Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Good evening all,
As many of you may know, our Trails has undergone a tremendous amount of surgical procedure. There have been numerous complications involved, one after another, unending it seems at times.
She is once again in the hospital tonight, and I would like to ask for your help.
Without giving too much detail, we are just trying to hang on for the next procedure on Wednesday. The pain has been uncontrollable despite all efforts.
Any and all well wishes, prayers, good thoughts, and other strength that you can send this way would so be appreciated right now.
Thank you so very much in advance, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Thoughts and prayers are with you Trails.
You hang in there, and i hope the dr's can releive your pain.
I was just thinking of you today and then I saw this post.
i will save you a spot on the river.....
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I am so sad to read this!
Stay strong, Trails! You are in my prayers.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
Thinking of you and wishing you the best of outcomes.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
All well wishes heading out from here.
My I ask if she is staying in the hospital until the thing on wednesday and being kept comfortably numb-er than before, until then?
My thoughts and prayers are with you all.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Sending prayers and positive thoughts for Trails.
I am so sorry to hear about her unending pain.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Sending heaps of healing thoughts to trails
stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
Mi-sheberakh avoteinu v'imoteinu, Avraham v'Sarah, Yitzhak v'Rivkah, Ya'akov, Rachel v'Leah hu y'varekh et (TRAILS) v'yavi aleihem refuat hanefesh u'refuat haguf yachad im kol cholei amo Yisrael. Barukh atah Hashem, rofeh ha'cholim.
May the One who was a source of blessing for our ancestors, bring blessings of healing upon (TRAILS), a healing of body and a healing of spirit. May those in whose care they are entrusted be gifted with wisdom and skill, and those who surround them be gifted with love and trust, openness and support in their care. And may they be healed along with all those who are in need. Blessed are You, Source of healing.
docdave old jewish prayer for healing
[ 31. March 2007, 05:26 PM: Message edited by: stymielymie ]
Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Thank you each so very much for your replies. They are more meaningful than you will ever know.
Out of the last 13 days, I have spent 9 with Trails and her partner doing what I can to help. We are each exhausted and depleted, so your combined strength, prayers and concern are sustaining us right now.
Last night, when I spoke with her again, the oncology unit in the hospital was trying so hard to find new medication that would help with the continuous pain that has been unrelenting for over 4 weeks now. She did sound better overall then, but today's plans are still not finalized.
I have offered a few times for her to stay here with me until the next procedure on Wednesday. That way, she will not have to make the long drive home just to turn around on Tuesday to come back again, and someone can be with her at all times. If the hospital will not keep her, I still think this is the best option, but of course, it is up to her.
I'll try to keep you updated as I am able.
Azure, True, Geneal, Bea, Jill, Toots and Can't, Thank you each for your steadfast support and well wishes. I will be certain to pass each of them on.
Doc, That was particularly beautiful, and reading it brought a new wave of tears. Thank you for your thoughtfulness.
To those of you behind the scenes brainstorming, researching, making calls, sending emails, prayers and love to help us, words just are so inadequate to truly express my deepest appreciation
Much love, M
Posts: 7052 | From Colorado | Registered: Mar 2003
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Trailsey, I thought we were done with this hospital busyness. I'm hatin to hear this.
Wherever you are, I'm sendin a big squeezy hug right now.
(I'll be gentle 'cause you're one skinny toothpick!)
Be better soon.
Love,
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Trails,
You are one brave woman.
Katherine
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Trails~ Oh my gosh...you are getting the worst of the worst. You are in my thoughts and prayers.
Anyone have an address of the hospital that Trails is at? Can we send her a card there?? We she be staying at the same hospital after her surgery on Wednesday? Or is it an outpatient surgery?
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Oh, I'm so sorry to hear this.
Trails, I had wondered why we weren't seeing you around LymeNet, and why you weren't showing up at chat on Saturday evenings.
I had so hoped that this last surgery would be the one that set everything right. I am thinking of you and praying for you.
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Trails, you are in my thoughts. I hope that this painful period passes very soon. Posts: 2557 | From home | Registered: Aug 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Oh, Trails...
Things after that last surgery sounded so hopeful...so I was really sad to log on this morning and read Melanie's message about you.
Hopefully, they'll find something soon that can relieve the pain you're in.
I'm so glad you're surrounded by so much love and care. Just know we're all here too, rooting for you and sending you hugs and prayers!
You take care, Trails and hurry back to us!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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My thoughts and prayers are with you! It was lovely meeting you in Mountain View at the Under Our Skin preview, and I am so bummed that you have had to go through all this torture. I'll continue to think about you lots and send you buckets of positive energy.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Well, they discharged her from the hospital, and they are on their way here...
Could really use some extra prayers about now.
Thanks so sincerely, M
Posts: 7052 | From Colorado | Registered: Mar 2003
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stymielymie
Frequent Contributor (1K+ posts)
Member # 10044
posted
AN EVENING PRAYER: (excerpts from the traditional ritual)
Praised are You, God, our God, Ruler of the universe, who closes my eyes in sleep, my eyelids in slumber.
May it be Your will, God, My God and the God of my ancestors, Who Closes My Eyes...: A Blessing at Bedtime
to lie me down in peace and then to raise me up in peace.
Let no disturbing thoughts upset me, no evil dreams nor troubling fantasies.
May my bed be complete and whole in Your sight.
Grant me light so that I do not sleep the sleep of death, for it is You who illumines and enlightens.
Praised are You, God, whose majesty gives light to the universe.
docdave Posts: 1820 | From Boone and Southport, NC | Registered: Sep 2006
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Praying for a speedy recovery and smooth sailing while you recover.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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Cobweb
Unregistered
posted
"I know why the caged bird sings, on its darkest day it believes in Spring" Maya Angelou
There's daffodills dancing around here-a sure sign that Spring is here. BELIEVE
I am sending you all the healing light I can muster and extra for your partner and sweet Melanie.
This is TOO MUCH, just TOO MUCH.....Please BELIEVE you are a child of God who in His mercy can heal all hurt, all pain....surrender into His love.
Oh Trailsie.....I am embracing you where I am and hope you feel the love I am sending to you. Blessings always, Janet
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Big hugs
& prayers for all of
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
God give you strength to overcome this trial
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
Trails, My prayer is that God will hold you especially close and carry you through this. I will be thinking of you, praying for you and waiting to hear good results. Cindy
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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posted
Here's to only "happy trails", Trails.
Posts: 353 | From Florida boonies | Registered: Nov 2005
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
i've just learned that you are not on the mend after the last surgery. i can't tell you how much sorrow i feel that you are AGAIN going through way too much pain. please know you are in my prayers and thoughts and that you ARE surrounded by much love and light.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Trails, honey, big kisses and smoochies from Texas.
Don't exactly know what you are going through but just know that I'm thinking and praying for ya and hoping you get better real soon.
Remember, God never gives us more than we can handle. He must love you very much!!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
So sorry to read this -- was hoping the last surgery had worked. Would be helpful if they can also figure out some way to reduce her pain level.
Posts: 13171 | From San Francisco | Registered: May 2006
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thinking of you, Trails, and sending lots of good energy your way.
55515, Cactus
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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I have been reading along and am sending prayers and wishes as well.
Posts: 374 | From NJ | Registered: Aug 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Up for any news at all...please...
Andie
Posts: 2549 | From never never land | Registered: May 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Dearest Friends,
Please forgive me for taking so long to get back to you.
Thank you each so very much for your continued well wishes and words of support and strength...they are much appreciated as always.
I am afraid that the Wednesday procedure did not go as expected, and Trails ended up back in another hospital afterwards.
She and her partner headed back home Thursday morning, and I have had a few emails from her since. Sadly, the pain is still there and is still excruciating, but somehow, the Wednesday experience allowed our Trails to find her fighting spirit once again.
She is making plans for other possible procedures that may help, so, the quest continues.
I am hoping that she will come on here to give you updates and/or whatever details she may want to share soon. Until then, may I ask that you continue to hold her close in your thoughts and prayers?
With much love and gratitude, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Thanks for the update. Not sure what is going on. But, just hoping and praying the pain will be healed soon.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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hopeful123
Frequent Contributor (1K+ posts)
Member # 3244
posted
me, too! hope the pain will end soon and she will be able TO LIVE.
-------------------- some days you're the bug, some days you're the windshield Posts: 1160 | From NY | Registered: Oct 2002
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
up for any more information about trails and to convey my thoughts!
Posts: 2549 | From never never land | Registered: May 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I am so sorry to hear trails is having such a horrible time
Extra prayers Hopes & Hugs To you Trails & your Partner & Mel
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Sorry to hear -- I hope medical folks somewhere can help figure out how to provide more comfort/solutions.
Posts: 13171 | From San Francisco | Registered: May 2006
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-------------------- "You know, the worst, meanest, nastiest, ticks in the world are politicks," - Steve Nostrum Posts: 242 | From South NJ | Registered: Dec 2006
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Sending my thoughts and prayers to you Trails.
Hang in there.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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MagicAcorn
Frequent Contributor (1K+ posts)
Member # 8786
posted
I hope Trails is feeling better soon.
-------------------- Posts: 1279 | From In hiding | Registered: Feb 2006
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Up.
Long time, no hear.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
How can I express my thoughts and gratitude to every single one of you? I can not. Each time I have visited and looked at all the prayers and thoughts and well wishes I cry my little eyes out.
I have not wanted to reply because I continue to not do well, and I really dont like disappointing everyone. It gets old saying things are bad--and no one knows this better than you guys. especially those who have struggled for so long.
In a nutshell---that's for you acorn---I have some sort of nerve damage that has occurred in my genitofemoral nerve. This pain has decreased some --maybe due to lyrica--which is like neurontin on viagra.
But whatever ground I gained by not moaning and crying all day with the nerve pain, I have lost due to abdominal adhesions. I am now having intermitten bowel obstruction from the adhesions. I have had this previously. I am no stragner to the symptoms of serious adhesions. It is aweful.
I will need more surgery with an out-of-network (read: BIG BUCKS AGAIN) surgeon who does a good job getting the adhesions down. but if any of you know about this you know the cure is also the cause---surgery is the only way to deal with adhesions and it creates more.
My ureteral problem is "fixed" for now. so that is a good news. But even that is a mixed blessing--because since it is fixed, but my pain is new and NOT fixed, I fall through the cracks and no doc can help me.
That's the update. Sorry it is so depressing.
I am so in awe at the care, compassion and loving kindness shown towards me here. Please know that it does not go un-noticed.
my best to everyone, trails
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