom relief but not at all to actually address infection, just to be clear.
It likely will not help sleep, other than to help relieve some inflammation (that can cause pain). You need much more direct & acute care and I'm sorry that is not currently available for you.
Some things that may help be more direct can be found in the ND articles and books and if you could find a LL ND until you can get in to see the LLMD.
Best of luck to you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hate to say this but, as you are a CPA doing taxes and this next 2 weeks are the crunch time (and even beyond that for late filers), you need to consider your license. If you are not up to the task, it would be better now to call in a substitute for you than to risk mistakes.
By the sounds of it (judging from my past, not even able to read students' final term papers so just giving them each an "A" and nearly loosing my job over it, before my health forced me to resign) - I suggest serious consideration at taking some sick time.
I know that may not be possible - but the kind of mistakes that can occur from lyme as you describe it at this time can cost your career in the field you are in.
Taking some "health days" to recover from your fall may seem impossible but - if your brain is not in tip-top shape - it could save your job in the long run.
Falls can also "jiggle" a brain. Even a bump on the head with a soccer ball can be reason for concern with teens (partly as their brains are still growing but, still . . . ).
With acute, untreated lyme [which is in no doubt with the classic bulls eye rash at the same time as Bell's Palsy (facial paralysis) & multiple classic symtpoms, ongoing] your brain is likely inflammed.
ny fall would be tougher than on someone who did not have that going on - even though you did not report a hit to the head, the jostling can be very serious. Such "events" have been for me. It really can take some time to get back to one's "normal" after a jolt.
Normally, I would suggest seeing a doctor for such a fall - just for the brain - but most doctors don't know much about this kind of injury, let alone with lyme as a complicating factor. The dismissal even with Bell's Palsy would not encourage me to see medical care, I know.
I know this is all very rough. I recall those days, too. So, take one day at a time. Even the Secretary of State had to take some time off after a fall. You at least have the "fall" to explain to coworkers or your boss. You may not even have to go any futher (best to not tell them about lyme).
How you can take care of your brain & body after this fall is really important. Accountants are human, too. And there may be a perfect substitute - or assistant who can help you, or help you to make some accommodations.
Actually, I advise taking "health" time and getting into a LLMD ASAP, even one who may be just lyme "friendly" ASAP as I think you need immediate treatment for lyme, assessment for any brain inflammation and evaluation of other possible tick-borne infections.
Hugs to you. -
[ 04-02-2013, 05:25 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Thanks, Keebler. Actually my tax season isn't too overwhelming; I started my own practice just recently, and have been going slow at it.
Even though I feel that my thinking isn't like it used to be, it's a lot better than it was in recent years. I just tire out easily these days, and 5 hours 4 days a week is about my max.
I've got a line on a "lyme friendly" doctor, he/she is an infectious disease specialist-but I thought I saw somewhere on lymenet that they may not be good choices. I thought I'd just go after April 15 up to Chapel Hill, NC and see the LLMD.
It's been since 2001 when I first got my bullseye, afterall, and started my decade plus of medical neglect. A few days longer hopefully won't make a huge difference.
Hugs back!
Posts: 123 | From Pawleys Island SC | Registered: Mar 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic