As many of you may know, our Trails has undergone a tremendous amount of surgical procedure. There have been numerous complications involved, one after another, unending it seems at times.
She is once again in the hospital tonight, and I would like to ask for your help.
Without giving too much detail, we are just trying to hang on for the next procedure on Wednesday. The pain has been uncontrollable despite all efforts.
Any and all well wishes, prayers, good thoughts, and other strength that you can send this way would so be appreciated right now.
Thank you so very much in advance, Melanie
Posted by cantgiveupyet (Member # 8165) on :
Thoughts and prayers are with you Trails.
You hang in there, and i hope the dr's can releive your pain.
I was just thinking of you today and then I saw this post.
i will save you a spot on the river.....
Posted by Lymetoo (Member # 743) on :
Oh man. I'm so sorry to hear this!!
Will pray for her!!
Give her my love.
Posted by Jill E. (Member # 9121) on :
I am so sad to read this!
Stay strong, Trails! You are in my prayers.
Jill
Posted by seibertneurolyme (Member # 6416) on :
Thinking of you and wishing you the best of outcomes.
Bea Seibert
Posted by trueblue (Member # 7348) on :
All well wishes heading out from here.
My I ask if she is staying in the hospital until the thing on wednesday and being kept comfortably numb-er than before, until then?
My thoughts and prayers are with you all.
Posted by Geneal (Member # 10375) on :
Sending prayers and positive thoughts for Trails.
I am so sorry to hear about her unending pain.
Hugs,
Geneal
Posted by AZURE WISH (Member # 804) on :
Sending heaps of healing thoughts to trails Posted by stymielymie (Member # 10044) on :
Mi-sheberakh avoteinu v'imoteinu, Avraham v'Sarah, Yitzhak v'Rivkah, Ya'akov, Rachel v'Leah hu y'varekh et (TRAILS) v'yavi aleihem refuat hanefesh u'refuat haguf yachad im kol cholei amo Yisrael. Barukh atah Hashem, rofeh ha'cholim.
May the One who was a source of blessing for our ancestors, bring blessings of healing upon (TRAILS), a healing of body and a healing of spirit. May those in whose care they are entrusted be gifted with wisdom and skill, and those who surround them be gifted with love and trust, openness and support in their care. And may they be healed along with all those who are in need. Blessed are You, Source of healing.
docdave old jewish prayer for healing
[ 31. March 2007, 05:26 PM: Message edited by: stymielymie ]
Posted by Melanie Reber (Member # 3707) on :
Thank you each so very much for your replies. They are more meaningful than you will ever know.
Out of the last 13 days, I have spent 9 with Trails and her partner doing what I can to help. We are each exhausted and depleted, so your combined strength, prayers and concern are sustaining us right now.
Last night, when I spoke with her again, the oncology unit in the hospital was trying so hard to find new medication that would help with the continuous pain that has been unrelenting for over 4 weeks now. She did sound better overall then, but today's plans are still not finalized.
I have offered a few times for her to stay here with me until the next procedure on Wednesday. That way, she will not have to make the long drive home just to turn around on Tuesday to come back again, and someone can be with her at all times. If the hospital will not keep her, I still think this is the best option, but of course, it is up to her.
I'll try to keep you updated as I am able.
Azure, True, Geneal, Bea, Jill, Toots and Can't, Thank you each for your steadfast support and well wishes. I will be certain to pass each of them on.
Doc, That was particularly beautiful, and reading it brought a new wave of tears. Thank you for your thoughtfulness.
To those of you behind the scenes brainstorming, researching, making calls, sending emails, prayers and love to help us, words just are so inadequate to truly express my deepest appreciation
Much love, M
Posted by Michelle M (Member # 7200) on :
Trailsey, I thought we were done with this hospital busyness. I'm hatin to hear this.
Wherever you are, I'm sendin a big squeezy hug right now.
(I'll be gentle 'cause you're one skinny toothpick!)
Be better soon.
Love,
Michelle
Posted by kam (Member # 3410) on :
Trails,
You are one brave woman.
Katherine
Posted by timaca (Member # 6911) on :
Trails~ Oh my gosh...you are getting the worst of the worst. You are in my thoughts and prayers.
Anyone have an address of the hospital that Trails is at? Can we send her a card there?? We she be staying at the same hospital after her surgery on Wednesday? Or is it an outpatient surgery?
Timaca
Posted by Carol in PA (Member # 5338) on :
Oh, I'm so sorry to hear this.
Trails, I had wondered why we weren't seeing you around LymeNet, and why you weren't showing up at chat on Saturday evenings.
I had so hoped that this last surgery would be the one that set everything right. I am thinking of you and praying for you.
Carol
Posted by Vermont_Lymie (Member # 9780) on :
Trails, you are in my thoughts. I hope that this painful period passes very soon. Posted by Andie333 (Member # 7370) on :
Oh, Trails...
Things after that last surgery sounded so hopeful...so I was really sad to log on this morning and read Melanie's message about you.
Hopefully, they'll find something soon that can relieve the pain you're in.
I'm so glad you're surrounded by so much love and care. Just know we're all here too, rooting for you and sending you hugs and prayers!
You take care, Trails and hurry back to us!
Andie
Posted by AlisonP (Member # 7771) on :
Trails,
My thoughts and prayers are with you! It was lovely meeting you in Mountain View at the Under Our Skin preview, and I am so bummed that you have had to go through all this torture. I'll continue to think about you lots and send you buckets of positive energy.
Alison
Posted by Melanie Reber (Member # 3707) on :
Well, they discharged her from the hospital, and they are on their way here...
Could really use some extra prayers about now.
Thanks so sincerely, M
Posted by stymielymie (Member # 10044) on :
AN EVENING PRAYER: (excerpts from the traditional ritual)
Praised are You, God, our God, Ruler of the universe, who closes my eyes in sleep, my eyelids in slumber.
May it be Your will, God, My God and the God of my ancestors, Who Closes My Eyes...: A Blessing at Bedtime
to lie me down in peace and then to raise me up in peace.
Let no disturbing thoughts upset me, no evil dreams nor troubling fantasies.
May my bed be complete and whole in Your sight.
Grant me light so that I do not sleep the sleep of death, for it is You who illumines and enlightens.
Praised are You, God, whose majesty gives light to the universe.
docdave Posted by MagicAcorn (Member # 8786) on :
Please add my prayers too!
Posted by lymemomtooo (Member # 5396) on :
Trails, I am so sorry you are going thru this. I had hoped that the last of it was over and you would have some healing.
I am sending lots of hugs your way. Be strong. lmt
Posted by savebabe (Member # 9847) on :
Get better soon! We are all thinking about your. Posted by Lymetoo (Member # 743) on :
Love you, trails!! Posted by kam (Member # 3410) on :
Praying for a speedy recovery and smooth sailing while you recover.
Posted by Cobweb (Member # 10053) on :
"I know why the caged bird sings, on its darkest day it believes in Spring" Maya Angelou
There's daffodills dancing around here-a sure sign that Spring is here. BELIEVE
Love and Prayers, Carol
Posted by TNJanet (Member # 10031) on :
Dearest Trails,
I am sending you all the healing light I can muster and extra for your partner and sweet Melanie.
This is TOO MUCH, just TOO MUCH.....Please BELIEVE you are a child of God who in His mercy can heal all hurt, all pain....surrender into His love.
Oh Trailsie.....I am embracing you where I am and hope you feel the love I am sending to you. Blessings always, Janet
Posted by 5dana8 (Member # 7935) on :
Big hugs
& prayers for all of Posted by treepatrol (Member # 4117) on :
God give you strength to overcome this trial Posted by 5dana8 (Member # 7935) on :
praying & hoping today & this week will bring trails some relief
hang in there Dana
Posted by dontlikeliver (Member # 4749) on :
Get better soon Trails
DLL Posted by lymeout (Member # 8045) on :
Trails, My prayer is that God will hold you especially close and carry you through this. I will be thinking of you, praying for you and waiting to hear good results. Cindy
Posted by Nebula2005 (Member # 8244) on :
Here's to only "happy trails", Trails.
Posted by hopeful123 (Member # 3244) on :
i've just learned that you are not on the mend after the last surgery. i can't tell you how much sorrow i feel that you are AGAIN going through way too much pain. please know you are in my prayers and thoughts and that you ARE surrounded by much love and light.
Posted by randibear (Member # 11290) on :
Trails, honey, big kisses and smoochies from Texas.
Don't exactly know what you are going through but just know that I'm thinking and praying for ya and hoping you get better real soon.
Remember, God never gives us more than we can handle. He must love you very much!!!
Posted by Robin123 (Member # 9197) on :
So sorry to read this -- was hoping the last surgery had worked. Would be helpful if they can also figure out some way to reduce her pain level.
Posted by cactus (Member # 7347) on :
Thinking of you, Trails, and sending lots of good energy your way.
55515, Cactus
Posted by achey (Member # 6284) on :
Trails I'll just keep praying for you each day! Posted by Ladylee210 (Member # 9945) on :
Any update on Trails?
I have been reading along and am sending prayers and wishes as well.
Posted by Andie333 (Member # 7370) on :
Up for any news at all...please...
Andie
Posted by Melanie Reber (Member # 3707) on :
Dearest Friends,
Please forgive me for taking so long to get back to you.
Thank you each so very much for your continued well wishes and words of support and strength...they are much appreciated as always.
I am afraid that the Wednesday procedure did not go as expected, and Trails ended up back in another hospital afterwards.
She and her partner headed back home Thursday morning, and I have had a few emails from her since. Sadly, the pain is still there and is still excruciating, but somehow, the Wednesday experience allowed our Trails to find her fighting spirit once again.
She is making plans for other possible procedures that may help, so, the quest continues.
I am hoping that she will come on here to give you updates and/or whatever details she may want to share soon. Until then, may I ask that you continue to hold her close in your thoughts and prayers?
With much love and gratitude, Melanie
Posted by kam (Member # 3410) on :
Thanks for the update. Not sure what is going on. But, just hoping and praying the pain will be healed soon.
Posted by hopeful123 (Member # 3244) on :
me, too! hope the pain will end soon and she will be able TO LIVE.
Posted by Andie333 (Member # 7370) on :
up for any more information about trails and to convey my thoughts!
Posted by 5dana8 (Member # 7935) on :
I am so sorry to hear trails is having such a horrible time
Extra prayers Hopes & Hugs To you Trails & your Partner & Mel Posted by Robin123 (Member # 9197) on :
Sorry to hear -- I hope medical folks somewhere can help figure out how to provide more comfort/solutions.
Posted by catalysT (Member # 10786) on :
I hope you get better soon Trails. My thoughts and prayers are with you.
[ 15. April 2007, 07:48 AM: Message edited by: catalysT ]
Posted by Geneal (Member # 10375) on :
Sending my thoughts and prayers to you Trails.
Hang in there.
Hugs,
Geneal
Posted by MagicAcorn (Member # 8786) on :
I hope Trails is feeling better soon.
Posted by Michelle M (Member # 7200) on :
Up.
Long time, no hear.
Michelle
Posted by trails (Member # 1620) on :
How can I express my thoughts and gratitude to every single one of you? I can not. Each time I have visited and looked at all the prayers and thoughts and well wishes I cry my little eyes out.
I have not wanted to reply because I continue to not do well, and I really dont like disappointing everyone. It gets old saying things are bad--and no one knows this better than you guys. especially those who have struggled for so long.
In a nutshell---that's for you acorn---I have some sort of nerve damage that has occurred in my genitofemoral nerve. This pain has decreased some --maybe due to lyrica--which is like neurontin on viagra.
But whatever ground I gained by not moaning and crying all day with the nerve pain, I have lost due to abdominal adhesions. I am now having intermitten bowel obstruction from the adhesions. I have had this previously. I am no stragner to the symptoms of serious adhesions. It is aweful.
I will need more surgery with an out-of-network (read: BIG BUCKS AGAIN) surgeon who does a good job getting the adhesions down. but if any of you know about this you know the cure is also the cause---surgery is the only way to deal with adhesions and it creates more.
My ureteral problem is "fixed" for now. so that is a good news. But even that is a mixed blessing--because since it is fixed, but my pain is new and NOT fixed, I fall through the cracks and no doc can help me.
That's the update. Sorry it is so depressing.
I am so in awe at the care, compassion and loving kindness shown towards me here. Please know that it does not go un-noticed.
my best to everyone, trails
Posted by andie-ws (Member # 6116) on :
Trails,
You are such a brave, smart compassionate person. When I read what was happening, I was stunned. I'm so sorry you are hurting!!!
I just want you to know that you are in our thoughts and big prayers are being sent up on your behalf to bring you great healing, energy and peace.
Blessings, Andie, Julie & JC
Posted by Cobweb (Member # 10053) on :
Bummer-sorry to hear of the complications. Glad you brought us up to date though- kind of leaves me speechless.
I went on a retreat this past weekend and heard the song by Josh Grobin called "You are Loved (Don't Give Up)" I play it over and over.
Anybody else have inspirational songs to suggest for Trails?
Carol
Posted by timaca (Member # 6911) on :
Trails~ Thanks so much for taking the time to update us. You have certainly been in my thoughts.
All I can say is "ugh". I'd give you a big hug right now, but my shoulder hurts so badly (lyme) that I can't move it much at all. (Note: I will NOT get a steroid shot into my shoulder!)
Big hugs to you my friend....I will pray that things improve greatly for you.
Timaca Posted by kam (Member # 3410) on :
Thanks for the update trails. I have been checking this site to see how you are doing.
DAg gum it. Sigh.
I'll be talking to the big man upstairs.
For some reason ....this time next year keeps coming to my mind...as if it will be fine and a thing of the past.
A year is a long wait though...I vote for this week.
Posted by hopeful123 (Member # 3244) on :
trails,
i am hoping that someday soon your WILL have a normal day, free from that kind of pain and distress.
you continue to be in my prayers
Posted by bettyg (Member # 6147) on :
trails, i've been off the board since 3-25 due to my hip replacement surgery, and just starting today to get back on here limited!
so sorry to read of your recent setbacks and continued MORE surgeries to come for all the adhesions!
i read somewhere in melanie's post that you were on the cancer floor; was that due to your EXTREME PAIN, and they are used to dealing w/folks with this unrelenting pain? hope it is NOT cancer too!
May God provide you comfort so this pain will go away as quickly as it arrived. Peace to you, your partner, and melanie for her updates on you. Posted by lymewreck36 (Member # 4395) on :
Dear Trails. Just found your post this morning. I am also having pain from surgery that won't heal. I can sympathize. The constant pain and treatments for the cause of pain, which cause more pain, and then in the end don't work. Yuk. Will it ever end.
I was also on the cancer wing after my hysterectomy because they couldn't get pain under control. I also have another surgery to go through on May 11th.
But these things don't mean I know exactly what you are going through. YOur suffering sounds so endless it breaks my heart, and even more so because I have a similar situation.
I can't say how sorry I am you are going through this. You have always been a kind voice on the lymenet, and I hate it that you are hurting this way.
I'll add you into my prayers, and wait for a new message saying you are doing better.
You can PM me anytime and not worry about saying things aren't going well, as much as you want. It won't get old for me, no matter how long it goes on.
Mary
Posted by Michelle M (Member # 7200) on :
My dear Trailsey,
It's SO good to hear from you, be it good or bad news -- just ANY news will do!!!
The length of time between posts does NOT correlate to the frequency of my thoughts and prayers for you.
Hang on and know you are loved. I know you'll be making beautiful things again one day!
Michelle
Posted by dontlikeliver (Member # 4749) on :
Glad to see you back Trails. You've been missed. Sorry to hear things are still such a struggle.
DLL
Posted by Katcon (Member # 9812) on :
Sending healing prayers your way.
Katcon
Posted by MADDOG (Member # 18) on :
AAAAAAAAAAAAAAAAAOOOOOOOOOOOOOOOOOOOOOOO!!!!
MADDOG
Posted by kam (Member # 3410) on :
LOL maddog...just read it is a full moon too!
Posted by painted turtle (Member # 7801) on :
(((((((Trails)))))))
Posted by Geneal (Member # 10375) on :
Dear Trails,
I sure hope you are doing okay....
Continue to send you healing thoughts and prayers.
You remain in my thoughts.
Hugs,
Geneal
Posted by MagicAcorn (Member # 8786) on :
How are you doing?
I hope you are getting better. Miss you and hope you are back here joining us real soon.
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