Its been a year and three months to find a LLMD I'm now seeing DR.W in Milwaukee. He diagnosed me with chronic lyme, doing additional blood work to rule out autoimmune diseases. wants to do lyme cuture for co-infections, if I can afford IngeneX he'll work with me using them. otherwise he uses quest for the panel. he perscribed 100mg DOXY 2x aday, 500mg ERYTHROMYCIN 2x aday, and 500mg FLAGYL 2x aday. I'm only on day three, and already feel I'm herxing, hot flashes, aniety(shaking), nausea, brain fog ext. and have memory loss also. I forgot my 2yr old at day care yesterday. I normally pick him up at 4:oo, my wife called me at 4:45 to ask why I had not picked him up yet. It was the worst ill feeling of the day! P.S. does anyone else here see DR.W in Milwaukee? I'd like to hear from you. thanks
Posted by Parisa (Member # 10526) on :
That sounds like a really high dose to start with. Many people start with one antibiotic and then slowly add in the others. Call your doctor to see if you can't do that.
Also, autoimmune disease can be treated with antibiotics. What is autoimmune disease? Your immune system going haywire oftentime due to cell wall deficient bacteria such as lyme, mycoplasma, etc. Check out www.roadback.org.
Also, look into some of the things you can do to help with the toxins that are being released. Red root, sarasparilla, etc.
Something else that might help is the Lemon/Oil drink.
1/2 lemon 1 tbs olive oil 1 cup water
Put lemon and olive oil into food processor. Blend well. Strain the mixture through strainer. Pour one cup of water through it also.
Drink up
I'm sure others will chime in.
Posted by Geneal (Member # 10375) on :
I think that flagyl dose would do me in if I started at 1000mg.
My husband and neighbors started at 250mg for 3 days in a row.
Stopped for four days, repeated.
The goal was to get up to 750mg a day for 3 days.
Call your LLMD if you are herxing too bad.
Remember there is a die off that releases toxins into your system.
Slow and steady wins the race.
BTW are you on probiotics or have a Rx. for diflucan or something else for yeast?
Hugs,
Geneal
Posted by Lymetoo (Member # 743) on :
Quest?? UGH! Don't expect a positive on that one!!
I maintain a list of LLMD's across the country and I do not have a Dr listed for Milwaukee. I do hope he will take good care of you.
Does he advocate backing off the meds when you herx hard?? I hope so, for your sake!
I agree that flagyl at 1000mg a day would likely kill me.
Keep reading and learning here. There's a ton of info here and GREAT people!!
thank you all for your replies, he told me to be aware of a herx reaction, and to call him if it gets to be too much.
I also went to my local health store today and purched liquid acidophilus probotic, I'm hopeing this helps my GI issues because they have been one of my more constant syptoms.
this doctor has over thirty years of experiance in treating lyme, so I'm trusting he knows his stuff.
he also has a web site address were he speaks about his beliefs in cronic lyme and how to treat it.
if anyone wants the address let me know.
Posted by Lymetoo (Member # 743) on :
Yes, please PM the info to me. We always have people from WI needing help!!
Liquid probiotics?? Wow. Make sure it doesn't contain any sugar.
Glad you found us!!
Posted by kelmo (Member # 8797) on :
Lymetoo, that's funny you mentioned that about liquid probiotics. I have Therelac that my daughter uses, then I have the bottle for me.
I read the bottle and it said it had 5g sugars! What's the deal with that!? Could that be natural sugars from the fruit flavor that's in it?
Kelly
Posted by just don (Member # 1129) on :
I never met a Cheezehead I didnt like. Or any people from Wisconsin!!!
Glad you found that LLMD.
Could you please PM me with contact info and website also?? Talk alot to people in your area!! There is a need there!!Thanks--just don--
OOPS edited to say scrape hard to get the money for Igenex 'IF' you are going to test. Going first class doesnt cost that much more!!! AND second class doesnt cut it, with this stuff!!again--just don--
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