I've been wandering the same especially on Tincup! Glad you posted this... Bettyg
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
here but going back to bed
(you know that babs thing that's not a herx...?)
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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posted
Miss TuTu, I'm mighty proud - I made page 1.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Shazzy here, ready to send the first assignment on the Lyme digital library project to my advisor tomorrow. It is a 2-page paper describing why I chose Lyme disease as a subject for a digital library.
The short answer is: because we need one!
Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
here
but sick with strep. So barely here.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
I'm here. In bed with the computer next to my bed...keyboard on my lap.
Rosie (arf) next to me.
Hoping Monica will have a computer next to her bed soon so she can be on it whenever she needs.
KAM
Posts: 89 | From AZ | Registered: Mar 2006
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hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
hshbmom here too. Thanks for the being here. Looks like I'll be here a little while.
I was encouraged today when I went to a new pharmacy. They were actually interested in hearing about LD and seemed to be Lyme friendly, and maybe Lyme literate. They wanted me to keep them updated. They knew I had to go out of town/state to get a proper diagnosis.
Maybe the pharmacy students are getting better Lyme education than most medical students.
Nancy Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
Here
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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posted
I'm glad to be here...whenever I can DRAG my feet from my bedroom to my desk/computer room!
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I'm here. Tired, been spending the whole day trying to get work done. But not concentrating again today. I don't think it helps that I no longer enjoy my job.
I just popped some B-12, and next step is trying tea.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
I'm here. Just put myself back on my meds after a 3 day break. Hope the rash that was starting doesn't come back. I didn't even tell my LLMD, 'cuz he would take me off them for a month - and I just want to get on with things! How long does the "pre full moon" insomnia last, anyway?
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I'm here, but mostly lurking.. And still of abx. Thursday marks 1yr and 10mos no abx... and feeling great!!
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
like the song Hotel california:
"you can check in any time you like, but you can never leave"
not really sure how this pertains but it does contain the word "check in"
Still tired and nauseated but considering there are worse things in life.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Just stopping by
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Great news Julie! Great to get a great check in here.
I'm still tired.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
I'm here! I was a non-contributor for quite some time but always checked up on you all. Nut
Posts: 109 | From MN | Registered: Apr 2005
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Tutu. I am here, but you know that..Where are more of the moldie oldies..I do not know what I would have done without them when I was desperate for help..
Well I still am desperate for help...If they do not post, but do read this..Bless all of you..and to you Tutu for being here for all of us..hugs.lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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posted
I am here, too. Having a bad pain night after walking around the New Indian museum in Washington DC today, (but at least I can now). Still on 2 antibiotics after 1 1/2 years. Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
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posted
Here now...was away from home [and a computer] for a month welcoming a new granddaughter born July 20th...
Still on abx...26 months and counting. Next LLMD visit in 10 days, so, we'll see where we go from here.
Still fighting fatigue, insomnia and [prob] babs symtoms. Lotsa vision problems which trigger the headaches or visa-versa. And does the memory ever recover???
All in all...I can definately say I'm much, much better than I have been over the past year and a half...there is a light!!!!
-------------------- "Life is mostly froth and bubble; Two things stand like stone; Kindness in another's trouble; And courage in your own." TTFN -laserred- Posts: 493 | From MidWest NorthWoods | Registered: Jan 2005
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posted
tutu, I am making progress, just very slowly. Have had Lyme at least 13 years, so its to be expected. The best part is that the daily headaches and sore neck and shoulder muscles are much better.
Now, if only the monthly migraines would go!Continue with moderate fatigue and mod. or worse joint/ligament pain, brain fog. Am on Ceftin and either Levaquin or mino. Thanks for asking! Hugs, Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
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Iam still here . spent Sunday night in the (duck hotel) . Boy I hav'nt herxed like this since the first days on doxy 6 years ago. I scared my wife enough that she stayed with me yesterday. And Nan is an old pro at my herxing. I am feeling a bit better the fever has broke and I have had my fluids replaced( nothing like a oil change to make a new man outa'ya).
Hope all are doing good. Buggy (aka appleseed)
Posts: 96 | From wi | Registered: Jan 2003
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~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Thanks for looking after me!
At least I am not getting worse. I am off all abx and on cat's claw and beaucoup supplements to build up my immune system. Have been following South Beach diet and have lost weight. Trying to keep flexible.
I'm seeing an ortho about my knee (severe arthritis) tomorrow, Thursday back to new (for me) LLMD and Friday having an MRI of my brain.
Will take time to undo the damage done by 14 months of abx with previous LLMD. Walked into his office with a cane. 14 months later was using a wheel chair. He kept telling me it was a herx!
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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posted
hats here, just back from Shinglesville, checking in. Just finished 2nd year of abx. Getting better!. Finally able to exercise. Still avoiding sun. hatsnscarfs
Posts: 956 | From MA | Registered: Nov 2004
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi all,
Checking in! Had my IV removed first week in June and am on orals.
Having some circulation problems, pain and redness in fingertips and toes. And some sleeping problems.
Taking orals 3 days a week, two weeks out of the month. Hopefully it will clear up my residual lyme.
Also am seeing a naturalpath on the 22nd. Will go the alternative medicine route next.
I'll let you all know how that turns out.
Sorry I haven't posted in awhile. Computer problems and lots of family obligations.
But am so glad to see everyone's still here and checking in. This was a great idea!!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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Endoscopy procedure went fine last Friday. Results not so good -- gastritis and duodentitis not unexpected, but the gastric ulcers were an unpleasant surprise.
Sent biopsies to MDL for Lyme and coinfection testing -- of course the general surgeon sent 2 less specimans than we requested -- hope there is enough tissue to at least do the tests. Would really love it if something was positive to help silence the doubters.
Been off all Lyme and babs meds for about 2 months now and had thought stomach was healing with Carafate and some herbs.
Have an appointment with a new PCP (hopefully) this Thursday -- only 1 1/2 hours away instead of 4 1/2 hours so hope that works out.
Also next Monday will be seeing a new (old) chirpractor -- had seen him 5 years ago. Local one of no use so have to drive an hour to see this one. Had a consult, but no adjustment last Thursday.
Doc is pretty sure hubby's shoulder is slightly out of socket and that is what is causing all the pain and myoclonus, especially when he rolls over in bed at night. It only took a month to figure this out!!! This actually happened to him once before over 5 years ago when he was playing putt-putt golf -- this chiro was able to help him then so we have our fingers crossed.
Saw a lawyer last week regarding hubby's insurance premium rating issues -- he does not have congenital hemophilia as was reported as a diagnosis code. I guess no news is bad news and they won't take the case. Probably didn't think there was enough money involved ($12,000 in overcharges for the last 3 years is real money as far as we are concerned). Lawyer seemed more interested in finding a doc to sue than taking on the insurance company.
Hubby and I are both pretty frustrated, irritated and just plain mad and angry at the world in general right now. The heat has really been hard on us both. Oh well, hubby is another year older and we are deeper in debt with no end in sight.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I'm re-checking in 5 hours after taking my first dose of zith. Argh! So much pain inside my joints. Cracking joints. Insomnia. When I took the zith I was pain free and exhausted.
I am not a happy person right now. I have a really hard work day ahead of me, and had to email my boss I'd be late. It's 2:30 am and I don't see myself in the office in 6.5 hours.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Still here.....still no treatment! Was cut off by insurance company 2 years ago. Symptoms persist, just living with it.
Posts: 195 | From NJ | Registered: Nov 2003
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here checking in from the land of Zepron. Feeling like I am riding the Lyme, Babs Roller coaster. I am up I am down. I am all around. Someone stop this ride I want to get off.
Blessings & Healing to you all my Lymie Brothers & Sisters.
Love & Light Posts: 188 | From NM | Registered: Feb 2006
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