posted
Hello. My Dad has been on on IV Rocephin for almost 3 months. The tingles, numbness, stabbing rib pain has stopped and some of his earring has come back in his left ear. His fatigue and muscle loss (weakness) is still with him and that is what he would like the most to change. His LLMD mentioned for him to go to a wellness center in Havertown, PA. I was wondering if anyone has tried out these wellness centers that do IV lipid treatments? Is this just a way to get money from the ill or is this really a good thing? Also, has anyone had muscle loss (not just tone, I mean he is really lost most of his shoulder girdle muscles and twitches were quite a bit and now have died down a little)? If so, did that strength come back? He did have some abnormal EMGs, so there was some nerve damage. And they said if it was not ALS that the nerves that are sparking (twitches) would come back. Anyone experience this? Any info would be appreciated! We are willing to take the good with the bad! Thank you!
Posts: 9 | From Omaha, NE USA | Registered: Oct 2004
| IP: Logged |
posted
bump
Posts: 9 | From Omaha, NE USA | Registered: Oct 2004
| IP: Logged |
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Hi Jamie, your Dad has all the normal symptoms of lyme.
A suggestion though, you may want to post this in "Medical Questions", you'll get a lot more response.
He's making progress so it's imperative that he keeps the abx treatment going otherwise he'll relapse. You treat until symptoms go away, then you treat for another month or two for good measure.
As far as the wellness center ? I'm not sure, others could answer that better than I. Many here seek alternative treatments and therapy for pain, muscle weakness etc..
Just don't let it interfere with the abx treatment, as all of his symptoms may disappear, once they get rid of the bacteria.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
| IP: Logged |
mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Anyone from SE PA hear of this place? I'm not that close so my never hearing about it doesn't mean much.
posted
Thank you for response. I will post it over in the medical board. Lyme is a difficult and stubborn disease and I really hope we are just dealing with that and not ALS. He had been dx before with that disease. I will take the one with the cure! Thanks again!
Posts: 9 | From Omaha, NE USA | Registered: Oct 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/