LymeNet Flash: MS to Lyme?

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»	LymeNet Flash » Questions and Discussion » General Support » MS to Lyme?

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Author

Topic: MS to Lyme?

Kawai
Member
Member # 10005

posted

I was recently diagnosed as having Lyme after being told for 20 years that I had MS. I'm having a hard time believing this..anyone else been misdiagnosed this way?

Posts: 46 | From Wisconsin | Registered: Sep 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Oh yes! Several people on this board were misdxd with MS. The symptoms can be very similar. Now you have hope of recovering!!! Isn't that great!!

I hope you have a good LLMD....IF not, go to Seeking a Doctor here at Lymenet.

In the meantime, why don't you post this in Medical, where you will get many more responses?

MS and Lyme
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042877

Treepatrol's links
http://flash.lymenet.org/ubb/Forum5/HTML/000569.html

Tincup's Links for new members
http://flash.lymenet.org/ubb/Forum1/HTML/009342.html

Dr. B's Guidelines
http://www.ilads.org/files/burrascano_0905.pdf
http://www.ilads.org/burrascano_1102.htm

Western Blot explanation:
http://tinyurl.com/ffn3x

When to Suspect Lyme Disease
http://tinyurl.com/lx2pz

The cause and spread of Lyme
http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info:
http://www.ILADS.org/

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

Matthew Goss's website:
http://www.anapsid.org/lyme/matthewgoss/

PS...Treepatrol's links contain other links about MS and lyme.

How did you come to find out it was Lyme??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Kawai
Member
Member # 10005

posted

Thanks Lymetoo.

I did see a specialist in Lyme Disease and after the Western Blot and Medametrix, he's pretty sure it's Lyme and not MS. Yes, it is great news, but after 20 years I think I've got some catching up to do--but I'll take this diagnosis over MS any day!

Posts: 46 | From Wisconsin | Registered: Sep 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

That's awesome! I was msdxd with FMS for 25 yrs. I've had Lyme since I was 8 yrs old and I'm now 55. After 4+ yrs of abx I'm doing wonderful. I've been completely off abx for one year now.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

SAK
LymeNet Contributor
Member # 7387

posted

Yup, I understand. MS is a relatively common misdiagnosis from what I read. Do a search on the web.

I had my second or third tick bite and for 18 years I was told it was MS.

I figured it out myself and got tested a little over a year ago...finally! It's great that you had someone to help.

It's Lyme for me too. So many years have passed while living under this MS disguise. Now, there's hope!

--------------------
Be well,
SAK

Posts: 371 | From Up North | Registered: May 2005 | IP: Logged |

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