How has anyone dealt with these symptoms?
I have severe feet pain; xrays showed "spurs" in each foot; right is worse!
Have knee pain from my previous sports injuries over 35 yrs. ago .. they tell me what the weather is going to be too.
Before my 7-12-04 late stage lyme dx, I was on OTC glucosamine, chontroitin/MSM...that really helped me w/my total body joint pain.
I have fibromyalgia in all 18 of 18 tender, pressure points. Best wishes to you.
Also, if you have a spa w/jets...direct them to your troubled areas! Betty G., Iowa
Now I have had joint pain in every joint in my body so severe that it has disabled me for the past four years pain is constant.
Im in pain management (which means i take prescription pain meds) now to make joint and other pain bearable... I still can t work or clean or do much of anything BUT... without the pain med i wouldnt be able to get off the couch.
When the pain was less severe moist heat helped (it had to be moist heat though).... either a hot bath or the type of heating pad u put in the microwave but not the kind with the rice or whatever in it.
also keeping warm with soft blankets.... down is great ... dont ask me y this helped but down blanket versus one that kept me just as warm the down helped the pain a little
actually i do have down slippers .... they are the easiest thing to walk in but they do make my feet feel a little better even now.
also i would wrap my ankles/ knees if I had to go somewhere and I would get more use out of them before the pain made me sit down.
i'm not sure how severe you pain is but....
with me if i sit with my legs bent (like amy legs make a 90 degree angle )for more than an hour ...im dying... even if i extend them i still get only two hours...
the best is to sit on the couch with my feet extended in front of me on the couch.... i put apillow behind me so my back has more of a support.
back when it was mild i took ultracet... which is a prescription but NOT a narcotic and they claim it is rarely addictive ... I took it 2 years and did not get addicted.
ultram is simular but ultracet worked better for me back then.
I probaly should add my pain is all from lyme i have no "injury" or other visible damage.
best wishes
Has anyone out there found a pain medication that really works with severe pain?
I am now on Mepron and Z-max to target the Babs. I finally am starting to believe I might actually live thru all this.
I know Lyme has become my teacher. I must want to learn a lot about patience. The long list of symptoms that come in any given day are life altering.
The chronic fatigue and pain levels can actually wreck an otherwise good day!
Blessings to you all,
Corestar
For severe pain u need a script.... the only med I know that is not a narcotic is fentynol (sp?) patch
(and it probaly wont be prescribed to you unless it is really sever meaning the pain prevents you from functioning (disabling pain)
the same will probaly be true of the narcotics
some people have good luck with lortab or vicodin ... I didn't
my advice is try to find a pain dr. who is willing to treat you and accepts the fact you have lyme.... this is not an easy task.
Ur llmd might be able to refer you to a pain dr. that will not try to rediagnose you and will actually try to lower ur pain level to make yo more functional.
Best wishes
[This message has been edited by AZURE WISH (edited 24 October 2004).]
Thanks for your responce to my post. I was speaking with an extended family member who had Lyme and he told me that his Lyme pain was not touched by anything!
This was a few months ago and it has taken me a while to really experience what he meant.
Today I'm herxing from the Mepron and Z-max...There's a children's book called Alexander, and the Horrible, No Good, Very Bad Day! I'm having one of those.
My LLMD had given me Ultracet but it's only minimal help! I'm thankful for that!
Thanks for listening. I hope you are feeling better!
Love,
Corestar
Thank you all for such great ideas!
I have a hot tub and tried that last night (felt god today).
Great advice!