)IDSA Urges Pennsylvania Not to Enact "Misguided" and "Potentially Harmful" Lyme Disease Bill
http://tinyurl.com/7ro2w
The letter claims that other spirochetal diseases are not treated with long term abx. I thought that LT abx was a standard treatment for syphillis?
IDSA has been so recalcitrant, so ignorant and wrong about tickborne diseases, that it makes me doubt what they say about all other infectious diseases.
Who would have guessed pre-Lyme, that our worst enemies would be state and federal health agencies and the professional society which claims expertise in infectious diseases? Mind boggling.
Thanks for posting this. I had tried to copy and paste the content, but failed, being a low tech person.
I just hate infectious disease doctors. They are possibly the worst, even worse than neurologists.
They would MUCH rather refuse to acknowledge Lyme and continue diagnosing people with chronic fatigue, lupus, etc., and lining their pockets indefinitely.
Will ILADS PLEASE PLEASE respond appropriately to them?
Thanks for posting this drivel for us to see.
Michelle M.
To see what they say?? or want to do.
Too contact the Governor's office.
[This message has been edited by treepatrol (edited 19 July 2005).]
"In addition, contrary to the bill's definition for ``related tick-borne illnesses,'' Bartonellosis
has not been established to be a tick-borne disease of humans."
Bart is not a TBD???
From CDC:
http://www.cdc.gov/ncidod/EID/vol9no3/02-0133.htm
"These results support the argument that ticks are involved in the transmission of Bartonella organisms and represent a potential source of infection for persons exposed to tick bites. Therefore, we encourage further investigation of ticks as vectors of human pathogenic Bartonella strains."
I suppose it depends on what your definition of "is" is.
[This message has been edited by tabbytamer (edited 19 July 2005).]
No benefits from long term? What is wrong with these people? why don't they care if we EVER get better??
Can everyone PLEASE come together on this and write Rendell? I live in P.A. and so do many others from Lymenet.
I have been on abx past thirty days now.
I am Obviously NOT BETTER. ( ya got that chuckie??) you think this is real funny, you sadistic... no name calling.
This HAS to stay on the top... this is what we NEED to be talking about, and DOING something about..
PLEASE write rendell.
-Kimmi
who do these guys think they are?
Is there anything that ilads can do?
Should I write now, or wait and see what they say?
-Kimmi
If you write to complain,along with the complaint,send the studies, and/or links there to supporting your assertion that contradicts the idsa's hircine decree.
I plan to include a complete package, and I've discussed possibly going to harrisburg with my husband if needed. Although, I don't think I'll need to, Rendell is a good guy. (unlike our Mayor here! )
What I don't get, is I went on their website and they have nothing proving their argument about the matter. Where are these placebo studies they are talking about??
Is there a way to request this information from them? and have them grant the request of course.
-Kimmi
Kimmi, I believe their reference to "controlled clinical trials" refers to the one study done by Dr. Wormser et al a few years ago that was ill-designed and showed no benefit from "prolonged courses of antibiotics" which consisted of one month of IV Rocephin followed by two months of Doxy (at, I believe, 100mg once or twice a day - certainly NOT high enough a dose). That study, when it came out, really made me mad and now this letter makes me mad, too! 
--Annie
quote:
Originally posted by Charles05:
The truth comes out...
lol
The truth about you wearing chicks under-roos while driving your blue dodge pick up? .. Knew that already, but thanks for sharing.
Tree, any word from ilads yet?
Annie,
This really sickens me. You have to love how they bend things to fit THEIR needs. Did they even use abx during this trial? Maybe they just fed those people tic-tacs and called it a day.
Anyway, I can't wait to see this 'research' they performed. I have alot to do so I'll check it out when I get up.
Disclaimer: The first paragraph of this post should not be misconstrued as name calling in anyway.
This is a known fact that is shared by all members of Lymenet,
and a dirty habit that is continually carried out by the intended receiver( HA!.. I said receiver!) of this message
Thank you and have a fabulous day!
-Kimmi
P.S. please keep me posted on this.. no not the under-roos.
[This message has been edited by Kimmi_K_75 (edited 20 July 2005).]
Just show your research results that contradict their flat assertion.
They rely on our(the public's and leaders' included) "blind" trust in their public announcements and are not used to being seriously challenged.
Whenever possible, use government-funded studies to show contradiction, as "Uncle Sam" can NOT contradict himself, cause he is "never wrong." The cdc's own data is a good start.
quote:
Originally posted by Kimmi_K_75:
Pq,I plan to include a complete package, and I've discussed possibly going to harrisburg with my husband if needed. Although, I don't think I'll need to, Rendell is a good guy. (unlike our Mayor here!
What I don't get, is I went on their website and they have nothing proving their argument about the matter. Where are these placebo studies they are talking about??
Is there a way to request this information from them? and have them grant the request of course.
-Kimmi
[This message has been edited by pq (edited 22 July 2005).]
Thank you for your great advice. If you can suggest anything else I'd appreciate it.
If I'm going to do this, I want to do it right. I'd like to take my time with this, but If He has already received the IDSA letter, I think the sooner the better.
I am no spokesperson, frankly even thinking of doing this makes me nervous a little.
I did check out the placebo study.
That's some crazy stuff. In fact I read most of their treatment guidelines.. I don't know. I think I'll print it out, I have a hard time reading the long stuff on the computer.
Take care, Kimmi
Kimmi,
see sites for the LDA,LDF, and associated support groups, online and off for data on TBDs, and use these references, as well.