LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » update have clinical diagnosed

 - UBBFriend: Email this page to someone!    
Author Topic: update have clinical diagnosed
cheezhead
Member
Member # 12038

Icon 1 posted      Profile for cheezhead     Send New Private Message       Edit/Delete Post   Reply With Quote 
Its been a year and three months to find a LLMD
I'm now seeing DR.W in Milwaukee. He diagnosed me
with chronic lyme, doing additional blood work
to rule out autoimmune diseases. wants to do lyme cuture for co-infections, if I can afford IngeneX he'll work with me using them. otherwise he uses quest for the panel. he perscribed 100mg DOXY 2x aday, 500mg ERYTHROMYCIN 2x aday, and 500mg FLAGYL 2x aday. I'm only on day three, and already feel I'm herxing, hot flashes, aniety(shaking), nausea, brain fog ext. and have memory loss also. I forgot my 2yr old at day care yesterday. I normally pick him up at
4:oo, my wife called me at 4:45 to ask why
I had not picked him up yet. It was the worst ill feeling of the day!
P.S. does anyone else here see DR.W in Milwaukee? I'd like to hear from you. thanks

Posts: 55 | From S.E. Wisconsin | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Parisa
LymeNet Contributor
Member # 10526

Icon 1 posted      Profile for Parisa     Send New Private Message       Edit/Delete Post   Reply With Quote 
That sounds like a really high dose to start with. Many people start with one antibiotic and then slowly add in the others. Call your doctor to see if you can't do that.

Also, autoimmune disease can be treated with antibiotics. What is autoimmune disease? Your immune system going haywire oftentime due to cell wall deficient bacteria such as lyme, mycoplasma, etc. Check out www.roadback.org.

Also, look into some of the things you can do to help with the toxins that are being released. Red root, sarasparilla, etc.

Something else that might help is the Lemon/Oil drink.

1/2 lemon
1 tbs olive oil
1 cup water

Put lemon and olive oil into food processor. Blend well. Strain the mixture through strainer. Pour one cup of water through it also.

Drink up


I'm sure others will chime in.

Posts: 984 | From San Diego | Registered: Nov 2006  |  IP: Logged | Report this post to a Moderator
Geneal
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think that flagyl dose would do me in if I started at 1000mg.

My husband and neighbors started at 250mg for 3 days in a row.

Stopped for four days, repeated.

The goal was to get up to 750mg a day for 3 days.

Call your LLMD if you are herxing too bad.

Remember there is a die off that releases toxins into your system.

Slow and steady wins the race.

BTW are you on probiotics or have a Rx. for diflucan or something else for yeast?

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Quest?? UGH! Don't expect a positive on that one!!

I maintain a list of LLMD's across the country and I do not have a Dr listed for Milwaukee. I do hope he will take good care of you.

Does he advocate backing off the meds when you herx hard?? I hope so, for your sake!

I agree that flagyl at 1000mg a day would likely kill me. [Eek!]

Keep reading and learning here. There's a ton of info here and GREAT people!! [Smile]

Wild Condor's Links and information:
http://www.wildcondor.com/lymelinks.html

 -

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
cheezhead
Member
Member # 12038

Icon 1 posted      Profile for cheezhead     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you all for your replies, he told me to be aware of a herx reaction, and to call him if it gets to be too much.

I also went to my local health store today and purched liquid acidophilus
probotic, I'm hopeing this helps my GI issues because they have been one of my more constant syptoms.

this doctor has over thirty years of experiance in treating lyme, so I'm trusting he knows his stuff.

he also has a web site address
were he speaks about his beliefs in cronic lyme
and how to treat it.

if anyone wants the address
let me know.

Posts: 55 | From S.E. Wisconsin | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, please PM the info to me. We always have people from WI needing help!!

Liquid probiotics?? Wow. Make sure it doesn't contain any sugar.

Glad you found us!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
kelmo
Frequent Contributor (1K+ posts)
Member # 8797

Icon 1 posted      Profile for kelmo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Lymetoo, that's funny you mentioned that about liquid probiotics. I have Therelac that my daughter uses, then I have the bottle for me.

I read the bottle and it said it had 5g sugars! What's the deal with that!? Could that be natural sugars from the fruit flavor that's in it?

Kelly

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
just don
Frequent Contributor (1K+ posts)
Member # 1129

Icon 1 posted      Profile for just don     Send New Private Message       Edit/Delete Post   Reply With Quote 
I never met a Cheezehead I didnt like. Or any people from Wisconsin!!!

Glad you found that LLMD.

Could you please PM me with contact info and website also?? Talk alot to people in your area!! There is a need there!!Thanks--just don--

OOPS edited to say scrape hard to get the money for Igenex 'IF' you are going to test. Going first class doesnt cost that much more!!! AND second class doesnt cut it, with this stuff!!again--just don--

--------------------
just don

Posts: 4548 | From Middle of midwest | Registered: May 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.