We've all had our share of enormous loss, grief and suffering due to lyme disease. What is the single worst thing that happened to you because of lyme?
For me, it was having to give custody of my 3 small children (ages 2, 5 and 8) to my ex. I was too sick to care for myself . . . no one could help me. Doctors continually told me it was all in my head, a psychiatric problem. I know I did what any loving mother would do, but my heart is still broken from this tragedy 22 years later.
Posted by I Have Lyme Etc (Member # 7439) on :
It took my independance which ruined alot of things.. Without independance everything falls apart..
quote:Originally posted by Biting Back: We've all had our share of enormous loss, grief and suffering due to lyme disease. What is the single worst thing that happened to you because of lyme?
For me, it was having to give custody of my 3 small children (ages 2, 5 and 8) to my ex. I was too sick to care for myself . . . no one could help me. Doctors continually told me it was all in my head, a psychiatric problem. I know I did what any loving mother would do, but my heart is still broken from this tragedy 22 years later.
Posted by hiker53 (Member # 6046) on :
Biting Back: I cannot imagine all that you have gone through. I have lost some friends who don't know how to handle my illness nad my career may be in jeopardy.
Your strength gives me inspiration! Hiker
Posted by Lymester (Member # 5848) on :
I feel extremely vulnerable. My self esteem is tied into the energy, emotional and physical strength I had.
I've stepped back a notch and focus primarily on my immediate family. I hope there isn't a single worst thing for a while to come.
Posted by Luthien (Member # 7132) on :
I think the worst thing is loss of independence, as someone else also said.
It really interfered with my education and my ability to be self-supporting. As a result of this I had to remain in an abusive situation.
Posted by Starphoenix (Member # 2402) on :
Biting Back: I'm so sorry you had to give up custody of your children due to the illness. I can't imagine the pain you've endured. And it was selfless of you to do.
For me, I'd say that the worst thing has been how it's made my life small. Like I can't go to someone's home because of smoke, or pets, or mold, or scents. Or I have to cancel plans. Or I can't work. I make the most of the life I have, but it has gotten "smaller" over the last two decades due to this miserable disease.
Steph
[This message has been edited by Starphoenix (edited 27 July 2005).]
Posted by ArtnSoul (Member # 4561) on :
Both of my children have lyme - because I didn't know I had lyme when I was pregnant with them.
Posted by JillF (Member # 5553) on :
For the first time in my life, I have to cancel plans when I don't feel well.
I also find myself doing less and less these days. Just don't have the energy or worried to make plans just to have them fall apart.
My husband probably got his Lyme from me. And I did not know i had Lyme when I was pregnant, so there is a possibility that my son has Lyme (no symptoms yet).
Posted by bg (Member # 46416) on :
V,
I used to be dependable when I committed myself to doing things! Now I have to cancel things left & right .... no energy and just feeling miserable.
Also the ISOLATION because people think we are head cases (all in the head) so they drop us completely ... no visits, phone calls, etc.
I also hate being so sensitive to LIGHT, NOISE, smells, etc. Not pleasant to be around since I have to be in "control" of my environment so it doesn't hurt or pain me.
bettyg
Posted by Julie SO Cal Lyme (Member # 7654) on :
I'm so sorry for the loss of your children. All I have left are my 3 daughters, 2 of which contracted it through me in-utero because I didn't know that I had it then. After 16 yrs of marriage my husband just up and left us one day for a Tijuana stripper half his age, no joke! In one year, I lost any health that I had left (after an extended hospital stay), my home and my husband. The extreme trauma and stress of it all has left me unable to walk or even able to stand. Two years ago I was the very independent, driving all over the place, soccer, softball mom! All I can do now is to leave it in God's hands. I think that's all anyone in our bizzare situation can do! God bless you all!
Julie
Posted by TheCrimeOfLyme (Member # 4019) on :
My husband My house My car My college education Two of my children's health because I didn't know I had lyme My independance My freedom from not being strapped into an abuse relationship ( mentally)