Went to neurology Dc. today. Another uneducated doctor! I basicly wanted wanted to find out what I could do about my left leg pain. I have much nerve damage in that leg, and an abscent ankle reflex. I let her know I had been diagnosed with recurrent lyme disease about six weeks ago. She told me she would have to see the lab test results, and said she thought I really had fibermyolgia. I ask her why then did I have all the nerve damage and no ankle reflex. She said it was possibly pre diabetes, or from my back problems. She also corrected me and said I did not have reflexes in either ankle. She told me I should quit my job and go back to excercising. God, wouldn't that be great, but I can't. My husband is already disabled, and I am hanging on as long as I can, maybe a couple more years, if I can. Carlie Posted by bettyg (Member # 6147) on :
Big welcome Carlie to the board. breaking this up for us neuro lymies...
quote:Originally posted by Carlie:
Went to neurology Dc. today. Another uneducated doctor!
I basicly wanted wanted to find out what I could do about my left leg pain.
I have much nerve damage in that leg, and an abscent ankle reflex.
I let her know I had been diagnosed with recurrent lyme disease about six weeks ago.
She told me she would have to see the lab test results, and said she thought I really had fibromyalgia.
I ask her why then did I have all the nerve damage and no ankle reflex.
She said it was possibly pre diabetes, or from my back problems.
She also corrected me and said I did not have reflexes in either ankle. She told me I should quit my job and go back to excercising. God, wouldn't that be great, but I can't.
My husband is already disabled, and I am hanging on as long as I can, maybe a couple more years, if I can. Carlie
Carlie, sorry to read of worthless visit to the duck! I feel for you. My left groin pain has been with me 15-20 years IF not longer; I'm going in again next Monday and we're going to find out what REALLY is wrong this time.
Here are some of my newbie links since you are knew to our board...
Welcome to this 24/7 LYME support group board! Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Barrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol's newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn't cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated
YES, I have what you have! Are you on doxy too? That made my extreme eyes 200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board. Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
You will need 2% amber and 10% amber ... Style no. 901 and 910. 1-800-521-9746 TOLL- FREE
mention you have lyme and marshall protocol, they will give you 20% off! Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that's why I currently have LONG addresses vs. short tiny ones! I'll keep trying.
Good luck to you Carlie.
Posted by Michelle M (Member # 7200) on :
Hi Carlie.
If you are going to get well, it's imperative that you find an LLMD - a "lyme literate medical doctor."
As you are seeing, the neuro's and the infectious disease doctors will NOT take lyme seriously. Doesn't matter what shape you are in, they will give it another name.
'Fibromyalgia' is just a name for a group of pain symptoms often caused by -- you guessed it -- Lyme disease.
If you want to get well instead of beating your head against a wall with these "ducks" (our pet name for doctors who refuse to learn), you are going to have to find a good doctor.
Why don't you post your location in the "Seeking a Doctor" section of this Board and see about getting an appointment with an LLMD? Because the neuros are going to make you CRAZY!!!
Welcome to LymeNet!
Michelle
Posted by Ann-OH (Member # 2020) on :
Michelle is right, Carlie, and you need to have a good Lyme-treating doctor.
I am sending you a private message with the website for one of the best - right in your state.
Ann - OH
Posted by hopeful123 (Member # 3244) on :
welcome to lymenet.
sorry you have this terrible disease, but glad you found the right place for help!
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