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Hello everyone! Im new to the group and wanted to say hello.My name is Shelly and I was diagnosed with Lyme a year ago.I'm from Springfield,Mo and am wondering if there is anyone else here from my state? I'd like to learn how to raise awareness in my area and educate.This is a fantastic site!
Posts: 35 | From Springfield, Mo. | Registered: Feb 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by shellbabe: Hello everyone! Im new to the group and wanted to say hello.My name is Shelly and I was diagnosed with Lyme a year ago.I'm from Springfield,Mo and am wondering if there is anyone else here from my state? I'd like to learn how to raise awareness in my area and educate.This is a fantastic site!
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Hello, Shellbabe! Welcome to lymenet! What took you so long to find us?
Write a letter about your experience with lyme and send it to your local newspapers... When I first did this I got many calls from others with lyme. The letters editor called me to ask if he could give my number out.
If you find others you could get a support group together and brainstorm ways to get the word out about lyme.
Check out the existing Support Groups in your state. There are three listed here. Missouri:
~Green Hills LDSG ~Lyme Association of Greater Kansas City, Inc ~Resources Only ~Southwest Missouri Lyme Disease Support Group
Click on Support Groups on the left...then you can click on these and find contact person!
Keep us posted! nan
[This message has been edited by nan (edited 01 March 2005).]
Posts: 2135 | From Tick Country | Registered: Oct 2000
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When my daughter was infected I decided to do what I could to get the word out in our town. My main focus was on children, however now that I've tested positive, my approach may change a bit.
I met with the Board of Health (before I tested positive) and shared my story and told them I want to get some of the things I've learned out to the community.
The BOH was very supportive (although others did not get the same response from their local BOH) and here are some of the things I'm planning to do:
Write a letter to the local newspaper Send pamplets home with the weekly parent information at the school.
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thank you all for your info and support.I am going to look into the groups and I realize how ignorant the medical community is about this disease as is our communites in general,It just simply isnt talked about.I read in one of the other groups that they felt it was going to take a very important, powerful, and recognized person to raise the amount of support and awareness it's going to take.It may have been silly or fall on deaf ears but i wrote a letter to Oprah and challenged here to have this as a topic on her show.I mean who better than her right? Does anyone know where i can get pamphlets of info sent to me and what the cost involved is? Thanx again. Shelly
Posts: 35 | From Springfield, Mo. | Registered: Feb 2005
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forgive my stupidity about the brochures....i see the link now....my brain just doesnt function right sometimes.lol
Posts: 35 | From Springfield, Mo. | Registered: Feb 2005
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posted
Welcome Shelly and print and check off Treepatrol's newbie links; many months of reading there.
Many folks from Missouri on here like our favorite "tuto".
Betty G., Iowa
PS - I had our local newspaper come and interview me since they refused to print my letter to the editor about my lyme/FMS/CFS article I wrote and stating what the symptoms were.
When they do that, they normally have a FEEDBACK area, and that's where the lymies join forces, and give them our feedback! Best wishes.
Posts: 1 | From US | Registered: Aug 2015
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OOPS! Shelly....even tho dr C has his website available...We still don't post his name. Otherwise, others will think it's OK to post every dr's name.
It's for their protection, and the Lord knows they all need that!
You can edit this OUT by clicking on the "pencil and paper" icon next to the date....which is next to your name.
Thanks!
PS>.....Thanks for the compliment, Betty! You're sweet!
------------------ oops! Lymetutu
[This message has been edited by Lymetoo (edited 02 March 2005).]
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