LymeNet Flash: Poll: What's the single worst thing that's happened to you because of lyme?

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»	LymeNet Flash » Questions and Discussion » General Support » Poll: What's the single worst thing that's happened to you because of lyme?

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Topic: Poll: What's the single worst thing that's happened to you because of lyme?

Biting Back
LymeNet Contributor
Member # 6018

posted

We've all had our share of enormous loss, grief and suffering due to lyme disease. What is the single worst thing that happened to you because of lyme?

For me, it was having to give custody of my 3 small children (ages 2, 5 and 8) to my ex. I was too sick to care for myself . . . no one could help me. Doctors continually told me it was all in my head, a psychiatric problem. I know I did what any loving mother would do, but my heart is still broken from this tragedy 22 years later.

Posts: 703 | From Almost Heaven | Registered: Aug 2004 | IP: Logged |

I Have Lyme Etc
LymeNet Contributor
Member # 7439

posted

It took my independance which ruined alot of things.. Without independance everything falls apart..

quote:
Originally posted by Biting Back:
We've all had our share of enormous loss, grief and suffering due to lyme disease. What is the single worst thing that happened to you because of lyme?
For me, it was having to give custody of my 3 small children (ages 2, 5 and 8) to my ex. I was too sick to care for myself . . . no one could help me. Doctors continually told me it was all in my head, a psychiatric problem. I know I did what any loving mother would do, but my heart is still broken from this tragedy 22 years later.

Posts: 209 | From South Carolina by the beach | Registered: Jun 2005 | IP: Logged |

hiker53
Moderator
Member # 6046

posted

Biting Back: I cannot imagine all that you have gone through. I have lost some friends who don't know how to handle my illness nad my career may be in jeopardy.

Your strength gives me inspiration! Hiker

Posts: 10181 | From Illinois | Registered: Aug 2004 | IP: Logged |

Lymester
LymeNet Contributor
Member # 5848

posted

I feel extremely vulnerable. My self esteem is tied into the energy, emotional and physical strength I had.

I've stepped back a notch and focus primarily on my immediate family. I hope there isn't a single worst thing for a while to come.

Posts: 519 | From CT | Registered: Jun 2004 | IP: Logged |

Luthien
Member
Member # 7132

posted

I think the worst thing is loss of independence, as someone else also said.

It really interfered with my education and my ability to be self-supporting. As a result of this I had to remain in an abusive situation.

Posts: 38 | Registered: Apr 2005 | IP: Logged |

Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402

posted

Biting Back: I'm so sorry you had to give up custody of your children due to the illness. I can't imagine the pain you've endured. And it was selfless of you to do.

For me, I'd say that the worst thing has been how it's made my life small. Like I can't go to someone's home because of smoke, or pets, or mold, or scents. Or I have to cancel plans. Or I can't work. I make the most of the life I have, but it has gotten "smaller" over the last two decades due to this miserable disease.

Steph

[This message has been edited by Starphoenix (edited 27 July 2005).]

Posts: 1318 | From Shohola, PA | Registered: Apr 2002 | IP: Logged |

ArtnSoul
LymeNet Contributor
Member # 4561

posted

Both of my children have lyme - because I didn't know I had lyme when I was pregnant with them.

Posts: 416 | From Southeastern PA | Registered: Sep 2003 | IP: Logged |

JillF
Frequent Contributor (1K+ posts)
Member # 5553

posted

For the first time in my life, I have to cancel plans when I don't feel well.

I also find myself doing less and less these days. Just don't have the energy or worried to make plans just to have them fall apart.

My husband probably got his Lyme from me. And I did not know i had Lyme when I was pregnant, so there is a possibility that my son has Lyme (no symptoms yet).

Posts: 1485 | From USA | Registered: Apr 2004 | IP: Logged |

bg
Junior Member
Member # 46416

posted

I used to be dependable when I committed myself to doing things! Now I have to cancel things left & right .... no energy and just feeling miserable.

Also the ISOLATION because people think we are head cases (all in the head) so they drop us completely ... no visits, phone calls, etc.

I also hate being so sensitive to LIGHT, NOISE, smells, etc. Not pleasant to be around since I have to be in "control" of my environment so it doesn't hurt or pain me.

bettyg

Posts: 1 | From US | Registered: Aug 2015 | IP: Logged |

Julie SO Cal Lyme
Member
Member # 7654

posted

I'm so sorry for the loss of your children. All I have left are my 3 daughters, 2 of which contracted it through me in-utero because I didn't know that I had it then. After 16 yrs of marriage my husband just up and left us one day for a Tijuana stripper half his age, no joke! In one year, I lost any health that I had left (after an extended hospital stay), my home and my husband. The extreme trauma and stress of it all has left me unable to walk or even able to stand. Two years ago I was the very independent, driving all over the place, soccer, softball mom! All I can do now is to leave it in God's hands. I think that's all anyone in our bizzare situation can do! God bless you all!

Julie

Posts: 28 | From California | Registered: Jul 2005 | IP: Logged |

TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019

posted

My husband
My house
My car
My college education
Two of my children's health because I didn't know I had lyme
My independance
My freedom from not being strapped into an abuse relationship ( mentally)

My life

Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003 | IP: Logged |

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