quote:Hi Iam not from your state but Hello anyway
Originally posted by shellbabe:
Hello everyone!
Im new to the group and wanted to say hello.My name is Shelly and I was diagnosed with Lyme a year ago.I'm from Springfield,Mo and am wondering if there is anyone else here from my state? I'd like to learn how to raise awareness in my area and educate.This is a fantastic site!
Write a letter about your experience with lyme and send it to your local newspapers...
When I first did this I got many calls from others with lyme. The letters editor called me to ask if he could give my number out.
If you find others you could get a support group together and brainstorm ways to get the word out about lyme.
Check out the existing Support Groups in your state. There are three listed here.
Missouri:
~Green Hills LDSG
~Lyme Association of Greater Kansas City, Inc
~Resources Only
~Southwest Missouri Lyme Disease Support Group
Click on Support Groups on the left...then you can click on these and find contact person!
Keep us posted! nan
[This message has been edited by nan (edited 01 March 2005).]
When my daughter was infected I decided to do what I could to get the word out in our town. My main focus was on children, however now that I've tested positive, my approach may change a bit.
I met with the Board of Health (before I tested positive) and shared my story and told them I want to get some of the things I've learned out to the community.
The BOH was very supportive (although others did not get the same response from their local BOH) and here are some of the things I'm planning to do:
Write a letter to the local newspaper
Send pamplets home with the weekly parent information at the school.
These are the pamplets and can be found at http://www.lymediseaseassociation.org/
LymeR Primer
ABCs of Lyme Disease
Tickmarks
Have a booth at the health fair in town
Put info on the local cable station
Leave pamplets at the library, town offices, vets offices....
I also bring information to the doctors office when I go.
Every now and then people here will ask for help (for example see Tincup's post http://flash.lymenet.org/ubb/Forum1/HTML/032029.html) and I always try to do what they ask.
I tell everyone I know about Lyme!!
Let us know what you decide as the more ways to get the word out, the better.
I live in Branson! Do you see Dr C?? [rhymes, huh?] They have a support group in Spf ... DR C's office has the info. I've never been to the meetings.
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oops!
Lymetutu
We've written to Oprah a million times, but maybe one million and one will do the trick!
Pfizer also has free pamphlets. I no longer have that link, but you could probably type in Pfizer/Lyme into a search engine and come up with the info.
Their pamphlets are only $.04 each. They are not as comprehensive as the ones from the LDA.
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oops!
Lymetutu
Many folks from Missouri on here like our favorite "tuto".
Betty G., Iowa
PS - I had our local newspaper come and interview me since they refused to print my letter to the editor about my lyme/FMS/CFS article I wrote and stating what the symptoms were.
When they do that, they normally have a FEEDBACK area, and that's where the lymies join forces, and give them our feedback! Best wishes.
[This message has been edited by shellbabe (edited 03 March 2005).]
It's for their protection, and the Lord knows they all need that!
You can edit this OUT by clicking on the "pencil and paper" icon next to the date....which is next to your name.
Thanks!
PS>.....Thanks for the compliment, Betty! You're sweet!
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oops!
Lymetutu
[This message has been edited by Lymetoo (edited 02 March 2005).]