This is topic Is a relapse possible? in forum General Support at LymeNet Flash.


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Posted by dornauer (Member # 6439) on :
 
I am a new meber here. I was diagnosed and treated for lyme about 16 years ago. I lived on the east end of Long Island and knew a lot of people with it. I went for almost two years before the docs could fiqure out what it was. I went thru a lot of different treatments.
Latley I feal like it is starting all over again. All the aches and pains are back. Is it possable after all this time to have a relapse? Has anyone had this happen? will a blood test for lyme always show posative once you have/had it? Should I go to the doctor and get a blood test? Not really sure what to do. The way I have been fealing for the last few weeks feels like it did years ago. Any help or suggestions would be appreciated. Thanks
 
Posted by TheCrimeOfLyme (Member # 4019) on :
 
quote:
Is it possable after all this time to have a relapse?

Yes, or a reinfection. Or both.

Has anyone had this happen?
There have been plenty with this happen. Its the first time around for me.


will a blood test for lyme always show posative once you have/had it?
Not necessarily

Should I go to the doctor and get a blood test?
Depends. What kind of doctor? Where you treated by a lyme doctor sixteen years ago? I tend to think maybe you werent? Theres a seeking a doctor forum if you want to post over there to get a doctor.

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Posted by minoucat (Member # 5175) on :
 
ditto what COL said. It's critical that you see a lyme-literate doctor, if only to rule out LD and treat for whatever ails you.

Very few labs do reliable blood tests. Igenex, Bowen, and MDL are the reliable only ones I know of. There are lots of missed dx of LD because doctors in general are not Lyme literate, and because they use inappropriate diagnostic techniques (many lymies don't test positive on bloodwork), or do the wrong tests or wrong laboratories.

Really, don't mess around with this. If it is a relapse/reinfection and you catch it early, you'll save yourself serious heartache and mounds of money.

At the bottom of the page is the "Hop to" window. That will take you to Seeking a Doctor, where you can also maybe find a support group, and to Medical, where you can do some more research and get more info.

Check out the new members links
 


Posted by dornauer (Member # 6439) on :
 
Where you treated by a lyme doctor sixteen years ago? I tend to think maybe you werent?

I am sure you are right. There were so few doctors that knew anything about it. Most just told me I was crazy. Not even sure how many blood test I had, spinal tap. They tried all sorts of oral meds and then a three or four week course of IV. I got so tired of going to doctors that I finally gave up on them. I know over the years I have had other times of symptom return but not like this. Thanks
 


Posted by gonecrazy81 (Member # 6421) on :
 
I have had this disease for 18 years, so I know if can pop up whenver it feels like it. I was not diagnosed until after 16 years, but the lyme always came in cycles either way. I went through a stressful situation in 2002, which brought the lyme out full force affecting my eyesight. That is how I found a lyme doctor. It is best to go to a LLMD now while you suspect lyme. At least an LLMD will know what to do if you have it or will be able to honestly tell you not to worry about lyme. I wish you well in your search! Take care!
Lisa
 
Posted by Melanie Reber (Member # 3707) on :
 
Good evening dornaur,

Welcome to LymeNet, and also to The Colorado Support System!

I'm going to have to make this brief, because my lights are flickering off and on from the sudden snow...

but, I wanted to share with you the new member links, to get you started with information.

Because you have dealt with this disease before, some of this may not be new to you...but, I do hope that you will try to plow through it in order to become your own best advocate!

Would also love to write more to you via email, so please just drop a line if there is anything that we can do to assist you, OK?

My very best,
Melanie

LymeNet Links for new members: http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. Joseph J. Burrascano's Guidelines: http://www.ilads.org/burrascano_1102.html

Rose's 15 Facts for Newcomers: http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Symptom Check List: http://flash.lymenet.org/ubb/Forum1/HTML/021063.html

Abbreviations for Lyme-speak: http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit: http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Camp A and Camp B: http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Something to share with friends and family members: http://flash.lymenet.org/ubb/Forum3/HTML/008886.html

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]
 


Posted by lla2 (Member # 2364) on :
 
is there a chance you were bit again also?

lisa
 


Posted by TheCrimeOfLyme (Member # 4019) on :
 
I havent seen you over in seeking a doctor. I will email you some doctors names.


 


Posted by treepatrol (Member # 4117) on :
 
Yes you can relaps .

WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

How to Search Courtesy of Danq
LymeNet Links for New Members
Newbie's Lingo

Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs

Western Blot Info
FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)

Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help

GreatSite
MedicalDictionary

USA Support

SupportGroups Canada

SupportGroups Australia


( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Canlyme MAG


Help with Meds


Vitamins you should Know

Tests Synonyms Guide

Lab Tests Looky


How to apply Permethrin

 


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