LymeNet Flash: Waking from Lyme Coma

This is topic Waking from Lyme Coma in forum General Support at LymeNet Flash.

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Posted by prconn (Member # 7113) on :

Hey Folks,

I have been being treated since February. I was bed ridden for 6 weeks. Really thought it was the end for me.

Well it is now almost 5 months later. I feel as though I am waking from a Lyme coma. I can not beleive I can feel so well. I still have many physical symptoms just not as intense. I don't feel great but think I will get there. I know slow and steady wins the race.

However my mental health is improving as well. I know I have brain lesions and hopefully they will resolve with treatment.

There is also anger that it took over 3 years out of work, and 11 years of symptoms and concerns expressed. Spent all of my life savings before diagnosis. I did recently get approved for SSDI. This will give me a bit more time to recover fully. I am hopeful again.

It is weird I can not wait to get back to work. Where do I tell people I have been? I am college educated and talented. I know people are always looking for good people. I just don't know where to say I have been. I know it may be a few more months before I get back. I am just chomping at the bit.

The part of me that wants to let out a YEEHAAA!!!
Is stirring again. Hope this give others some hope.

My regiment was that of Dr. D. 4 months of Tetra and now Biaxin and Plaquinel. I know I have about another 18 months of treatment ahead of me.

Peace.

Posted by HEATHERKISS (Member # 6789) on :

prconn,

Wow! That's pretty heavy! I'm glad you are back.

Posted by yankee in black (Member # 4309) on :

Hi Prconn,

That's a tough journey that you have been though.....

Glad to here that things are working out for you!!

Best of luck with the rest of your treatments

Posted by Troup Brazelton (Member # 6297) on :

As you look to get back into the mainstream of things, tell people the truth. Tell them lyme caused you to miss 3-4 years of your life. That lyme was aided by doctors that did not dx or tx your problems in a timely manner and thus the seriousness of your disease. Also tell them you got well by a concerned LLMD that treated you properly for the disease you had.

Posted by Michelle M (Member # 7200) on :

WOW, PRConn! You have come a LONG way! That is very inspirational! I would tell them the truth, too! It helps to open more eyes. I am glad your story has a happy ending and you are doing so much better. Keep on keepin' on!!!

Michelle M

Posted by bg (Member # 46416) on :

pr, WELCOME back to the living! So happy to read your success story. Glad you got SSDI with no problems.

Troup, wonderful, truthfull comments you suggested to pr.

bettyg, Iowa

Posted by prconn (Member # 7113) on :

Thanks for all of your insights.

It has all been so frustrating. I just want to be able to maintain my energy. Which at this point still waxes and wanes.
I have been trying to ride to bike to get my strength back. I think my mind is healing faster than my body.
However I do still become very saddened by it all.

Although I do again have hope.

Peace

Posted by Michelle M (Member # 7200) on :

PRConn, I do have a question... Does your doc intend to give you another MRI at some point to see whether your lesions have reduced or perhaps, best case scenario, GONE??? Seems that is an area we're kind of gray on. A number of Lymies have had lesions but not sure about the followup scans...

Any idea if your LLMD plans to re-MRI you down the road?

Best,

Michelle

Posted by kam (Member # 3410) on :

I agree with Troup. I had the same thoughts when I started feeling better.

But, I am still fighting the good fight so it is not something I will be dealing with soon.

Posted by Lymetoo (Member # 743) on :

WOOOHOOO...sounds like you might have escaped babesia!!

So glad you're feeling great!

------------------
oops!
Lymetutu

Posted by Lymester (Member # 5848) on :

That really is great news!

Is that I rainbow I see?

Continued recovery and smiles,

Lisa

Posted by pippy (Member # 6005) on :

Congrats pconn!!! Yeah, tell them about lyme and co-infections, they'll find out one way or another...then when it happens to them you'll get all kinds of calls from people you forgot you told

That's fantastic!!

Have you been battling babesia as well?
Did you have post test or just treat w/o pos test?

It helps to hear if someone has had success fighting babesia. It's what seems to be hanging me up at this point...

Hope your new found progress is sustained and you continue to improve!!

Posted by treepatrol (Member # 4117) on :

Great news

Posted by prconn (Member # 7113) on :

Thanks for all of your kind words and support. I have had some rough days since original post. It can be quite frustrating at times.

I have days when I feel like I could conquer the world. Then I go out and do a few errands and feel like I ran a marathon.

I have had a marked decrease in spasms and twitches. Not having them constantly seems to have also helped my anxiety level. Not sure if it is the chicken or the egg there. But those jolts can keep one on their toes.

I had appt with my GP today. Got follow up of MRI. Still have lesions but they have not gotten worse. So I guess that glass is half full. He really is useless when it comes to Lyme. I feel like I am speaking in tongues when discussing Lyme with him.

Hoping to start looking for a job in the next six weeks. I am very apprehensive because I will be going back on Tetra in the fall. It really kicked my butt last time. Although things were getting better before I started the Biaxin and Plaquenil. Keeping my fingers crossed.

Again thanks for all of your support!

Peace

Posted by lla2 (Member # 2364) on :

please make sure he treats and tests for coinfections of babesia and bartonella..he does for some but not others..otherwise you willl feel better for awhile then slip backwards something awful..been there..done that...

glad you're feeling better...continued success...

Lisa