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Posted by Linda LD (Member # 6663) on :
 
Yesterday I missed work because my little boy had the croup the night before.

I also slept all day yesterday. My husband called me at 6:30pm to tell me he was coming home from work and I didn't know if it was morning or night or what was going on when he woke me up.

So I missed work and they are going to take me to part time now.

I am so tired I almost feel like saying--o.k.--see you tomorrow--I'm going home to sleep.

What are we going to do? We are so indebt.

I wish they would just tell me--I think they don't fire me because then they would have to pay unemployment...

I just want to go home and sleep...say a little prayer I don't cry!

During the first meeting I just cried and cried and cried...

Thank you ahead of time for the support.

If you don't hear from me again then they fired me, YIPPI.

Linda
 
Posted by bettyg (Member # 6147) on :
 
Linda, it's time to look into applying for SSDI, social security disability insurance benefits, or SSI! See below for some help.

You have to be off work 6 months before applying, but you could do the homework now IF you are able or have family/friends get involvd in putting a successful app ready to be APPROVED 1st time, 1st try!

IF YOU ARE TRYING TO GET SS DISABILITY INSURANCE BENEFITS

Hi! I know what you mean about memory & typing, etc....it's the pits!

I do suggest you join the FREE DISINISSUES and read thoroughly or just print it all off of the FEMALE MD with chronic fatigue, etc. she gives wonderful, detailed examples that DDS, disability reps, want to approve/deny you.

Also have you looked thru the ADULT APPROVED LIST OF IMPAIRMENTS? That's critical also!

http://www.ssa.gov/disability/professionals/bluebook/1.00-Musculoskeletal-Adult.htm

note 1.04; look at the rest of the 14 other specific areas too....

I printed off 1-14 sections showing what brief guidelines were for each section.

I used that against ALL my medical reocrds, 3" thick!! Then I went to their DETAILED specifics for the sections that applied to my illnesses!

TIMECONSUMING....TOOK ALL 7 WEEKS from my notice of my ALJ hearing date!

So you have NOT submitted your INITIAL APP TO SS OFFICE, correct? Good, you want this to be as complete as possible so they can NOT turn you down on the 1st step as they do us all!!

What I did with an online friend was this: prepared a chart noting the specific
section of 1 - 14 that my diagnosed illnesses showed the wording, dr. seen & date.

Example, 14.09 LYME disease is mentioned in but doesn't give any examples. So I showed 14.09 with my drs. name & date plus specific details about each visit where lyme symptoms were stated..

I hope you have a copy of ALL MEDICAL REPORTS...drs., xrays, all blood labs.

It's critical that you KEEP A COPY FOR YOURSELF!


On mine, I showed the date mailed to ALJ & LAWYER PLUS I kept a copy.

Then I went to copy center nearby & copied and mailed promptly to lawyer per his request.

WHY THIS IS IMPORTANT: if you have an ALJ hearing, request thru your local SS office to REVIEW your complete SSDI app at THEIR local office!
When you see things you submitted with your writing on, don't look at them!

Look & read only the secretative RFC & MFC done by the the in-staff DDS DRS/PSYCHOOGISTS! You want to make copies of ALL the stuff they have &
other stuff you don't have so you can use that info against them!

good lawyer list from disinissues
http://www.cfids-me.org/disinissues/lawyers.html

RFC link is: http://pbcers.org/rfcq.htm

ACTIVITY DAILY LOG, ADL link is:
http://f4.grp.yahoofs.com/v1/oHfvQzZLYvcfvmUv
V4L_ayW4_l5PFECbH9UA2BR_YfE66JZ0ZSxttbcO7NZqu
HpjUfnUxG9wWuH7WPXAzrR7YqCnrsO80V5hSxJwduQ/
Activities%20of%20Daily%20Living%20questionnaire

At moment, can NOT find MFC questionnaire, but look at site on links/files. It is there but not visible to my eyes presently.

NOTE: I'D DO THIS DIFFERENTLY NOW!
SEND 1 COPY TO ALJ and 1 to your lawyer! Lawyer did NOT SEND MY REPORTS TO DDS STAFF PROMPTLY; they didn't see many things when they denied me although I had good medical info!

Examples, 2 RFC, residual function capacity done by PCP dr. of 26 yrs. & rheumatologist;

plus 2 MFC, mental function capacity, done by psychiatrist & psychologist....
the 1st person was the one judge used in APPROVING my 2nd claim for severe depression/effective disorder & anxiety.

ALJ's don't like working with LYME, FIBRO, CHRONIC FATIGUE.

MENTAL is on approved list of adult approved impairment list! So don't fight it, go with it!

IF YOU ARE TRYING TO GET SS DISABILITY INSURANCE BENEFITS

This message is sent upon subscription, and again monthly.
Please let the moderators know if any of the links have changed.

There are several links found by clicking on 'Links' on the
website or by going directly to
http://groups.yahoo.com/group/Disinissues/links


There are many more links, as well as advice, in the "useful" messages
in the Files area of the website. Go to
http://groups.yahoo.com/group/Disinissues
and click on Files.

BETTY NOTE: Look at the female MD's DETAILED BACKGROUND right below this paragraph. Print off her detailed responses as to why she could
NOT do her job, and then apply that to YOUR own job as to why you no longer
can do any type of sustainable work now nor in the foreseeable future!

http://www.cfids-me.org/socsec.html

These links are a compilation of several areas of interest which are commonly requested and mentioned. They reflect the collected wisdom
of this group. Check them out - you just might find the information you were looking for! Take a look at Files that are not specific to
your situation, because they might be helpful anyway - what works for Social Security may work for LTD claims, what applies to CFS may apply
to your medical condition.

The Welcome Message and Group Guidelines are also in Files, if you need a refresher on how this group works.

You must register with Yahoo to use the website, but note:

Be careful not to permit your address to be put into the directory when you register. Put as little as possible into your public profile.
You do not need a Yahoo address to use the website. Your email address is what Yahoo calls your "alternate address."

Contact the moderators at
[email protected]
or for AOL subscribers:
Click here
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To reach the list moderators, write to:
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DO NOT FORWARD ANY MESSAGE FROM Disinissues
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NO MESSAGE ON THIS LIST IS TO BE CONSTRUED AS LEGAL ADVICE

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An online friend of mine from disinissues web site posted this info today, so I have copied it over here.

Subject: fibro/CFS disability info [Disinissues] what does an Functional Capacity
Exam entail?

Lyme, fibro, & CFS support group members who are/will be filing for SS Disability insurance benefits, please go to the web page shown below.

There were 9 pages of info I printed below area where you can order from fibro
network a 70 page packet. I too plan on including this info when I send my
FINAL packet of info to chief alj before my June 16, 05 hearing...my last chance!

Please read the site mentioned on: WHY DISABILITY TESTING FOR FMS
IS OFTEN MISLEADING ADVICE FOR FM/CFS PATIENTS AND THEIR DISABILITY TEAM.....

Also after this article are the following articles:

WHAT COULD BE CAUSING DELAYED-PHASE FLARES?

BENNETT'S METHOD FOR ASSESSING FUNCTION IN FMS..

TECTONIC CHANGES IN DISABILITY LAW by lawyer Joshua Potter,
CALIF.

MEDICALLY DETERMINABLE IMPAIRMENT REQUIREMENTS FOR CFS & FMS

DOCUMENTIONATION...VIEW IT AS AN INSURANCE POLICY

I printed this out in larger print for my eyes....9 pages! Will read it thoroughly

and mark up 2nd copy to go to ALJudge for my 2nd hearing as medical evidence also.

Bettyg, Iowa
 
Posted by Aniek (Member # 5374) on :
 
Linda,

Does your employer know about your illness and that you need time off directly related to it? If so, you may have some protection under the Americans with Disabilities Act. It's not an easy law to get protection under, but if you never tell the employer you are sick then they have no responsibility.
 
Posted by Linda LD (Member # 6663) on :
 
The meeting is scheduled for tomorrow.

They know I am sick and they know my husband and children are sick.

when my child was having hallucinations this was the only people I told because I was having to go to the doctor and take him to so many doctors.

It is a really small family owned business--do they still have to follow the rules for American for Disabilities Act?

I contacted a lawyer about disability--they told me to file and when I was turned down they would help me.

Thank you,
linda
 
Posted by lymesly (Member # 8528) on :
 
I'm so sorry, Linda. : (

Oh, that is so hard.

Susan
 
Posted by hopeful123 (Member # 3244) on :
 
Hi Linda,

I am sorry it's so tough for you and your family right now. I googled americans with disabilities act and came up with this link for FAQ. Hope something here gives you some guidelines.

http://www.dol.gov/odep/faqs/main.htm

I know the broke thing really get old after a while.

Good luck

[group hug]
 
Posted by Lymetoo (Member # 743) on :
 
Oh Linda...Im so sorry! Let us know how it comes out, OK??

I'll be praying for you!
 
Posted by Linda LD (Member # 6663) on :
 
I love you guys--I honestly don't know what I would have done without you for the last 2 years!

I'll let you know how it goes.

linda
 
Posted by Deb (Member # 4393) on :
 
Hi Linda,

Check your private messages; I just sent one along.

Debbie
 
Posted by Lymetoo (Member # 743) on :
 
[group hug]
we'll be thinking about you!!
 
Posted by Linda LD (Member # 6663) on :
 
They are not going to pay my unemployment!

Because I am being fired with "cause" I wont get my unemployment. the cause is that I have missed work when me or my kids were sick.

I called a lawyer and he KNEW the company! He has represented other people in my boat and they LOST! He wanted me to know I could lose $500!

He told me to come to work and work until they tell me to go home--so here I have sat since 8:00am! This is so crazy and MEAN! Why would someone act like this? They should be ASHAMED!

Oh well, I gotta get back to work!

Linda
 
Posted by Elizabeth in MN (Member # 8466) on :
 
Linda, I am so sorry. I had to go through the private disability and SSDI thing, and it is just insane. No sick person -- or WELL person -- should have to go through that system.

Hang in there, and let your lawyer take care of it, if you can. Our lawyer was worth every penny. We won the private disability on the first appeal. I just reused all that paperwork for SSDI, and got it the first time round.

Good luck. Keep us posted.

Warmly,
Elizabeth
 
Posted by cantgiveupyet (Member # 8165) on :
 
Linda,

hang in there OK. Ive been thru the muddy waters as well with my employer, the short term disability company too. It isnt right, we are sick!!! But being sick is a liability to companies looking out for their bottom line. Sad but true.

Just try to focus on your health because that is the most important thing right now.


[group hug]
 
Posted by Linda LD (Member # 6663) on :
 
The boss lady came and joked around with me. This is so confusing!

I guess they will keep me for 2 weeks until they replace me. The crazy part is I'm not full time material but they want me part time! Went on and on and about how creative I am and what good work I do!

This is just insane!

It is all about not wanting to pay my unemployment.

*BIG SIGH*

I just wish they would tell me!

God bless everyone.

lin
 
Posted by hopeful123 (Member # 3244) on :
 
they sound like corporate pigs all right!!

it just doesn't sound right to me, but i'm no expert.

you have my empathy and support!!

long live corporate america [Big Grin]
 
Posted by Aniek (Member # 5374) on :
 
Linda,

The ADA covers employers who have 15 or more employees. But the time off you need would have to be for your own disability, and therefore not because of your son.
 
Posted by just don (Member # 1129) on :
 
Linda LD,
Sounds like ALOT of sewage to me. Speaking of sewage, how did your OTHER project turn out???
Will be thinking good thoughts and winging them your way. Employers definately look out for themselves FIRST.
I remain--just don--
 
Posted by Linda LD (Member # 6663) on :
 
Hi Don!

The story seems to be they don't want us to be on their insurance. We have never been on their insurance and I told them I wouldn't use their insurance--my husbands new job is "Cadillac" insurance and hubby's employeer is VERY happy with him. He is herxing on the weekends.

I am going to ask if they could let me work full time until the kids go to school in august and then I can go part time.

The truth is working part time this summer would cost us money between daycare, gas, lunch and wear and tear on the truck--we would be losing money...

Don, we got the sewage pipe all fixed up! I had raw sewage (septic tank) expossed out in the yard for at least 6 weeks while we had to get a new septip tank lid! It takes all the fun out of "walking the yard" when it smells like sewage!

How are you feeling? How are the "girls?"

Thank you for all your kind words and warm thoughts,
Linda
 
Posted by lalyme (Member # 8964) on :
 
Praying for you so much. This disease makes us all shed so many tears. Thinking good thoughts for you.
 
Posted by just don (Member # 1129) on :
 
Linda,
So where or what was broke on your pipe??? Which pipe???
Girls are fine and I am NOT talking about "ME",
you DONT "even" WANT to know!!!
I get alot more charge out of helping others than myself it seems cause I remain--just don--
 


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