NOTICE - Oklahomans from around the state have gathered to provide education, public awareness, and patient support for those suffering from a bacterial infection called ``Lyme Disease''. They've formed the Lyme Disease Support Group of Oklahoma (LDSG) as an informal group led by volunteers for the purpose of eliminating the isolation felt by those affected by Lyme Disease and other tick-borne disorders including STARI (a Lyme-like disease), helping its members to learn to cope, empowering members with support and information, and assisting family and friends of patients. LDSG normally holds meetings on the 3rd Saturday of the month between 11:30am-1:30pm, Admission is free and open to the public but space is limited. For more information, email contact: Janet Segraves LDSG: Lyme Disease Support Group of Oklahoma [email protected] * PO Box 6845, Edmond, OK 73083
Posted by lou (Member # 81) on :
Great. Just sent you a customer.
Don't see your group in the support groups listing on this website. Suggest you contact the webmaster and get listed, since your notice on a forum is going to get lost as more people post and it drops to the back pages.
[This message has been edited by lou (edited 03 April 2005).]
Posted by notime2work (Member # 6092) on :
Thanks Lou. Just sent the Webmaster a note. I had tried to access the Support Group site earlier, and was having some trouble. Tried again and it worked!
Posted by okie lyme (Member # 7130) on :
Hello!! IOU, thank you for sending this link!! NOTIME2WORK, thank you for posting it! I know there have to be others from OK with lyme or the complete symptoms like I have, and have had. I got my bites camping and canoeing on the Illinois River by Taleguah. OK~~ I'm an idiot, I put clothes on a tree branch to dry~~ later was covered with hundreds of all sizes and colors. Not sure we got them all, I really don't remember, but sure got sick as a dog 3 days later. No rash then 2 years later the "weirdness" started and hasn't stopped yet. I'm hoping to get the blood tests in a couple more weeks, no insurance~~ Thank you for being here!! yes, we have lyme in Oklahoma!
Posted by notime2work (Member # 6092) on :
Hey Okie Lyme,
Welcome to the Lyme club! The support group has had 2 meetings -- I was only able to make the last one. The next one is scheduled for April 16, I believe, and will be in Norman.
I noticed you don't have an email posted, but feel free to email me at notime2work*at*cox.net if you want.
Gail
------------------ I live in my own little world . . . but that's OK, they all like me here.
Posted by Janet@LDSG-Okla on :
LDSG of Oklahoma, Saturday ~ April 16th, 2005 GUEST SPEAKERS: Dr. Akins, Assistant Professor, Microbial Pathogenesis OUHSC - Research on the Lyme Vaccine; Jarrod Roberts, Pharmacist speaking on compounding services and pharmacy grade supplements. TIME: 11:30am-1:30pm, Open to Public ~ FREE LOCATION: OKC, Robert M. Bird Library at OU Health Science Campus, Room 489 1000 Stanton L Young Blvd, Oklahoma City, (near the State Capital) Parking section J is adjacent to the Library and is FREE on Saturdays. Space is limited, Please RSVP: [email protected] Posted by okie lyme (Member # 7130) on :
Thank you for this information!!! I know right where the street in~ will have to look up the library. I'd sure like to make it to the meeting~~ let me play with the budget first before I commit!! Thank You!! again
Posted by Lymetoo (Member # 743) on :
WOW!!!! No, I hadn't seen this post at all. Honestly I've done so much reading this past month I nearly feel cross eyed! lol I am so thankful to have found this site and you wonderful people! I have got to get to the meeting this month!
[This message has been edited by okie lyme (edited 04 April 2005).]
Posted by twicebitten (Member # 5412) on :
Hi, I'm not from Okla.; however, my house is less than 15 min. away from the red river, in TX. I drive to Altus, OK frequently. I live in Vernon TX, actually north of there. I've known that I've had lyme for over a year now, closer to year and a half. My lyme has recenlty relapsed and I'm going tomorrow to find out results on two PCR tests, urine and blood. If I can be of help or join you let me know. Actually, I'll be in OKC Thurs.- Sat. am. this week for a conference on Music Therapy.. I'm glad this organization is forming.. Melinda
Posted by okie lyme (Member # 7130) on :
Hey!! Melinda and welcome! I brand new here myself, but already the support and help is overwhelming and so helpful! This is a wonderful group! Where did you get you tests done?, and Good Luck!! Just figured out recently also it has to be lyme that is causing such havoc in my life, Be safe on your journey tomorrow
