Hello. My Dad has been on on IV Rocephin for almost 3 months. The tingles, numbness, stabbing rib pain has stopped and some of his earring has come back in his left ear. His fatigue and muscle loss (weakness) is still with him and that is what he would like the most to change. His LLMD mentioned for him to go to a wellness center in Havertown, PA. I was wondering if anyone has tried out these wellness centers that do IV lipid treatments? Is this just a way to get money from the ill or is this really a good thing? Also, has anyone had muscle loss (not just tone, I mean he is really lost most of his shoulder girdle muscles and twitches were quite a bit and now have died down a little)? If so, did that strength come back? He did have some abnormal EMGs, so there was some nerve damage. And they said if it was not ALS that the nerves that are sparking (twitches) would come back. Anyone experience this? Any info would be appreciated! We are willing to take the good with the bad! Thank you!
Posted by Jamierogers1976 (Member # 6319) on :
bump
Posted by NP40 (Member # 6711) on :
Hi Jamie, your Dad has all the normal symptoms of lyme.
A suggestion though, you may want to post this in "Medical Questions", you'll get a lot more response.
He's making progress so it's imperative that he keeps the abx treatment going otherwise he'll relapse. You treat until symptoms go away, then you treat for another month or two for good measure.
As far as the wellness center ? I'm not sure, others could answer that better than I. Many here seek alternative treatments and therapy for pain, muscle weakness etc..
Just don't let it interfere with the abx treatment, as all of his symptoms may disappear, once they get rid of the bacteria.
Posted by mlkeen (Member # 1260) on :
Anyone from SE PA hear of this place? I'm not that close so my never hearing about it doesn't mean much.
Mel
Posted by Jamierogers1976 (Member # 6319) on :
Thank you for response. I will post it over in the medical board. Lyme is a difficult and stubborn disease and I really hope we are just dealing with that and not ALS. He had been dx before with that disease. I will take the one with the cure! Thanks again!