Please fill in the blank and sign in if we haven't heard from you for awhile.
Actually, ALL of you can sign in. It's time for ROLLCOUNT!!!!
Need to whine about how cr***y you feel? Go right ahead! There's plenty of room for that too!! Go for it! Posted by just don (Member # 1129) on :
"CHECK",.please???
Posted by Ann-OH (Member # 2020) on :
just me
ann-oh
Posted by bettyg (Member # 6147) on :
present and accounted for TUTU.
I've been wandering the same especially on Tincup! Glad you posted this... Bettyg
Posted by trueblue (Member # 7348) on :
here but going back to bed
(you know that babs thing that's not a herx...?) Posted by Lymetoo (Member # 743) on :
true....no herx herx? UGH! Take it easy, OK?!
Glad to see someone around here knows how to follow instructions!! Posted by Monica (Member # 224) on :
I'm here ... when someone will wheel me to the computer.
Posted by cbb (Member # 788) on :
Following instructions. checking in.
Posted by Lymetoo (Member # 743) on :
'Bout time, cbb! You know the really "smart people" checked in immediately!
Monica....What can we do to help? Posted by cbb (Member # 788) on :
Miss TuTu, I'm mighty proud - I made page 1.
Posted by shazdancer (Member # 1436) on :
Shazzy here, ready to send the first assignment on the Lyme digital library project to my advisor tomorrow. It is a 2-page paper describing why I chose Lyme disease as a subject for a digital library.
The short answer is: because we need one!
Shaz
Posted by TheCrimeOfLyme (Member # 4019) on :
here
but sick with strep. So barely here.
Posted by Happy Camper (Member # 8995) on :
I'm here. In bed with the computer next to my bed...keyboard on my lap.
Rosie (arf) next to me.
Hoping Monica will have a computer next to her bed soon so she can be on it whenever she needs.
KAM
Posted by hshbmom (Member # 9478) on :
hshbmom here too. Thanks for the being here. Looks like I'll be here a little while.
I was encouraged today when I went to a new pharmacy. They were actually interested in hearing about LD and seemed to be Lyme friendly, and maybe Lyme literate. They wanted me to keep them updated. They knew I had to go out of town/state to get a proper diagnosis.
Maybe the pharmacy students are getting better Lyme education than most medical students.
Nancy Posted by MagicAcorn (Member # 8786) on :
Here
Posted by kitkat32 (Member # 9682) on :
Here but feeling blah. Have only been able to read. Not feeling energized enough to post.
kit
Posted by Lymetoo (Member # 743) on :
Thanks for checking in, guys!! Especially those we don't hear from often!!
Kam....I didn't know you were "Happy Camper"!! Duh! I may never have figured that out if you hadn't said so!!
Glad to know you've been here all the time!!
cbb...yes, I'm proud of you too!! Posted by SAK (Member # 7387) on :
I'm glad to be here...whenever I can DRAG my feet from my bedroom to my desk/computer room!
Posted by Aniek (Member # 5374) on :
I'm here. Tired, been spending the whole day trying to get work done. But not concentrating again today. I don't think it helps that I no longer enjoy my job.
I just popped some B-12, and next step is trying tea.
Posted by hurtingramma (Member # 7770) on :
I'm here. Just put myself back on my meds after a 3 day break. Hope the rash that was starting doesn't come back. I didn't even tell my LLMD, 'cuz he would take me off them for a month - and I just want to get on with things! How long does the "pre full moon" insomnia last, anyway?
Posted by lymeinhell (Member # 4622) on :
I'm here, but mostly lurking.. And still of abx. Thursday marks 1yr and 10mos no abx... and feeling great!! Posted by 5dana8 (Member # 7935) on :
like the song Hotel california:
"you can check in any time you like, but you can never leave"
not really sure how this pertains but it does contain the word "check in"
Still tired and nauseated but considering there are worse things in life.
[ 09. August 2006, 04:13 PM: Message edited by: 5dana8 ]
Posted by troutscout (Member # 3121) on :
Just stopping by
Trout Posted by Aniek (Member # 5374) on :
Great news Julie! Great to get a great check in here.
I'm still tired. Posted by Lymetoo (Member # 743) on :
Fishman?? Fishman showed up!??
That's great news, Julie!! Next month will mark one year off abx for me!! Posted by NUTBOBUTT (Member # 7242) on :
I'm here! I was a non-contributor for quite some time but always checked up on you all. Nut
Posted by lymemomtooo (Member # 5396) on :
Tutu. I am here, but you know that..Where are more of the moldie oldies..I do not know what I would have done without them when I was desperate for help..
Well I still am desperate for help...If they do not post, but do read this..Bless all of you..and to you Tutu for being here for all of us..hugs.lmt
Posted by Lymetoo (Member # 743) on :
Hey nutbo!! Good to hear from ya!! Posted by clpgotlyme (Member # 7875) on :
I am here, too. Having a bad pain night after walking around the New Indian museum in Washington DC today, (but at least I can now). Still on 2 antibiotics after 1 1/2 years. Cindy
Posted by Lymetoo (Member # 743) on :
Hey clp! Are you making progress??
Posted by laserred (Member # 6796) on :
Here now...was away from home [and a computer] for a month welcoming a new granddaughter born July 20th...
Still on abx...26 months and counting. Next LLMD visit in 10 days, so, we'll see where we go from here.
Still fighting fatigue, insomnia and [prob] babs symtoms. Lotsa vision problems which trigger the headaches or visa-versa. And does the memory ever recover???
All in all...I can definately say I'm much, much better than I have been over the past year and a half...there is a light!!!!
~laserred~
[ 08. August 2006, 12:40 AM: Message edited by: laserred ]
Posted by foggedup (Member # 7415) on :
I am here...in bed.
Posted by Lymetoo (Member # 743) on :
Hey laser....good to hear from you!! Congratulations on the grandbaby!!
fogged...hang in there!! Posted by bettyg (Member # 6147) on :
Tutu, loved the alligator for trout; or was that a fish? lol Yes, we are minus many oldies here... Bettyg
Posted by clpgotlyme (Member # 7875) on :
tutu, I am making progress, just very slowly. Have had Lyme at least 13 years, so its to be expected. The best part is that the daily headaches and sore neck and shoulder muscles are much better.
Now, if only the monthly migraines would go!Continue with moderate fatigue and mod. or worse joint/ligament pain, brain fog. Am on Ceftin and either Levaquin or mino. Thanks for asking! Hugs, Cindy
Posted by buggy (Member # 3515) on :
Hey Lymeto and All
Iam still here . spent Sunday night in the (duck hotel) . Boy I hav'nt herxed like this since the first days on doxy 6 years ago. I scared my wife enough that she stayed with me yesterday. And Nan is an old pro at my herxing. I am feeling a bit better the fever has broke and I have had my fluids replaced( nothing like a oil change to make a new man outa'ya).
Hope all are doing good. Buggy (aka appleseed)
Posted by pab (Member # 904) on :
I'm here too!
Posted by Monica (Member # 224) on :
Thanks for looking after me!
At least I am not getting worse. I am off all abx and on cat's claw and beaucoup supplements to build up my immune system. Have been following South Beach diet and have lost weight. Trying to keep flexible.
I'm seeing an ortho about my knee (severe arthritis) tomorrow, Thursday back to new (for me) LLMD and Friday having an MRI of my brain.
Will take time to undo the damage done by 14 months of abx with previous LLMD. Walked into his office with a cane. 14 months later was using a wheel chair. He kept telling me it was a herx!
Posted by Lymetoo (Member # 743) on :
Hi pab!! Good to hear from you too!
Buggy....can you stay out of the duck motel ... PLEASE!!?? Awful place to find yourself!
Monica...glad you found another LLMD. Hope you can make good progress now.
Posted by foggedup (Member # 7415) on :
Lymetoo~~~
Thank you for always responding. I really appreciate your kindness. (and all the others that help too)
I will PM you one of these days...right now I am in a deep downward spiral. Had a good cry today, so hopefully that will start pulling me back up.
Thanks again! Michele
Posted by Lymetoo (Member # 743) on :
Michelle....PM me anytime!
Posted by hatsnscarfs (Member # 6562) on :
hats here, just back from Shinglesville, checking in. Just finished 2nd year of abx. Getting better!. Finally able to exercise. Still avoiding sun. hatsnscarfs
Posted by aklnwlf (Member # 5960) on :
Hi all,
Checking in! Had my IV removed first week in June and am on orals.
Having some circulation problems, pain and redness in fingertips and toes. And some sleeping problems.
Taking orals 3 days a week, two weeks out of the month. Hopefully it will clear up my residual lyme.
Also am seeing a naturalpath on the 22nd. Will go the alternative medicine route next.
I'll let you all know how that turns out.
Sorry I haven't posted in awhile. Computer problems and lots of family obligations.
But am so glad to see everyone's still here and checking in. This was a great idea!!
Posted by seibertneurolyme (Member # 6416) on :
Checking in for hubby.
Endoscopy procedure went fine last Friday. Results not so good -- gastritis and duodentitis not unexpected, but the gastric ulcers were an unpleasant surprise.
Sent biopsies to MDL for Lyme and coinfection testing -- of course the general surgeon sent 2 less specimans than we requested -- hope there is enough tissue to at least do the tests. Would really love it if something was positive to help silence the doubters.
Been off all Lyme and babs meds for about 2 months now and had thought stomach was healing with Carafate and some herbs.
Have an appointment with a new PCP (hopefully) this Thursday -- only 1 1/2 hours away instead of 4 1/2 hours so hope that works out.
Also next Monday will be seeing a new (old) chirpractor -- had seen him 5 years ago. Local one of no use so have to drive an hour to see this one. Had a consult, but no adjustment last Thursday.
Doc is pretty sure hubby's shoulder is slightly out of socket and that is what is causing all the pain and myoclonus, especially when he rolls over in bed at night. It only took a month to figure this out!!! This actually happened to him once before over 5 years ago when he was playing putt-putt golf -- this chiro was able to help him then so we have our fingers crossed.
Saw a lawyer last week regarding hubby's insurance premium rating issues -- he does not have congenital hemophilia as was reported as a diagnosis code. I guess no news is bad news and they won't take the case. Probably didn't think there was enough money involved ($12,000 in overcharges for the last 3 years is real money as far as we are concerned). Lawyer seemed more interested in finding a doc to sue than taking on the insurance company.
Hubby and I are both pretty frustrated, irritated and just plain mad and angry at the world in general right now. The heat has really been hard on us both. Oh well, hubby is another year older and we are deeper in debt with no end in sight.
Bea Seibert
Posted by Aniek (Member # 5374) on :
I'm re-checking in 5 hours after taking my first dose of zith. Argh! So much pain inside my joints. Cracking joints. Insomnia. When I took the zith I was pain free and exhausted.
I am not a happy person right now. I have a really hard work day ahead of me, and had to email my boss I'd be late. It's 2:30 am and I don't see myself in the office in 6.5 hours.
Posted by Lymetoo (Member # 743) on :
Hi hats....so glad the treatment is beginning to take hold!! Onward forward!!
aklnwolf...welcome back! Happy to see you again!! Hope you will continue to progress!
Bea...I'm so sorry for your husband's condition. You two have been through SO MUCH!!
Aniek...It's got to be SOOO difficult to work while herxing! I never had to do that....but I worked for years while being undxd. UGH. Posted by heiwalove (Member # 6467) on :
i'm here, and feeling lots better! don't give up!
~heather
Posted by Pitnum (Member # 4906) on :
Still here.....still no treatment! Was cut off by insurance company 2 years ago. Symptoms persist, just living with it.
Posted by Lymetoo (Member # 743) on :
Hi Heather!!
Pitnum....How about a rife machine? A good used one??
Posted by Yemaya (Member # 8842) on :
Yemaya,
here checking in from the land of Zepron. Feeling like I am riding the Lyme, Babs Roller coaster. I am up I am down. I am all around. Someone stop this ride I want to get off.
Blessings & Healing to you all my Lymie Brothers & Sisters.
Love & Light Posted by Lymetoo (Member # 743) on :
Hi Yemaya! Do take care...get off the roller coaster sometime soon, OK?!
Posted by AZURE WISH (Member # 804) on :
I'm still here. Still fighting the lyme and what not. Still disabled but making progress.
Lymetoo do I get detention for being so late?
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by AZURE WISH:
Lymetoo do I get detention for being so late?
Thanks for the idea!!!! Better behave next time!!
Glad you're getting better!
Posted by tabbytamer (Member # 3159) on :
I'm here, too.
Posted by Andie333 (Member # 7370) on :
I'm here, too and continuing to feel better.
When I think of how I was this time last year, it's all the difference in the world!
Just checking in on a Saturday night
Andie
Posted by daniella (Member # 6753) on :
hey guys...I'm here..not feeling great though..I've had iv removed for about 2-3 months. And some nuero stuff coming back...ugh!
But I will pull through it...thanks for caring about us!
daniella
Posted by Michelle M (Member # 7200) on :
Whoa! Busted! Hadn't peeked in on General Support for a while!
Count me in, please.
A coupla months of treatment under my belt for previously undiscovered Babesia WA-1 and I am nearly good to go.
Yesterday, I even rode my horse.
Hah!
New people, listen up: A year ago, I prayed to make it to Saturday, so I could slump in a chair all day, nauseous but too scared of doxy to lie down, head shrieking in pain. So don't give up, you're gonna get there!!
Michelle
Posted by Lymetoo (Member # 743) on :
Meg...I just wanted to know how you're doing!
Happy to hear from Andie, daniella, tabby, and Michelle!
Nice, horsey, Michelle...what's his name??
Posted by Michelle M (Member # 7200) on :
quote:Originally posted by Lymetoo: Nice, horsey, Michelle...what's his name??
Al Farouk el Shiek something or other --
a/k/a
plain ole' Al !!
Michelle
Posted by aiden424 (Member # 7633) on :
I'm here and doing a little better. Hey Michelle, I rode my horse for the first time this summer. Yours looks like an arab. My guy is a thoroughbred. It was really GREAT!! I haven't ridden in over 17 years.
Kathy
Posted by Lymetoo (Member # 743) on :
Hi aiden...Kathy! Haven't heard from you in quite awhile. Glad you're doing better!
[I Like Al....Michelle!]
Posted by hopeful123 (Member # 3244) on :
hey tutu et al,
I've been reallllllllllllly busy at work, so that's why I haven't been here. Don't really have a computer at home that works decently.
I now have been off of atx for a month and a half if you don't count the ten days on biaxin I just finished for bronchitis. Seriously, I doing okay. Until I got diagnosed with bad bronchitis I was so worried that I was relapsing because I had been horribly tired for a couple of days. Such a relief to learn it wasn't connected to Lyme.
Doing supps and other stuff which has not so much to do with Lyme. Wouldn't try going off of the antidepressants. Not only are they mood regulators, but they help concentration and focus. Still have acid reflux. Try to stop taking the drugs, but then it comes back. Also, cholestoral meds. Not so bad.
I'll tell you what's really wierd. Not having to worry about eating so I can take meds on a full stomach. If lunch is late, so what.
I don't feel as good as I felt pre-Lyme, but it's okay.
Staying away from yeast and sugar - one day at a time.
Still have major yeast in mouth, although I am on Diflucan every day. I think it's the Advair discus, which I am taking twice a day since asthma acted up and then bronchitis.
I'll stop by again.
Posted by Lymetoo (Member # 743) on :
Hey hopeful!! been missing your happy face here!!! Thanks so much for chiming in here!
ONward, forward....hope you can stay off abx!!!
Somehow I've managed to avoid thrush. I use Advair too....You do rinse your mouth, right?
Posted by hopeful123 (Member # 3244) on :
hey tutu,
thanks for the good wishes. yep, I do rinse. what i forgot to mention is that with the atx for the bronchitis, i also had to take prednisone, which can cause thrush, as well. \
theralac is so expensive, but it helps like nothing else, once something pops up.
still have enough to do to keep my head on straight. life can be stressful. Ya.
Posted by sarahinnewyork (Member # 7179) on :
Hello All- I'm here as well!- I don't post very often but am always searching for answers on lymenet- and getting answers AND inspiration-
thanks for everyone's support
xo Sarah
Posted by Lymetoo (Member # 743) on :
Hey Sarah!! How are you doing?? Posted by Silverwolf (Member # 9196) on :
I'm here,just back from utah and MRI Brainscan,had some blood test w/ scarey findings ,and waiting on LD tests.
I'm really weary,and a bit shook about some of it. I posted some of what little info we have, Trying not to be a Chickn'Silverwolf,and not succeding very well. I want to sleep and just cannot get enough rest. OwOWooWOOOOOoooo-cluck-cluck-cluckeRoooowowooooo!
Posted by charlie (Member # 25) on :
I'm here off and on....lots going on in the summer I need to finish. Will be around more in the fall to make jokes out of people's posts.
betcha can't wait...
Charlie
Posted by Lymetoo (Member # 743) on :
Hey Silver...I'll see if I can find your other post.
Charlie....We're holding our breath !!!
Posted by CharV (Member # 5849) on :
I'm here - haven't been on much this summer. Feeling okay, but not great. Looking at doing some herbal stuff - is there anything new that seems to be working for Lyme symptoms?
Posted by Elizabeth in MN (Member # 8466) on :
I'm still here! It's so good to hear how everyone's doin'.
I'm still struggling with awful bronchial issues and a terrible cough - don't know what's causing it. Waiting for results of CT scan to make sure it isn't a pulminary problem.
I started seeing a new LLMD who has me on a strict food elimination diet and also started me on Ceftin and Zith about a month ago.
Been feeling too poorly to contribute much, but I read the board regularly for inspiration and support. It's really good to have you guys here.
Warmly, (cough) Elizabeth
Posted by Lymetoo (Member # 743) on :
Hi CharV....good to hear from you! Many are trying ketek with pretty good success. Been treated for coinfections yet??
Elizabeth...sorry to hear your coughing... yes, I hear it!! Let us know what they find.
Did you get your birthday greetings here?? [sorry, I can't remember if you found them or not] Hope it was a good one!! Posted by Elizabeth in MN (Member # 8466) on :
Hey, tutu! I did get my birthday greetings, thanks. I was having a particularly awful week, so didn't have the heart to reply, but it meant a lot to get them. :-)
Posted by pmerv (Member # 1504) on :
I'm here too, but only occasionally. I've been busy setting up yahoo groups for several states, modeled on CaliforniaLyme, which is working amazingly well. There are many people outside of the existing networks who desperately need information and support and LymeNet can be a bit overwhelming. There's something to be said for smaller and more local.
If you want me to set up one for your state, let me know. Check it out at http://health.groups.yahoo.com/group/ followed by the state name (in full with no spaces) and "Lyme." (e.g. newyorklyme) So far there are groups for CT, MA, NY, PA, NJ and CA. Slow starting but I think they have potential. Phyllis
Posted by Lymetoo (Member # 743) on :
Good work, Phyllis!! Posted by pgm (Member # 2348) on :
I'm still around. Looking up info for a friend. Hello to everyone.
Posted by HEATHERKISS (Member # 6789) on :
TuTu,
Hi! Everybody! yipee!
I've been doing very well. Got a full time job near my house. Adjusting to work life. Very happy and hardly any pain.
There is a life after Lyme! Can't wait to be 100%
Posted by Lymetoo (Member # 743) on :
Hey Lyme Buddy! YOu've really been hiding out for a LONG time!! It's so great to hear from you!! Doing well??
Heather....a JOB!? WOW!! Good for you! [send me some money $$]
Imanurse....yeah, I was wondering what happened to you. Hope your daughter does well and you can get some rest now!! Guess we'll be seeing more of you now, huh?! Posted by bugabooboo (Member # 7383) on :
Howdy!
This is the first time in 2, count 'em 2 years that I have read "General"...There's a lot of fun goin' on here!!
Been hangin' in "Medical".
Think I'll come again.
Have been struggling with strep/cold/cough all August.
Have been rifing for 10 months now and herxing non-stop. Tried to start Biaxin/Plaquenil...Biaxin caused my heart to jump like a love sick teenager!!
Haven't worked in 2 years.
I'm thankful for a good husband that takes care of me and God who is the lifter of my head!
Psalm 3:3 But You, O Lord, are a shield for me, my glory, and the lifter of my head.
Bug
Posted by Sylvie (Member # 188) on :
From time to time I virtually jump across the pond to see how is my Lyme family there... Posted by Lymetoo (Member # 743) on :
Hey BOOBOO...WE always have fun over here! And sometimes people post jokes, or even Bible verses!
Hope your coughETC goes away SOON!
Sylvie....It's been a LONG time since we've heard from you! Been doing OK??
Posted by KENNEDY (Member # 9628) on :
Hi to all, I'm very new to Lymenet. But I'd like to take this opportunity to say thanks to everybody for all your help. I don't post much because I don't know much. I've only been to my LLMD once and am going again this Tues. So once again I thank you all for everything. sincerely,
Kennedy
Posted by Lymetoo (Member # 743) on :
Kennedy!! Glad you're here!!! Don't remain a stranger!
Posted by bugabooboo (Member # 7383) on :
Hey Kennedy,
Don't be buffaloed into thinking this site is only for those who know everything about Lyme.
It's for people who have questions and are learning also!!!
Don't be afraid to post.
Bug
Posted by Somerset (Member # 7534) on :
"TuTu", I'm here, have'nt forgotten you & the group. I'm just having a hard time coming up with the words to respond to replys or Posts. Still kicking Girl!!!!! "Miss you all", Robin
Posted by Lymetoo (Member # 743) on :
HI ROBIN!!! Haven't heard from you in a very long time! Hang in there, OK??
Kennedy....booboo is right! Post away! Being new never stopped my mouth!! Posted by pegee4 (Member # 9869) on :
Actually, Ireally haven't been here in 6 years! What ever happened to Loveyonlyme??? I hope only good. Pegee4
Posted by serendipity (Member # 8474) on :
TuTu, I'm back from my appointment for the tachycardia, and checking in as you requested.
I am glad I found this place Posted by JJ (Member # 602) on :
Lymetoo!
I just drop by to check up on everyone and I find the roll call request! What a great post!
Here I am! I was lost and finally found myself...maybe I am an impostor...no, I think it is me! I often wonder if I am coming or going, life is so busy and I thank God everyday that I can participate!
Many changes over the past couple years! I rounded my 2-year anniversary being off of meds! Just a few struggles here and there, life is good!
That is...until I herniated a disc in June, I am still fighting this terribly. My chiropractor feels that it is healing so slow because of the Lyme and attacking of the system, weakening everything. However, I am working hard to get through this and I will! I am heading to Canada next week to go fishing in Northern Ontario, I have to be better! He is working me over hard and often, so wish me luck!
Just delivered my baby girl to your great state in Rolla for her second year of college last weekend! Trip went well, lots of pain killers, I can say it was a "happy" trip!
No other complaints, just wishing and hoping that everyone can have the success of throwing those meds away and participating in life again! It can happen!
August is my 7th "bite" anniversary. It takes a long time, but life does get better!
How are you and your talented hubby doing? Keep in touch!
JJ
Posted by savebabe (Member # 9847) on :
I am new to this board, but not the disease. I am here.
Posted by Lymetoo (Member # 743) on :
Sorry gang...I was out of town.
pegee....I'll PM you about lovey. What's your original screen name?
Serendipity.... Hope that tachycardia slows down soon! I battle it all the time too. we're glad you found US!
JJ....ARRRGH! I sure hope that you get that back in shape very soon! Maybe you need some prolotherapy? Say hi to both kids [and hubby] for me!!
savebabe...Hang around here awhile and you'll be just as nuts as the rest of us! Posted by lymex5&counting (Member # 7202) on :
Hey Tutu,
Well you know I checked in, but by phone (since
my lyme brain couldn't remember my password when
I was traveling)as I was
coming and going near you! Should have made an
appt to see Dr C for the 5 of us. Didn't know
how close I would be. You know I am a Dr Shopper!
But I did eat
breakfast at the McDonald's by his office. Does
that count? Is
that anything like staying at a Holiday Inn
Express?
4 kids to CT to see Dr J
then IL to see the not so LLMD
then 1 kid and myself to Washington State to see an awesome Dr- we'll be going there again. Very beautiful!
Gosh! No wonder I am worn out!
Good to see everyone!
Lyme x 9
Posted by lymie tony z (Member # 5130) on :
Just checking in per request TUTU...
Feeling better now that diabetes2 is under more control...
Yeah, loveyonlyme is around...I just saw her earlier this year at conference in Tampa.
Actually met her and her hubby for first time!
Nice folks...............zman
Posted by Lymetoo (Member # 743) on :
Hey LymeX9, I can't believe you missed out on Dr C....maybe next time! No, I don't think eating at McDonald's counts!
Hey Tony....I'm glad you're feeling better.. Watch that diet, OK??
Posted by HEATHERKISS (Member # 6789) on :
Still not 100%. Still go through rough patches.
Have had a headache for a few days. You know the headache that even hurts in your teeth and jaw.
My periods are now irregular and I am worried that I might be pregnant or peri menapuasel. Going to the doctor on the 13th. This wednesday.
Love you all,
Posted by Lymetoo (Member # 743) on :
Hang in there, Missy Heather!! Keep us posted, OK? Posted by Geneal (Member # 10375) on :
Good morning Tutu,
I'm here and hoping for a "good day" on Christmas, although I have my monthly herx at or around the 24th of each month.
Been reading all of the Lyme Christmas carols, was laughing soooo hard. I wish I was as creative as you all are.
Will see LLMD for 2nd visit on the 20th. Hope to start some more aggressive treatment. Also hope to hear if we can begin to build a new house on that date as well.
I am so ready to get at least part of my life back. Having a real house to have my children in would be a big part of it.
Keeping all of you in my thoughts and prayers. Geneal
Posted by KarenB (Member # 10510) on :
Hi Lymetoo,
It was good talking to you on the phone.
Sometimes I think I'm going crazy.
I try to check in once a day, but with 3 kids sometimes it's hard. Also, I haven't been able to see so good lately.
Love and Happy Holidays to All
Karen
Posted by Lymetoo (Member # 743) on :
Geneal....I hope that second visit goes well....and "may your Christmas herx be LIGHT!" [set that to music]
Karen...Yes, it was great talking to you. You're not going crazy! I'll let you know when you sound crazy, OK?! Otherwise, DON'T WORRY~!!
Take it one day at a time.
Posted by Caryn (Member # 366) on :
just a ghost.
my family doesn't even get much of me.
and i did try.
try hard to get better. i was young, strong, i was going to get better, and even maybe have another child. a child my mother in law could not steal from me and ruin. before my eyes.
try to tell the world.
jefferson airplane "get together"
"everybody get together try to help one onther right now, Right Now"
and like they haven't been hit by this too.
anyway. really hurts is friend who could have helped us, not $$$, but personally, abandoned us because i got so sick. could have helped us with the family stuff, etc...
abandoned us. but did help them big time. Carnagie! at last! but i was so attacked on thier website. by "idealistic" people. but the private emails. so different than the public people.
the ones who followed them emailing me about relatives who had lyme and died from a "stroke". had "floppy babies" like my congenital lyme son, but, wife ultimately decided not to test child for lyme, as he might be scared as they had close friends who got really messed up by lyme. thier son's future.
so much more. and the attacks! unreal and unanticipated. and you do have to question thier motives.
and a friend. a few yrs back. was not allowed to utter the "L" word. the attacks from all i was getting. he tied wieghts on himself and jumped into the Delaware. now even my husband does know that not only does he have lyme (pos pcr), but so did our friend. goodbye scott.
i'm just a ghost
Posted by leogrl54 (Member # 10770) on :
caryn
i'me fairly new. been dx since 4-06.
sooo sorry to hear how you are doing.
if this is where you get your support, keep coming back. i've been so happy with the support and info found here. everyone really understands. Posted by Lymetoo (Member # 743) on :
Hi Caryn! Good to hear from you again! I'm sorry things have not been going well for you and your family. Hang in there, and continue to seek help.
Welcome, leogrl! Posted by Cassie (Member # 2106) on :
Hi Lymetoo, I am here in my doggie house
You are the best, always asking how everyone is and responding in a flash
Your friend, Cassie
Posted by bartonella blues (Member # 9042) on :
Greetings from bartonella blue.Me too have the blahs,the blues and a dragging kind of a meloncholia.... Onward we all churn in this green soup of the lyme... My best greetings, from b.b.
Posted by Vermont_Lymie (Member # 9780) on :
Hi LymeToo:
Checking in per request...
I am hanging on my fingernails this month. Had over two weeks of something like cholera (more likely c.difficile), and had to stop ABX! I am scared. My symptoms started coming back after about 10 days off abx. did the last four months of treatment not count for anything?? Sorry to sound pessimistic...
On a better note, I finally got Buhner's book and read it in one sitting. Great information, and after just a few days of following his protocol, feeling better already! Could all this be happening so fast??
Take care Posted by Nebula2005 (Member # 8244) on :
tired, in pain, lost most of my friends,need a doctor, don't like the person I've become.
Posted by Lymetoo (Member # 743) on :
Hi Bartonella and Vermont. Hang in there. Things will get better, step by step. Keep the faith!!
Posted by Lymetoo (Member # 743) on :
Nebula....have you been treated for babs?? I hope you find the answer SOON!! Posted by sometimesdilly (Member # 9982) on :
not totally new here, not an elder either by any means. maybe there is still hope.
4 1/2 years of primarily neurological lyme (and likely babs, 7 months of tx later- no sustained progress of any kind, and a son of 4 years old infected in utero whose symptoms are multiplying.
enough of the oral abx, one kind after another after another after another.
bring on the iv's!! i was scared of them for a long time, not anymore. need some progress that doesn't evaporate for no apparent reason at all to give me as sense of hope so i can keep on fighting as hard as i need to.
i am more and more in awe of those who have battled lyme/TBD for years on end. i am one tough cookie, but man oh man, i had NOOO idea how difficult this path would be.
thanks to you and the other elders here, Lymetoo, I know it is possible to prevail. my gratitude for that is enormous-
hugs- dilly
Posted by helen65 (Member # 2962) on :
I,m here, lol maybe in flesh brain on vacation. Helen65
Posted by concerned mother (Member # 8128) on :
Here too! Been busy with holidays and such!
Amy
Posted by mbroderick (Member # 5220) on :
I'm still alive and kicking! In fact, my feet feel absolutely normal for the first time in years!!! I might just take that leap off abx in a month or 2. Very busy with school this year and trying not to get overwhelmed with it all. Jordan is completely well and a full-time college student!!! Nothing could have made me happier...
Posted by stymielymie (Member # 10044) on :
open wide
docdave
Posted by szona67 (Member # 9746) on :
get the "official" word on 1/5/07 looks like cancer. Posted by Loribelle (Member # 6293) on :
Loribelle here, checking in...
Posted by chroniccosmic (Member # 7789) on :
I'm here, mostly lurking too. Been off abx since last May, doing mostly treatment for babs which is a bugger to get rid of.
So far, so good. Feel better than I have in years but have more to go. Co infections treatment should never be underestimated!
For New Years I want to thank everyone for their insight, research, input and all around good humor on this site.
Posted by mag (Member # 8920) on :
hi lyme tu checking in
i am still alive - a roller coaster up and down with getting better. hallucinated on the babesia meds so i stopped after two doses
Got so sick with the Z max with 1 dose - I think the herbs are much gentler
so i am doing the herbs- I thank God that I can work part time - and am able to enjoy the remainder of my brain cells !!!
wishes and prayer for all of us to get better
mags
Posted by Lymetoo (Member # 743) on :
Time for more to check in!!!! Posted by jggrl (Member # 9470) on :
hilo a little late in the check-in process. I'm here, I just haven't been on here in a while! Sorry about that....I'll try to come back more often Posted by daphne (Member # 2340) on :
hi, i have been around for the past several days, i am trying to check in more often, things have just been so nuts around here. good to be back!
Posted by trueblue (Member # 7348) on :
by the way... pmerv (Phyllis) is here on another thread.
oh, yeah, I'm here too, in case you missed me, toots. Posted by Limping Lily (Member # 5099) on :
checking in- have been doing better w/o abx;been doing a lot of herbs & nutrients using Buehner's protocols- does anyone else do them?sorry to hear that so many of you are not well.have also been using aminos and a product called Cellfood; don't know if that is responsible for my increased energy, but i feel like my body is being cleansed and replenished.a happy note: my youngest grandson just turned 3, and i had a great conversation with him on the phone the other day-little gems out of the mouths of babes! everyone hang in there,ok?
Posted by Lymetoo (Member # 743) on :
Thanks for checking in folks!!
Lily, enjoy those kids! I love the little graphic you posted! Posted by hatsnscarfs (Member # 6562) on :
Hi All, hats here checking in to say I'm on vacation in the Rockies skiing and I feel great. A huge difference from a year ago when skiing totally wiped me out and horrible nerve pain went through my arms & shoulders, my feet & knees were numb and I got lost all the time.
I have a couple of rough hours in the morning, herxing after I take tetracycline. I get through it though and then have a great day.
I drink lots of detox tea, soak in Epsom salts and eat really healthy. The altitude is not affecting me the way it used to.
Wishing I could be at Dr. Js hearing tomorrow - I've been at all the others. hats
Posted by cactus (Member # 7347) on :
My first time checking in!
Feeling prickly today - but happy to have a Lyme family out there. You guys rock!
Cactus
Posted by Lymetoo (Member # 743) on :
Welcome back, hats and cactus!
That's so amazing that you're able to ski, hats!!
Posted by hatsnscarfs (Member # 6562) on :
Yes, it is amazing to be out skiing and feeling great.
In 2005 I could ski but my feet and knees would go numb and my muscles would twitch. My shoulders and arms hurt too much to use my poles properly. After skiing I felt like I'd been run over by a truck. I was foggy and got lost a lot.
In March 2004 I went skiing and was in extreme pain. I could not use my poles at all and the nerve pain in my arms required codeine after skiing. I was in major brainfog and had great difficulty getting my boots on & off becuase my hands hurt so much and my arms were weak.
In December 2004 I could not lift my skis. In fact I could barely lift my arms and was exhausted after walking across a room.
Amazing what a difference an LLMD has made! hats
Posted by susan2health (Member # 10446) on :
My computer was offline for a few days, and I missed y'all.
![[Razz]](tongue.gif)
![[hi]](graemlins/hi.gif)
![[Big Grin]](biggrin.gif)
![[spinning smile]](graemlins/spinsmile.gif)
![[bow]](graemlins/bow.gif)
"smart people" checked in immediately! ![[group hug]](graemlins/grouphug.gif)
![[Smile]](smile.gif)
![[Wink]](wink.gif)
![[sleepy]](graemlins/sleepy.gif)
![[Eek!]](eek.gif)
![[Cool]](cool.gif)
![[bonk]](graemlins/bonk.gif)
![[tsk]](graemlins/tsk.gif)
![[Roll Eyes]](rolleyes.gif)
![[confused]](graemlins/confused.gif)
![[dizzy]](graemlins/dizzy.gif)
OwOWooWOOOOOoooo-cluck-cluck-cluckeRoooowowooooo!
![[woohoo]](graemlins/woohoo.gif)
!!!
![[Frown]](frown.gif)
![[kiss]](graemlins/kissing.gif)
![[lol]](graemlins/lol.gif)