I was recently diagnosed as having Lyme after being told for 20 years that I had MS. I'm having a hard time believing this..anyone else been misdiagnosed this way?
Posted by Lymetoo (Member # 743) on :
Oh yes! Several people on this board were misdxd with MS. The symptoms can be very similar. Now you have hope of recovering!!! Isn't that great!!
I hope you have a good LLMD....IF not, go to Seeking a Doctor here at Lymenet.
In the meantime, why don't you post this in Medical, where you will get many more responses?
PS...Treepatrol's links contain other links about MS and lyme.
How did you come to find out it was Lyme??
Posted by Kawai (Member # 10005) on :
Thanks Lymetoo.
I did see a specialist in Lyme Disease and after the Western Blot and Medametrix, he's pretty sure it's Lyme and not MS. Yes, it is great news, but after 20 years I think I've got some catching up to do--but I'll take this diagnosis over MS any day!
Posted by Lymetoo (Member # 743) on :
That's awesome! I was msdxd with FMS for 25 yrs. I've had Lyme since I was 8 yrs old and I'm now 55. After 4+ yrs of abx I'm doing wonderful. I've been completely off abx for one year now.
Posted by SAK (Member # 7387) on :
Yup, I understand. MS is a relatively common misdiagnosis from what I read. Do a search on the web.
I had my second or third tick bite and for 18 years I was told it was MS.
I figured it out myself and got tested a little over a year ago...finally! It's great that you had someone to help.
It's Lyme for me too. So many years have passed while living under this MS disguise. Now, there's hope!
